Saturday, November 19, 2005

John's transplant will be in January

Hi, I am back posting.  I have had trouble even posting because of the whole banner ad thing.  I couldn't post for two days and so I did what was suggested by AOL.  I cleared my cache and rebuilt my adapter.  This has caused major problems with my computer.  I won't go into all of them now, but I am very upset.  

I don't want to deal with the whole ad situation right now, or my previous inability to post.  I have too much going on in my life to deal with it.  I am going to post what I need to right now and deal with the ads and my opinions on my problems posting at a later date.  Please bear with me.

So what is it that I am dealing with now?  Or should I say, what is John dealing with?

On Thursday, Nov 17, John and I went to (Hershey) John's Transplant Center to see John's oncologist.  Dr. Claxton, his oncologist, said that if he didn't get a bone marrow transplant there is a 100% chance of John getting AML (MDS leukemia) during his lifetime, with a 50% chance of getting it within a year.  That is why Dr. Claxton has decided that John's transplant will be in January.  He will have one more appointment on December 22 at which point we will find out the exact date in January that the transplant will take place.

One thing that was unexpected was that John found out he will be having a Non-ablative transplant instead of an ablative transplant.  One thing that means is he will be having less chemo with fewer side effects.  The Non-ablative transplant also has a much greater chance of survival, instead of the twenty to forty percent death rate of the ablative transplant. 

It also means that John will have a shorter stay in the hospital , but we will still have to stay in Hershey for four to five weeks so John can have daily outpatient care.  During the outpatient time, he will go to the hospital during the day, but at night he will be able to come back to the Hope House at night and spend the nightwith me!  The Hope House is a place like a Ronald McDonald House.  It is directly across from the hospital.  

John is relieved that he is having this transplant as opposed to the other one. However, he is not kidding himself; it is going to be rough.  He will still have to have high dose chemotherapy.  It will last for 16 hours a day for three days.  

We are not sure what else is involved.  I have looked on the internet trying to research Non-ablative transplants and have not come up with much information.  They are a relatively new procedure.

Well, thanks for letting me share.

Love, Krissy

33 comments:

  1. clearing your cache should be done hourly if you read a lot of journals  or comment a lot ! AOL fills it up quick, but never , never mess with the adapter, bad news , their techs really know VERY little , but this I know clear cache and cookies very very often, I tend to do it atleast20-30  times a day and at night before sign off , cache clearing is good , messing with adapter  bad .
    I have not had one bit of trouble , I feel bad
    ~Julie

    ReplyDelete
  2. I on the other hand rarely clean out my cache unless I'm having a problem. On the other hand, since I have a high-speed connection I have it set up to check for a new page instead of loading a cachedpage. Occasionally AOL will get wonky (usuallypogo games) and I will have to clear my cache.

    Good news about th less invasive procedure for John! Please keep us updated.
    http://adventuresofaneclecticmind.blogspot.com/

    ReplyDelete
  3. That is such good news:) Stay strong

    Deb

    ReplyDelete
  4. rocketman68543411/19/2005 4:14 AM

    Fortunatley i havent had any probs with journals.I do sympathsise with you as youve enough to deal with without aol playing up.Thats good news about John's transplant being in January.Stay strong and all will be ok.Thinking of you both now and always.

    ReplyDelete
  5. Congrats on your news. I am sure John will do very well. Hope House sounds like a neat place.

    Have a great day.
    Carolyn

    ReplyDelete
  6. You and John remain and will remain in my prayers. We've talked about a lot of this and please know I'm here anytime to talk, vent, etc.

    God Bless
    Christy

    ReplyDelete
  7. ally12313058591811/19/2005 6:14 AM

    Krissy January not long to go....I will be thinking about you both and you will be in my thoughts and prayers...Ally

    ReplyDelete
  8. I am so glad it is going to be in January Krissy, because that is not far away and the waiting will be less. You are both still in my thoughts and prayers.

    http://journals.aol.co.uk/jeanno43/JeannettesJottings/

    ReplyDelete
  9. Krissy, Sounds like your ready for this, you are his rock , I can tell. May God help to get you both through this and share many years together.

    Ellen

    ReplyDelete
  10. Good news about John's non-ablative transplant. Thinking and praying for both of you. Take care.   ~Deborah
    http://journals.aol.co.uk/kokoapuffy1/---/

    ReplyDelete
  11. Krissy,
    It sounds like good news.  From what I've read in your journal, John sounds like a strong man with a very loving wife.  I'll keep praying that you both have the strength to get through this.
    Jackie

    ReplyDelete
  12. Krissy...it does sound positve, although definitely not easy.   I, too, am thinking of you both...with love.
    Nancy

    ReplyDelete
  13. firestormkids0411/19/2005 10:43 AM

    You know you are in my prayers!   I am pleased about this, Krissy.  So happy that all the information is now on the table.  Blessings, Penny http://journals.aol.com/firestormkids04/FromHeretoThere

    ReplyDelete
  14. you and John are in my prayers!
    Becky

    ReplyDelete
  15. Hugs & prayers for you and your husband. I'm standing behind you and pulling for you both. God bless you & your family.

