Friday, September 8, 2006

John is getting better :)

Hi!  I hope everyone is doing well.  Gee, I haven't had a chance to read ya'lls' journals because I've been too busy. 

Things seem to finally be turning around here.  I can finally really breathe a sigh of relief.  I really don't believe John is going to die now, for the first time.  I wasn't sure before.  But now he finally seems to be responding to treatment for the Autoimmune Hemolytic Anemia.  The Hemotologist/Oncologist team told us yesterday.  And I believe it because John hasn't required as much blood in the past few days, and his lab numbers have been better.  Yay!  That doesn't mean he doesn't have a long way to go, but I know he will make it!  I just know it! 

The treatment that seems to be doing the trick is chemo that is called Rituxin.  He had a dose last night at 9:30 PM and he was done at 11:45 PM.  Why they did it that late I have no idea.  I stayed around because it has been known to have side effects.  I got home at midnight. 

This was John's third week of the chemo drug.  He could possibly need seven weeks of it.

This morning John is having dialysis.  I feel really bad for him.  He does not tolerate it well.  He shakes and shakes afterward.  He also has a feeling of general malaise, and a sort of feeling of disassociation.  He gets headaches and his chest hurts.  He explained these symptoms to the kidney specialist, and was told that perhaps they are running the machine the wrong amount of time.  Dialysis effects your body chemistry.  They said they would check his labs, and see if they would need to change the length of his dialysis.  John said he feels like his dialysis goes on fifteen minutes too long.

On days that John has dialysis, he is sick and very very weak for the rest of the day.  Today is going to be hard.  I had better get geared up and go over to the hospital to see how he is doing.  He is usually up by this time!  

By the way, John is having trouble walking.  I know I said I walked with him in the hallway the other day, but the physical therapist told me not to do that again.  She walked with him the past couple of days, and he started to fall over several times but she caught him.  But I am not worried, because he is getting stronger everyday.  He sits up in the chair in his room now a lot to build up his strength!  I know he will be able to walk soon!

Okay, it is off to the hospital!  Love you all lots.

Krissy :)

47 comments:

  1. dbaumgartner9/08/2006 6:37 AM

    Hugs dear Krissy,

    Deb

    ps: did you get your package?

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  2. nightmaremom9/08/2006 6:51 AM

    Krissy that is good news.  The power of prayer is amazing.  We won't stop til John is home and well.  A long way to go as you say, but the direction is right.
    {{{{{{{Krissy & John}}}}}}}
    love ya
    d

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  3. treesrgreen789/08/2006 6:54 AM

    Krissy, my prayers and thoughts are with u and John each day.  It is heartening to know that John is doing somewhat better.  You both are very strong and you both amaze me at the stamina u both have.  My chatroom I visit has been sending prayers daily from all the ladies and some have donated blood in John's name.  I also know that times are tough and some are helping out in that way too.  God bless you both and know there are many out here praying for u both even though they have never met you, u are in their thought and prayers.

    http://journals.aol.com/TreesRGreen78/GARDENOFFRIENDSHIP/

    TreesRGreen78

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  4. I am glad he is getting better!!!!
    Becky

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  5. so glad to hear john is getting better. and glad to hear you can breathe again. (((hugs)))
    Cindy

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  6. Hi Krissy
    Sorry I haven't been around, I'm playing catch up here. I'm glad John is doing better. And I keep praying for more good days for ya.

    Brenda

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  7. Praise God.   You two deserve a break.   I am very happy for you.      Dawn

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  8. I am very new to your journal, but I will pray for John and a very speedy and thorough recovery.

    ((hugs))
    Jeanne

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  9. Great news!!

    Wishing you all the best!!

    Lv Stevie
    xxx

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  10. thats great news!  i was just wondering about you two this morning...so glad you were able to make a post.  as john gets stronger and he starts adjusting to dialysis, it should get easier after treatments.   still praying for you.
    http://journals.aol.com/rbrown6172/Ginasspace/
    gina

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  11. pixiedustnme9/08/2006 8:04 AM

    battling an uphill fight is always so much easier when you can see the top of the hill!  I am so glad he has taken a turn for the better :-)

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  12. What a HUGE relief for you both!
    I'm so glad for the good news.

    Way to go John!
    Way to go Krissy!

    And thank you, God, for answering prayers!

    I love you guys.


