I thought it was time for a little update on John. When I wrote that we were leaving for home, I said that there were a few problems, but that it was news for another entry. So I guess this is the entry. The first thing that happened was that John's Cytomegalovirus returned two days before we left Hershey for home, the morning after they told him he could leave. He was put on an oral anti-viral (earlier I said an antibiotic - this was wrong). To make a long story short, we got the test results back yesterday, the second bout of CMV is GONE. The anti-viral took it away. Thank God for that.
The second problem is his creatinin level. He still has chronic renal (kidney) failure. I don't know what they are going to do with that.
The third problem is his blood counts. Now here is the bad part. The nurse coordinator called today and said John's white blood count was so low that she was concerned. (For those of you who understand about this - the word is neurtropenic.) Anyway, she asked him to stop taking a certain medication which would bring his counts back up, and John said he wasn't taking the medication. She was then very concerned, and said that she would be speaking to the oncologist who was filling in for Dr. Claxton to see what could be done about the low white blood count, and that she would call John back. She never called back today. I wonder why. Anyway, I am hoping John doesn't have to go back to the hospital. I keep waiting for the other shoe to fall.
That brings me back to the subject of all the blood counts. All the blood counts and John's platelets are too low. The oncologist (Dr. Claxton) is concerned. What all this means I am not sure.
Okay, that is about it. Meanwhile, if feels SO good to be home. Just being here is incredible. Catching up on two months worth of work, no five months, is difficult. But it feels good to be doing regular things again. And we are doing some fun things too.
Well, have to go now. Hope you all are doing well. Take care. Krissy :)