Sunday, August 20, 2006

John always has something going on

As I sit here at the computer at Hershey Medical Center I am kind of struggling.  I just came upstairs from John's bedside and I hate to see him sick.  He has something called autoimmune hemolytic anemia.  He seems pretty weak. He is requiring two to four bags of blood a day.  What is going on is his red blood cells are fighting against his red blood cells and eating them up.  Or something like that.  I don't really understand it.  Cathy, stop laughing at my explanation, LOL.  Anyway, it is pretty serious.  They said if he had come two days later, he would have passed away.  But he didn't, he lived.  So I am grateful.

So the units of blood are keeping John alive while the doctors attempt to treat the problem.  They are giving him prednisone (100 MGs a day) plus chemo (for at least four weeks) until he improves.  All that time (plus longer) he will be getting blood.  We could be here at the transplant center/hospital for four to seven weeks.

Meanwhile, he has an additional, unrelated problem.  His kidneys are breaking down.  He only has 25% function left in them.  When they lose 10% more function John is going to be put on dialysis.  I thought dialysis was a machine you have to be on 24/7, but found it is something you are on like every other day, which is good.  Although the kidney doc said it would probably be for John's lifetime that he would be on dialysis, a new good friend of mine said that you can sometimes fight to get off of it. ;)  John is a fighter, I know he will try. :)

So that is about it.  How am I doing?  Somewhat stressed but definitely hanging in there.  Only stressed because I am disappointed for John, but very much glad he is alive, and believing he will pull through.

Please say prayers, and I love you all.  Krissy

37 comments:

  1. love2sing20078/20/2006 10:17 AM

    I'm so thankful that John got there in time.  Special prayers.  Will John need a kidney transplant at some point?  Medical marvels are awesome.  Hugs and Kisses to my two favourite people in Hershey!  (Got the pun?)  
    Love, Kellen

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  2. jlocorriere058/20/2006 10:18 AM

    I'm so sorry John has another setback. I'm praying for you both. Take care. Jeannette xx  

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  3. Wow Krissy, you nor John can seem to catch a break these days.  So sorry to hear that things are not getting any better.  Keep us updated.

    Greg

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  4. dbaumgartner8/20/2006 10:31 AM

    Krissy I just don't have words that would express how I feel for both of you.  I wish I could just hug you or something.  You and John are always in my prayers.

    Try to take some time for yourself, Krissy.  Collect your thoughts and just try to regroup.

    Hugs my friend,

    Deb

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  5. tendernoggle8/20/2006 10:38 AM

    MAY  THE GOOD LORD BLESS AND KEEP YOU IN HIS LIGHT...MAY HE BESTOW ON YOU PEACE AND MAY HE GIVE YOU REST...IN JESUS' NAME..AMEN.

    I TOO KNOW ALL TOO WELL HOW HARD IT IS TO WATCH YOUR HUSBAND SUFFER...BEEN THERE AND DONE THAT, SO I KNOW ALL THAT YOU ARE GOING THROUGH AND ARE FEELING...

    I KNOW THE PAIN, THE LONELINESS, THE TIREDNESS, THE RESTLESSNESS, THE FEELINGS OF BEING LEFT HANGING IN MID AIR ON A THIN LINE AND THE HOPELESSNESS THAT YOU SOMETIMES FEEL....

    BUT ABOVE ALL; THERE IS FAITH...AS LONG AS YOU CAN HANG ON TO THAT, YOU WILL SURVIVE THIS...

    LOVE IN CHRIST,
    CARLENE

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  6. I am very sorry to hear of these complications, Krissy. Not good news, I hope it is the low point now. Keep your spirits high!

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  7. ((((Krissy))))) you have our prayers for sure!!!

    Betty

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  8. sugarsweet0568/20/2006 11:14 AM

    Please know that I continue to keep John, & you in my prayers. May God send an Angel to watch over you both!
    Hugs,
    Sugar

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  9. (((Krissy)))

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  10. Krissy, you and John are in my special thoughts and prayers.  Hang tight there dear not only for him but, you.  Miracles happn every day, have seen it in my own family....Arlene

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  11. In my thoughts...in my heart...
    Nancy
    http://journals.aol.com/nhd106/Nancyluvspix/entries/2006/08/20/happy-happy-3/1255

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  12. You are both in my thoughts and prayers hun....REALLY!!

