Tomorrow (Tuesday) John is going to have an operation. The kidney specialists decided John's kidney function isn't improving after all. So tomorrow he is going to have a permaport put in for permanent dialysis. This will make it so he no longer has to have the uncomfortable temporary line sticking out of his neck. Instead, he will have a permanent port inserted into his body at the point of his jugular. It won't be visible at the sight of the jugular. It will come out of his chest. It will be visible at that point. It will have to be bandaged at his chest. It will have two tubes that hang out at this place, that hang down to his stomach. This may sound weird, but it is better than the two tubes that have been sticking up out of his neck like anteneas! They were in a weird place, and constantly the bandage was coming off and the sight was getting bloody (sorry for being graphic). Now that the permanent port will come out in a different place (on his chest), it shouldn't get bloody (I think). But maybe I am wrong. At least it should be more comfortable, is one of the reasons they are doing it. Now that he is getting permanent dialysis.
Yes, you heard me right, permanent dialysis. What a disappointment. As in lifetime dialysis. Technically though, things could turn around, and his kidneys could function again, and they could yank the permaport. But they are not counting on it, so they are putting the permanent line in. John is not giving up though, he is going to fight to get off permanent dialysis.
Well, that's about it. All I want to say. Except yesterday was a very bad day, today was a very good day. Everyday changes. Strange. He is still averaging about two bags of blood a day. The hematologist/oncologist today said that he was not discouraged though. He thinks the chemo and prednisone will work. I am not quite sure where he is getting the numbers from as far as bags of blood go and lab numbers, but I must stay hopeful, as he is hopeful.
Okay, anyway, please pray for John. Tomorrow will be a very hard day. Hewill have surgery. This might take a couple of hours. He will get several hours (bags) of platelets so he won't bleed too much during surgery. That could take about four hours. He will have about four hours of dialysis, which leaves him very exhausted, and he has had complications the last two times he has had dialysis. So he will have a long tiring day.
Please pray that he is okay during the surgery. Thanks and I love you all.
Krissy :)
prayers coming krissy.
ReplyDeleteWill keep you in my prayers.
ReplyDeletePam
Tons of prayers coming!!! The port in the chest should help, and it will make him more comfy. Love and hugs to both of you
ReplyDeleted
Oh Krissy, I am so sorry that I have not been around much to read. I'm at loss for words that this is what's happenning lately. Please know I am sending my hugs and prayers,
ReplyDeletethinking of you and John,
Gem
Positive energy winging your way.....
ReplyDeleteBoth of you are always in my thoughts.
ReplyDeleteGreg
Yes Krissy, we continue to pray for John's healing and for strength for you as you stay near his side. Take care, Linda in WA
ReplyDeleteSorry to hear he's going to have to get the perm. port but glad he's holding onto the hope of getting rid of it someday. Will pray for you both as always, and esp. during the surgery. Hugs, Barb
ReplyDeleteAs soon as I get this in here, I am going to stop what Iam doing and pray for you and John sweetie...Please know that although we may not be there in person we are there in spirit holding you up honey...I know so well how terribly sad and lonesome it can get...please know that we are here and many, many prayers are going to go up for John tomorrow.
ReplyDeletelove in Christ,
carlene
Krissy you and John are always in my thoughts. I will send prayers that John gets through the surgery in flying colors. Please take care of yourself also.
ReplyDeleteJulie
Krissy & John
ReplyDeleteYou are always in my prayers. I no God is with you stay tuff.......
Love
eileen
Keeping you both in my prayers, god bless you. (((hugs))))
ReplyDeleteCindy
I've been out of the 'loop' for a week or so because we were out of town. I just caught up and want you to know that I will be praying for John's surgery and will continue my daily prayers for each of you. May God's loving presence be felt by you both each day as you go through this difficult time.
ReplyDeleteKathy
Oh Krissy...will pray for John and also for you, my friend.
ReplyDeleteHugs,
Nancy
I will pray!!!!!!!!!!
ReplyDeletePraying for both of you, May God give both of you strength to get through this trying day. Helen
ReplyDeleteMay our dear Lord bless John with a successful surgery and guide the doctors caring for him. Praying always ! 'On Ya' - ma
ReplyDeleteI will be praying that everything goes right with the surgery. Please stay strong as you seem to be right now. Things will work itself out. Hugs. - Tish
ReplyDeleteKrissy , you both are in my prayers..... May God be with you .
ReplyDeletehugs,
Ellen
I will continue to hold you all close in my prayers.
ReplyDeletepraying all goes well with the surgery.
ReplyDeleteyou take care doll~
~Bernadette
Prayers are yours for today and always.
ReplyDeleteI hope you get something special in the mail today. (snail mail). :-)
Hugs
Deb
Hope all goes well with the surgery, bit disappointing of course that it's necessary, but just as well that it can be done.
ReplyDeleteKrissy,
ReplyDeleteGod Bless you, and I am keeping John in my prayers. He has been in them, even though I've not left a comment.
He is one very well thought of and prayed for man, as I hear people speaking of him and praying for him, all over Jland. From our lips to God's ears.
God Bless..
Jackie
http://journals.aol.com/siennastarr/Hopefloats/
Keeping you both in my thoughts and prayers. For surgery day and always. Hang in there...:)
ReplyDeleteI am praying hard!
ReplyDeletePlease keep us updated as to John's condition.
Hope you are able to get a little rest dear, as you know, it's in God's hands. ;)
Hugs, Bless you both,
Sugar
Krissy,
ReplyDeletePrayers from far away for you both. Hugs, Lu
You and John are in my thoughts today---God bless you two! Julie
ReplyDeleteKrissy, I am sending you a BIG hug. You both are in my prayers.
ReplyDeleteBless You my friend.....
Louise
Just popped over from Carlenes journal.
ReplyDeleteI wish you both the very best, you are in my prayers
husg
Jayne
God bless you both. . thinking of you x x x x
ReplyDelete