Saturday, July 8, 2006

The nurse coordinator called

I thought it was time for a little update on John.  When I wrote that we were leaving for home, I said that there were a few problems, but that it was news for another entry.  So I guess this is the entry.  The first thing that happened was that John's Cytomegalovirus returned two days before we left Hershey for home, the morning after they told him he could leave.  He was put on an oral anti-viral (earlier I said an antibiotic - this was wrong).  To make a long story short, we got the test results back yesterday, the second bout of CMV is GONE.  The anti-viral took it away.  Thank God for that.

The second problem is his creatinin level.  He still has chronic renal (kidney) failure.  I don't know what they are going to do with that.

The third problem is his blood counts.  Now here is the bad part.  The nurse coordinator called today and said John's white blood count was so low that she was concerned.  (For those of you who understand about this - the word is neurtropenic.)  Anyway, she asked him to stop taking a certain medication which would bring his counts back up, and John said he wasn't taking the medication.  She was then very concerned, and said that she would be speaking to the oncologist who was filling in for Dr. Claxton to see what could be done about the low white blood count, and that she would call John back.  She never called back today.  I wonder why.  Anyway, I am hoping John doesn't have to go back to the hospital.  I keep waiting for the other shoe to fall.

That brings me back to the subject of all the blood counts.  All the blood counts and John's platelets are too low.  The oncologist (Dr. Claxton) is concerned.  What all this means I am not sure.

Okay, that is about it.  Meanwhile, if feels SO good to be home.  Just being here is incredible.  Catching up on two months worth of work, no five months, is difficult.  But it feels good to be doing regular things again.  And we are doing some fun things too. 

Well, have to go now.  Hope you all are doing well. Take care.  Krissy :)


  1. jlocorriere057/08/2006 6:01 AM

    I hope and pray you can get this sorted out at home and not have to go back to the hospital. It must be so worrying for you and unsettling, just try to take each day at home as a blessing, take care of yourself, love to John. Jeannette xx

  2. I know that 'home' is always a good place to be.  It's where you can just be yourself and I hope you get to stay.  Just try to take it one day at a time and enjoy the day as it comes.  'On Ya' - ma

  3. Hope you get some news that will keep you at home still. You both have been through so much. Take care and God bless. Hugs, Chrissie

  4. Hi Krissy,
    Sorry to hear that things are not quite right yet for John. It is a difficult process and hope he does not have to go back into hospital again.

  5. praying:) sorry its hard to type one handed


  6. midwestvintage7/08/2006 9:17 AM

     I hope everything works out for you Ok.  Restrict his visitors so anyone with a cold or flu doesn't visit and limit being in crowds until his counts come up.  Hope you get to stay home, it is always more comfortable,


  7. I hope everything works itself out.  I am glad you like being home; that must have been very difficult.  And I know you don't want to have to leave, again.  Jae

  8. You both are in my prayers!

  9. i hope they give you good news. i would hate for you to have to go back to the hospitol..  my prayers are with you

  10. Praying that all will be ok. You both deserve to be in yourown home and have a little fun.  Linda in WA    

  11. I hope you guys get to stay home for a bit, Krissy. there truly is no place like home


  12. quartrlyfecrysis7/08/2006 1:56 PM

    glad you're enjoying being home and you two are having good times :)
    I will keep you both in prayer, I hope that things turn out for the best with the blood counts.
    take care Krissy~

  13. nyuknyukpik27/08/2006 5:31 PM

    glad your home
    sorry to hear john's still struggling--I will continue to pray for both of you!!!!
    enjoy your time at home while you have it!!!!!!!!!!

  14. still praying here in NY!

  15. newsworthy8227/08/2006 7:17 PM

    Hang in there. Glad you are home, it must be such a relief. Hope you get more news soon.
    God Bless

  16. I'm so happy that your back at home. I sure hope John's blood counts go up and he doesn't need to go back to the hospital.  Your in my prayers. Hugs to you.

  17. So glad you're home, hope everything gets sorted out and you get to stay home...
    Have a blessed Sunday!
    Linda :)

  18. I hope John's blood counts come up and y'all can STAY home!
    I hear the relief in the tone of your writing.  
    Prayers and good vibes being sent your way,

  19. Krissy,
    I hope John's counts improve.  I don't know much about chronic renal failure, but I am sure that they know what to do to take care of it.

    I've had low platelets at different points throughout my illness. Sometimes it fixes itself.  Sometimes you need to get donor platelets.  Depends on how low they are.  Mine were low because of lovenox shots I had to give to myself after one of my surgeries.  It rose on its own.  I'm praying this happens for John.

    I hope your 4th was great.  I am so happy you guys are home.

    Hugs, Lu

  20. mastersblynn7/10/2006 12:30 PM

    Hang in there!  Count your blessings and let God worry about the blood count.  I am praying for you guys here in Texas and I am delighted that you are home!!!!  Keep making time for fun. Barbara

  21. princesssaurora7/10/2006 2:18 PM


    There is a med he can take to raise the blood count... call them and check...

    Prayers always coming...

    be well,

  22. Glad you're home, and hope you can stay there for a while.  Hoping John is okay.  Wonder why they didn't call you back?  Anyway, hoping things are going well.

  23. I am late in talking to you.  Today is 21st...
    I am worried about John and the low blood count.  And his kidneys.  But its going to take a while before his body can get back to normal.  He has been to hell and back.  My prayers are always there for you both  and with all the prayers being said everything will be ok.   Love you            Myke


I would love to hear from you. Now is your chance! So what do you want to say?

Related Posts Plugin for WordPress, Blogger...