Monday, June 25, 2007

We're in Hershey

Gee, I feel bad.  Leaving everybody in the dark.  No, I haven't fallen off the face of the earth. 

John and I have been in Hershey.  Since Monday of last week.  Sorry I haven't written an entry before now.  But John was going to about three tests or appointments a day. 

We have been staying in Hope Lodge.  Instead of admitting John into the hospital, the doctors have just been giving him tests all day.  He had very high fevers for about two weeks.  They are calling his diagnosis "fevers of unknown origin".  Now along with his oncologist Dr. Claxton, he has another specialist named Dr. Zurlo, who is an Infectious Disease Specialist.  He is searching for the cause of John's fevers but cannot ascertain the cause.  Actually, John's fevers stopped a couple of days ago, but Dr. Zurlo and Dr. Claxton are still examining him, as these fevers have come on and off for a couple of months now.

John goes to see Dr. Claxton tomorrow (Tuesday).  There is a possibility we may get to go home.  They will still work on his case, but maybe from a long distance.  Maybe they can do more tests from where we live, and see him back in a few weeks.  I hope so, b/c I am ready to go home.

Speaking of home, we are packing up the apartment, b/c we have found a new one!  It is the one I mentioned to you all that we wanted.  I am so excited!  It is nice and new and clean, which will be good for John's immune system.  And it is pretty!  I can't wait to go.  It has more room, so we won't be so crammed.  I am looking forward to a change.

Well, there is so much more that I want to tell you, but I have to get up early tomorrow.  In the morning I have to go to the hospital and straighten out an insurance issue, pick up a med for John, then John has to get a test done, and then it is off to Dr. Claxton's for an office visit.  And then if we get to go home, it is back to Hope Lodge to pack, and ready the room for the next guest.  I guess that is not a lot, it is all in a day's work.  

I want to tell you a lot more that is going on, which I will, when I get a chance.  Yes, I guess I am being mysterious, LOL.

Oh, somebody asked me how my sleep apnea machine is working.  I don't get that until I get back from Hershey.  There was a mixup and they didn't even start me on it!  As far as my Narcolepsy med, it was working great for awhile.  Now I still fall asleep some.  I think the med needs to be adjusted a lot, but I don't get to see the neurologist till August.  It is infuriating, but they are saying there is no way to get in and see the narcolepsy doctor early.  Meanwhile I just fall asleep a lot.  Oh well.

Okay, I must go to bed now.

Lots of love, and I will try not to wait in posting so long next time.

Krissy :) 

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  1. God Bless you and John.  You're always in my prayers.  

  2. heavenlybama6/25/2007 11:33 PM

    Glad to hear from you.  Praying for you and John.

  3. I'm sorry you have been in Hershey all of this time... especially since they haven't been able to find the source of John's problem! I didn't think you had dropped off the face of the planet, I just figured you were still having problems with your computer system and didn't have access to the internet. Heck, I know what -that's- like! Hoping you get to go home tomorrow so you can make your big move... We want pictures of the new place!

  4. tendernoggle6/25/2007 11:38 PM

    Oh, I am soooooooo happy that you got your new apartment!!! SOme GOOD news for yall, huh?!!  God bless you, I know you have to be completely worn out...
    love ya,

  5. Happy to hear about your new apartment.  And I pray John's temp will return to normal soon.    Linda in Washington state  

  6. Good to read you are back with us .I hope everythign  works out with tests etc.I am happy for you both you have found a new apartment.It sounds to be just what you both maybe need.You both take care and thankyou for the updat.God Bless Kath

  7. Wow...never a dull moment for you two.    Hang tight, as you always do.


  8. Praying that they can find what is causing John's temp and that you two can soon come home. I pray that you Krissy will be healed from you sleep problems. Hope you can get moved into your new apt soon. Helen

  9. Hoping & praying they can find John's source of fevers and you can go home soon. I know you're anxious to get into the neww apartnent.  Looking forward to hearing good news from your new home.  
    Hugs, Barb

  10. hugsdoodlewacky6/26/2007 5:25 AM

    (((((((((((((((((HUGSTOYOUBOtH))))))))))))))))))I am praying for both of always and hope they can find whats going on with John.hve a nice day.

  11. Glad you'll be getting your new place. Good luck on coming home soon.
    Take care, Chrissie

  12. Pleased you're getting the new apartment, Krissy. Hope they find out the origin behind John's fevers.

  13. Hugs to you and John..I hope they find out why he is getting the fevers, and I do hope you get to go back home and move into the new apartment....

    Best Wishes & Prayers...


  14. Be well my friend. Tammy

  15. thats great news your getting the new place. happy to hear John's fever is gone. let's hope it stays gone. I hope your able to come home soon. ((((((((hugs))))))

  16. midwestvintage6/26/2007 8:47 AM

     I am glad you got your new place and John is doing better.  Can't wait to hear what else is going on.


  17. I pray the docs will find fixable problems re the fevers.  Congrats on finding the new apartment!
    I'm sure sorry the appts. for getting your meds and sleep therapy started are so far away.  Seems like these things move very slowly.
    loving you

  18. Oh Krissy, it was good to hear from you. I have missed you.  Sounds as if you've been busy, though.  Hope John does get to go home.  Your new apt. sounds great.  I am very happy you found a nice place.  Hope to IM visit with you soon.  Take care Krissy.  I love you & John.  Merry

  19. congrats on the new apartment! i hope they figure out what is going on with john and his fevers.  
    hugs and prayers

  20. YAY! A new apartment! That is Very Good News!
    Nothing like nice environs to perk you up.

    Much love to you & John,
    Can't wait for the mystery to be revealed.  :)

  21. Good hearing from you sweetheart =)!!  So nice to hear your excitement about the new apartment.  A change is something you both need, yes.  I am sorry I missed your call last night.  I was re-charging my cell phone.  You may leave a message if you ever need to, Matt set up my voice mail =).  He is being so helpful to me!  I would be very frustrated if I had to wait that long to see the neurologist, too.  Hang in there, my love... Hug John for me!!  Love, your little sissy xox

  22. So glad you have a new apartment to go home to!  Praying they crack the case and find the cause of John's fevers so ya'll can stay home and enjoy it for a while.  ;o)  -  Barbara

  23. Krissy just glad to hear you and John are hanging in there.  So glad to hear you got the apartment that will make it easier on both of you, that's good news. We're here whenever you can get back.  Take care.  Hugs to both of you....Arlene (AJ)

  24. lifesabench66/26/2007 10:33 PM

    I'm glad you're getting your new apartment~  And you're both in my prayers constantly ()'s~  Carolyn

  25. rdautumnsage6/26/2007 10:56 PM

    I hope they are able to pinpoint the cause of John's fevers. Wonderful news on the new apartment. Keeping you both in my prayers on the smoke! (Hugs) Indigo

  26. mztishgray07266/27/2007 9:22 PM

    I hope that you had a great time at Hershey.  I will be praying for John and for you as always though.  Hugs.  Tish G.


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