    Be well,

    Lv Stevie
    xxxxx

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  13. sazzylilsmartazz8/20/2006 12:11 PM

    (((((Krissy)))))
    Dianna

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  14. Krissy
    You and John are both in my prayers.
    hugs and love
    Barbara

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  15. Praying for you both.

    (((((hugs))))

    Sandra xxxx

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  16. God is with you both friend. John is a fighter. You take care of yourself. We are here for you both! Tammy

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  17. onestrangecat8/20/2006 1:56 PM

    Hang in there girl.  John is a fighter and so are you.  I know this is extremely hard on you.  Prayers going up for the both of you.

    Kathy

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  18. I'm praying for you both ! I think the good Lord has a definite reason for keeping John here on earth --we never understand his ways or whys, but with faith that He has everything in control we can only praise Him and give thanks.  Rest assured that you and John are loved and prayed for !  'On Ya' - ma

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  19. sending healing prayers  John's  way!!!
    Becky

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  20. midwestvintage8/20/2006 4:30 PM

    Krissy,  I am so sorry this is happening to you and John and will send my prayers your way.  Hope everything gets betters soon.

                           Julie

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  21. rachealcarol8/20/2006 5:18 PM

    Thoughts for both of you Krissy.  John is a fighter.  Keep hanging in there. Rache

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  22. you are both in my thoughts and prayers

    Astra!

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  23. Oh Krissy, I'm so sorry to hear all this. But he is alive and fighting as you say.  Wish I were closer so  I could do something for you.  Remembering you both in my prayers. Hugs, Barb  

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  24. Dear Krissy
    I hold you in my thoughts
    be well!
    natalie

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  25. Best Wishes for John's speedy recovery!
    natalie

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  26. I'm so sorry that John is sick again. But at least he is in the hospital and getting the care that he needs. My prayers are with you and hope you all get home soon.

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  27. I AM HAPPY YOU GUYS GOT THE THE HOSPITAL IN TIME. I HOPE JOHN WILL STAY IN GOOD FAITH WITH THE LORD. I KNOW HOW HARD THIS MUST BE FOR YOU GUYS. I WISH I COULD GIVE YOU BOTH  A BIG HUG. KEEP US INFORMED
    HUGS
    NOELLE

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  28. Wow.  So glad you guys got back there in time to give him another chance...geez.  He has fought so hard and for so long, I know he will beat this condition, too...Can you send an e-mail with an address where you are staying?  I am porbably losing my DSL at the end of the week, and I want to make sure I can keep in touch with you through snail mail...thanks and take care of yourself, Krissy!  I love you guys!  Jae

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  29. I'm new to your journal. I was sent over here by Guido (Pharmolo).  I'm so sorry you are going through this.  You will be in my prayers.
    Pamela

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  30. sugarsweet0568/21/2006 6:12 PM

    Krissy, please check my BD entry ...several people have responded, wanting to donate in John's name. They have asked for his last name, would you be comfotable with giving it to me for blood donations? Just email me.
    Hugs, Sugar

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  31. Ah, Krissy...I'm sorry to hear that your husband is so sick... He is most definitely in my prayers. You too... hang in there... keep praying. bea

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  32. My dear friend, you know I hold BOTH of you very close to my heart.  Intercessions for John's health are being made every day in His Name, and people want to donate blood on John's behalf.  You have many good people anxiously offering their support and love, bless your heart.  CATHY http://journals.aol.com/luddie343/DARETOTHINK/

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  33. treesrgreen788/22/2006 11:09 AM

    Krissy I have only know u for a little while, as I am new to JLand.  May I wish you and John god's blessings you are in my prayers and a candle will be lit for u both.
    You both sound like very kind, caring, people with much intestinal fortiude and a fighting spirit which is so important.  God bless you both and take care, you are in my thoughts and prayers.

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  34. God Bless you both. . .prayers are been said for you.

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  35. Just checking in Krissy to say thinking of you and John and hope ehe's doing better dear.  You hang in there.....Arlene (AJ)

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  36. Adding my prayers in with all the others!!  -  Barbara

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  37. prayers on the way

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