Hi you all.
So, John and I are, like, still in Hershey. He is having more tests done. Dr. Claxton wants to know where the fevers are coming from. Even though they are not occurring now, Dr. Claxton doesn't feel the issue is resolved, so we have to stay around the hospital at least until Friday night so John can take more tests.
It's been a strange week. On Monday we were told we could go home, and then when we almost walked out the door we were asked to please not leave, so John could get additional tests done this week. I like it better this way, because we would have just had to go home, and come back in a week for John to do the tests anyway. But still, I am ready to go home.
There is nothing new here, really. Other than medical tests, and cleaning, there is not a lot to do here. Neither John nor I are driving here in Hershey right now. My narcolepsy is still not under control well enough; I don't feel comfortable with driving long distances yet. And John isn't feeling his best either. Neither of us were even able to get the car up here. So we can't go too far, and sit around the Lodge a lot. I am really going to be glad when my neurologist adjusts my narcolepsy medicine.
I almost never get bored and I actually got bored today, LOL. I was actually sitting on the couch singing a "Bored as a Gourd" song, LOL. I told John that I can't imagine that we stayed here for 10 weeks after his bone marrow transplant. And I think there were other times we stayed here as long, or close to it. How did we do it???
I guess I am just longing for home, and a "normal" life. Whatever that is. I can't really remember. Normal, just for a few days. Just for a little respite, LOL.
I am saying this because I think John may have some more treatment in the days ahead, for side effects of the transplant. They doctors don't even know where the fevers are originating from and are throwing out ALL KINDS of ideas.
Wow, I am tired. And I want my kitty.