Hi you all. I just wanted to come on and thank you all for nominating me for some VIVI nominations. I am really surprised! I am both honored and humbled. Thanks for your support. I guess that is all I have to say about that.
Well, it has been a few days since I have written. That is because John and I have been in Hershey. No, he wasn't hospitalized this time, he just had to go to some appointments. It actually turned out to be a nice time! Nice and relaxing. Other than the appointments, we got to lounge around a lot. We spent the time together just relaxing, watching television, chatting, and laying around doing nothing! I also fooled around on the computer a lot!
John's appointment with Dr. Claxton went really well. His Autoimmune Hemolytic Anemia is actually getting better! John only requires blood about every seven days instead of five days now! Dr. Claxton showed us on a graph how John was getting better. Interesting how a mere blood test could show this.
Even though John is getting better, Dr. Claxton is still considering chemo for John. Chemo (Rituxin) might make the AIHA go away completely. I don't know how many weeks of chemo it would be. I am guessing four. I also don't know if they could do it here where we live, or if John would have to be treated at Hershey Medical Center, and we would live at Hope Lodge again for awhile. I am hoping he could be treated here where we live.
I am really feeling bad for John, even though he in no way feels sorry for himself. He told me the other day that he has had 39 rounds of chemo in his lifetime, between his two types of cancer (Non Hodgkin's Lymphoma and bone marrow cancer) and his AIHA.
One of the reasons I feel bad is he says he has something called "chemo brain". I didn't believe in it at first until I read about it in Tammy's journal. Yes, I had always heard about it, but I thought it was an excuse to not have to, well, try hard enough. But I can really see how it can effect thinking patterns and what needs to get done. It especially effects memory and multi-tasking abilities. At least now that I know, I am not as frustrated with John. And according to the article, it takes ten years for chemo brain to wear off. Yikes!
Okay, well that's about it. Today at 10 am the home healthcare nurse will come. She will take bloodwork to see if John will need the chemo. I imagine Dr. Claxton will decide within a week whether John will get the chemo. The blood tests will determine also if John needs blood today. I am certain he does because he was weak yesterday. But locally they won't be able to fit him in today I am sure. So I hope they can fit him in tomorrow (Saturday), and he won't have to wait till Monday. He will be so weak if he does have to wait.
Anyway, that's about it. Thanks for all your prayers and well wishes. I think the prayers must have something to do with John getting better. Can you pray for me to? I feel really lousy today. I think I am coming down with something. I have a really bad headache, conjestion in my lungs, and feel feverish. Yuck, maybe I have the flu. I have no time for this! Well got to run.
Love you all!