    Kate

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  13. springangel2359/08/2006 8:14 AM

    I am sooooooo happy to read your recent update...all my love and hugs to John...and to you too Krissy...
    Joyce

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  14. That is so awesome!
    ((((((((Krissy & John)))))))))

    Annie =)

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  15. sugarsweet0569/08/2006 8:52 AM

    PRAISE GOD!!! Happy to hear.
    You're both in our prayers.
    Blessings, Sugar

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  16. You guys were due some better news.  I hope this is an indicator of things to come and he we be on the way to recovery very soon.

    Greg

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  17. quartrlyfecrysis9/08/2006 8:56 AM

    Glad things are looking up for you guys!
    Will keep you both in prayer :)
    ~Bernadette

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  18. thank GOD! i am so happy he is doing better. it will be over soon dont you worry!
    take care and stay strong
    noelle

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  19. Wonderful news!
    Judith

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  20. Thank you God!!
    Big hugs to you both...
    Have a Good weekend!
    Linda :)

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  21. Great to hear John's health is improving at last. I'm sorry to hear that the dialysis is such a burden, but at least it's not going to be a permanent feature

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  22. seraphoflove90019/08/2006 10:20 AM

    Good to hear! Still in my prayers. :o)
    Lisa

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  23. It's been a while since I have been able to read blogs so I am playing catch up.  As always John and you are in my prayers, and Praise God, he is improving.. that is wonderful to hear.  I know this all has got to have been hard to deal with, but you seem so strong, I smile because I know where you draw your strenth from.  ((((((HUGS)))))))

    Much Love,
    Mary

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  24. Nice to hear some good news! I'm sure John's on his way back to strength and better health. Barb

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  25. I'm so glad to hear that he is doing better. Prayers do work and doctors of course.

    Hugs, Angela

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  26. mastersblynn9/08/2006 11:17 AM

    ((((((((JOHN & KRISSY)))))))) yeah!

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  27. I love hearing about him getting stronger, and you feeling RELIEF!  Jae

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  28. Thanks for the update Krissy....You and John remain in my prayers.  Linda in Washington state

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  29. Oh, such wonderful news about John! I am so glad things are turning around for him and you can relax a little bit... Hang in there!

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  30. One big, giant, "YAY!"

    Nancy

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  31. midwestvintage9/08/2006 12:48 PM

     I am so happy you are both getting results and John is getting stronger.  Hopefully it is all up hill now.

                        Julie

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  32. Thank God for the good news! Always have you and John in my prayers. Hugs to both of you.

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  33. This is wonderful news Krissy. Sending lots of good wishes to you both.
    Hugs & love,
    Sylvia xx

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  34. This is so good to hear!
    continued  thoughts and prayers for John and you!

    Sharon

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  35. hugsdoodlewacky9/08/2006 4:47 PM

    ((((((((((((((((((KRISSY)))))))))))))))))))))))))))))I am glad things are looking better for John.you both are in my prayers.

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  36. What great news . still praying god bless.

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  37. onestrangecat9/08/2006 6:22 PM

    so happy to hear this! great news.

    Kathy

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  38. (((HUGS KRISSY))) and prayers continued!
    Martha

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  39. tendernoggle9/08/2006 9:27 PM

    You are still on mny heart and my prayers are still going up.
    love ya,
    carlene

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  40. nyuknyukpik29/08/2006 11:12 PM

    hugs to you and John!!!!!
    you're still in everyone's prayers---God will answer them!!!!!
    take care of yourself!

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  41. kaydeejay54499/09/2006 1:00 AM

    There are prayers and angels and love and care surrounding you, two.  Good wishes and lots of hopeful thoughts.  You're an amazing woman married to an amazing man!
    Love,  Kathy

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  42. jlocorriere059/09/2006 8:03 AM

    I'm so happy to hear you finally have some good news with John! I hope they can sort out the dialysis and make it less traumatic for John, continuing to pray for you both. Jeannette xx  

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  43. Hello Krissy,

    I`m so pleased to hear that John is improving.  It`s great to hear you sounding so much happier again.  Best wishes to John and I`ll keep you both in my prayers. :o)

    Love and Hugs

    Sandra xxxx

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  44. love2sing20079/09/2006 10:07 PM

    So glad to see such improvement.  My grandfather hasn't been able to walk since he was diagnosed with West Nile in 2002, so I know how that goes.  Still praying very hard!
    -Kellen

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  45. I am so glad that John is improving and that you are feeling a release from all the stress.
    Hugs
    Barbara

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  46. princesssaurora9/11/2006 2:41 PM

    Rituxan is also used in Rheumatiod Arthritis... Good luck John!!!

    prayers as always,

    be well,
    Dawn

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  47. wildflowersea9/11/2006 3:25 PM

    It's so good hearing he's doing better. Take care,
    ~Annie

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