    --Tom

    http://journals.aol.co.uk/iscribble4u/TheSunriseandtheSunset/

    ReplyDelete
  16. Krissey..it's good to see you again.  Well at last...a time  to shoot for in John's treatment.  Now you both can prepare for this procedure emotionally and spirtually.  Remember your Heavenly Father is with you both....keep looking up ^.  You are blessed to have people all over the world praying for you.    Linda in Washington

    ReplyDelete
  17. I feel so petty right now after reading this and my own complaints.. but you are awesome and I will keep reading and praying for you.. because that is what freinds do and I am looking forward to the Praise Report you are going to give about all this when it is over. : )

    Much Love,
    Mary

    ReplyDelete
  18. Oh Krissy, dear, thanks for the update.  Banner/no banner, you need a podium to communicate this information, I'm just glad you're able to post now.  You have a lot of information that has been spread before you.  Lots of information, lots indeed...
    Judith
    http://journals.aol.com/jtuwliens/MirrorMirrorontheWall

    ReplyDelete
  19. princesssaurora11/19/2005 2:43 PM

    prayers coming sweetie, for you and John....

    be well,
    Dawn

    ReplyDelete
  20. I wish you both all the best for the transplant. I`m sure it will all go well and you are both in my thoughts and prayers.  Thanks for letting us know how things are going Krissy.

    (((((hugs)))))

    Sandra xxxxx

    ReplyDelete
  21. Krissy. . you explain all this very clearly . . it is going to be a rough ride for you both and I pray everything will go smoothly.Take each day as it comes and its great you can be in Hope House.

    ReplyDelete
  22. I have never known what a bone marrow transplant entails.  John will be asked to endure quite an ordeal.  It is being done to save his life, so enduring it will seem like being put in challenge he will face with all his energy.  With supportive people to encourage him, I am sure he will be up to the task.   mark

    ReplyDelete
  23. Mixed news, but I think it's good over all. I'm crossing fingers and toes for you guys! Hope everything turns out ok.

    ReplyDelete
  24. ernhrtfanalwys311/19/2005 8:57 PM

    Great news my dear! I thank you for letting us know about what's going with you and your hub.

    ReplyDelete
  25. dreamingbrwneyes11/19/2005 9:47 PM

    With all the prayers being said nothing can go wrong. I'm glad you were able to update and hope you continue to. We are praying for you both!!
    ~ Jenny

    ReplyDelete
  26. articwulf5836811/20/2005 2:51 AM

    My prayers are with you ~Brandie

    ReplyDelete
  27. sarajanesmiles11/20/2005 9:09 AM

    Gosh Krissy, what an awful lot you and John have to take in and deal with.  It is good news that John is having this other kind of transplant, I'm so glad, but I know it will still be rough going for you both.  Thinking of you both, biggest hugs in the world to you.
    Sara   x

    ReplyDelete
  28. jlocorriere0511/20/2005 10:45 AM

    January? Not too far away. I hope it all goes well with you and John. It's good that he can have the non-ablative transplant, I'll be praying that he will come through this OK Jeannette. http://journals.aol.co.uk/jlocorriere05/Welcometomytravels/

    ReplyDelete
  29. It sounds like you have a lot to be thankful for this Thanksgiving.  I've just been posting my journal by going in on Internet Exployer...I'm not trying the other, just in case.  Enjoy your holiday !  'On Ya' - ma

    ReplyDelete
  30. Sounds like you have a ton going on...I am glad they are getting started soon, so it will be that much sooner you can get back home and have your life  back to normal...let's hope everything goes as well as it can...JAE

    ReplyDelete
  31. verypinkinside11/25/2005 3:27 AM

    Interesting isn't it? Here's a source for more info:

    http://hometown.aol.com/VeryPinkInside/infosource.html



    V.

    ReplyDelete
  32. Krissy,
    I will keep you and John in my prayers.
    j

    ReplyDelete
  33. Krissy my friend,  You and John have been through so much and a lot more to come but with all the prayers being said I just know he will be okay.......I am always here if you need me.......hugs and love for you
                                                 
                                                  Moodymyke

    ReplyDelete

I would love to hear from you. Now is your chance! So what do you want to say?

Related Posts Plugin for WordPress, Blogger...