Hey ya'll. Hope everyone is doing well.
Happy Anniversary to John and me! Our first! The nurses and medical persons threw an anniversary party for us in John's hospital room today! They brought in a cake top for us to share, a red heart balloon tied to a bag of Hershey's kisses, a card that they had all signed, and a plastic rose (transplant patient's can't be around live plants) for John to give to me. Then they shut the door and gave us some privacy. We ate the top of the cake and pretended it was our wedding cake top, LOL. And we exchanged cards. Of course I had to buy the one he was to give to me from the gift shop downstairs. "You have good taste in cards!," I told him. "How did you know what I would like?" "Oh, I just knew," he said. So we had a really nice anniversary despite the fact that John was in the hospital. I love that staff. You should have seen the look on our faces when they came in singing "Happy Anniversary To You" and donning the big, shiney, red balloon, and red rose wrapped in tissue paper! The whole staff!
Then after awhile they came in to take vitals (blood pressure, tempature, etc.) and give John blood and it was back to the usual.
Dr. Claxton made us feel a little better today in explaining that he really believes that the thinning marrow is not MDS but the Cytomegalovirus (CMV) that John has. And perhaps one of the medications (Cellcept) that he is on. So Dr. Claxton took him off the Cellcept and lowered his Prednisone.
Dr. Claxton said that after John leaves he will be on the medicine for CMV (the med will be Foscarnet) at home for a month. That means I will have to give John home Foscarnet IVs myself. I hope the nurse will come give care also. I am sure she will, as she will have to do labs. I am not confident doing many of the new duties, as this is a new kind of central line (a PICC line instead of a Hohn), and I don't even know how to flush it or change the bandage, nevertheless how to do an IV yet. So they BETTER give me a nurse!
Well, enough of my rambling. I need to finish something and get back up to John. I wanted to tell everybody to remember to go tomorrow morning to There is a Season for the Scavenger Hunt and the Monday Morning Question.
Love you all, Krissy :)