Friday, October 20, 2006

thank you for the VIVI nomonimations!

Hi you all.  I just wanted to come on and thank you all for nominating me for some VIVI nominations.  I am really surprised!  I am both honored and humbled.  Thanks for your support.  I guess that is all I have to say about that.

Well, it has been a few days since I have written.  That is because John and I have been in Hershey.  No, he wasn't hospitalized this time, he just had to go to some appointments.  It actually turned out to be a nice time!  Nice and relaxing.  Other than the appointments, we got to lounge around a lot.  We spent the time together just relaxing, watching television, chatting, and laying around doing nothing!  I also fooled around on the computer a lot!

John's appointment with Dr. Claxton went really well.  His Autoimmune Hemolytic Anemia is actually getting better!  John only requires blood about every seven days instead of five days now!  Dr. Claxton showed us on a graph how John was getting better.  Interesting how a mere blood test could show this. 

Even though John is getting better, Dr. Claxton is still considering chemo for John.  Chemo (Rituxin) might make the AIHA go away completely.  I don't know how many weeks of chemo it would be.  I am guessing four.  I also don't know if they could do it here where we live, or if John would have to be treated at Hershey Medical Center, and we would live at Hope Lodge again for awhile.  I am hoping he could be treated here where we live.

I am really feeling bad for John, even though he in no way feels sorry for himself.  He told me the other day that he has had 39 rounds of chemo in his lifetime, between his two types of cancer (Non Hodgkin's Lymphoma and bone marrow cancer) and his AIHA.  

One of the reasons I feel bad is he says he has something called "chemo brain".  I didn't believe in it at first until I read about it in Tammy's journal.  Yes, I had always heard about it, but I thought it was an excuse to not have to, well, try hard enough.  But I can really see how it can effect thinking patterns and what needs to get done.  It especially effects memory and multi-tasking abilities.  At least now that I know, I am not as frustrated with John.  And according to the article, it takes ten years for chemo brain to wear off.  Yikes!

Okay, well that's about it.  Today at 10 am the home healthcare nurse will come.  She will take bloodwork to see if John will need the chemo.  I imagine Dr. Claxton will decide within a week whether John will get the chemo.  The blood tests will determine also if John needs blood today.  I am certain he does because he was weak yesterday.  But locally they won't be able to fit him in today I am sure.  So I hope they can fit him in tomorrow (Saturday), and he won't have to wait till Monday.  He will be so weak if he does have to wait.  

Anyway, that's about it.  Thanks for all your prayers and well wishes.  I think the prayers must have something to do with John getting better.  Can you pray for me to?  I feel really lousy today.  I think I am coming down with something.  I have a really bad headache,  conjestion in my lungs, and feel feverish.  Yuck, maybe I have the flu.  I have no time for this!  Well got to run.

Love you all!

Krissy :)     

38 comments:

  1. Congrats on your nominations for the ViVi awards. Good luck! I will be in prayer for both you and John. Hope your day gets better. Helen

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  2. I will certainly pray for you - take care , drink plenty of fluids and keep warm- 'On Ya' - ma

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  3. First off, congratulations on the nomination...you deserve it.  Glad you got a "fun" trip to Hershey for once.  I'm sure it was a relief to relax a bit in the place that you have spent so many stressful hours.  It is also good news that he is getting better.  Sorry it is tainted a little with the "chemo brain".  That is just one more hurdle that the two of you will jump together.

    Greg
    http://journals.aol.com/radar446/PhotoTrek/

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  4. Congrats on your nomination!!!  You deserve it!!  Will keep you both in my prayers.
    Pam

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  5. Krissy, don't forget to get your flu shot this year, if you are able!  I hope you aren't coming down with something.  Take care of yourself in the next two days... eat, drink, rest.  It could be that you had to take the antibiotic and it has lowered your immune system.  The ALWAYS make me feel crappy (and often make me catch things!)  Congrats on your VIVI nominations, girl!!  You are my heart!! xox
    http://journals.aol.com/valphish/ThereisaSeason

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  6. sugarsweet05610/20/2006 10:27 AM

    Congrates on the nomination! {{}}
    Happy John is doing better! Will cont to pray for him.
    Have a good weekend.
    Sugar

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  7. midwestvintage10/20/2006 10:29 AM

     Congratulations on your nomination.  You deserve it.  I am so glad John is doing better.

                      Julie

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  8. hugsdoodlewacky10/20/2006 10:33 AM

    (((((((((((((((((((HUGSTOYOUBOTH)))))))))))))))COngrtas on the nominations,I voted for you.I am glad John is getting better,but,still know you are worried for Him.Your both are still and always will be in my prayers.HAve a ncie weekend.

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  9. OK Krissy, you've heard me say it before but I guess I have to say it again.

    Give yourself a  few moments of Krissy time.  Take a Calgon break.  Let your batteries recharge.  You have to let your body recover so it can keep going.

    You do have my prayers and wishes for the best for you and John.

    Hugs my friend,

    Deb

    My journals:

    http://journals.aol.com/dbaumgartner/MakingAHome
    http://journals.aol.com/dbaumgartner/bitsnbytes/
    http://journals.aol.com/dbaumgartner/TheCube/>
    http://journals.aol.com/dbaumgartner/fibrohaze/
    http://journals.aol.com/dbaumgartner/kitchenchatter/
    http://justmypics.blogspot.com
    http://dejebaumsworld.blogspot.com

    Rainbows and Sunbeams:

    http://www.rainbowsandsunbeams.com

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  10. Congratulations on the nominations!  Get well, girl!  Jae

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  11. Yes, congratualtions on the nominations.  I know it's been difficult to keep your journal up when you're busy taking care of John and yourself and oh yes..I forgot about Michael.  I will pray that with a little rest, you'll be as good as new....take it easy.  Linda in WA

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  12. kaydeejay544910/20/2006 11:44 AM

    Congratulations on your nomination!  Very good! I'm so glad that things are looking up for John.  I believe that prayer works wonders and that God hears each one.  He has a plan for your lives and He loves you both so much.  Rely on Him for strength and hope.  Take good care!
    Hugs,  Kathy

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  13. Hi there, fellow nominee...

    I'd just like to congratulate you on becoming a nominee for the, '2006 Vivi Awards' and wish you the very best of luck on voting day. I know how excited you must be, because I too was voted for, in the 'Best Video Blog' catagory.

    If you want to see exactly how excited I was, check out my video response here:

    http://journals.aol.co.uk/davethesod/mish-mash/entries/677

    As my blog is less than one month old and it doesn't have very many viewers yet, perhaps you could help me out and increase my chances in the 'Best Video Blog' catagory come voting day, by sharing the link to my blog with all of your friends, but only if you enjoy it, of course. If you could do that for me, I'd be ever so grateful.

    Here it is...

    http://journals.aol.co.uk/davethesod/mish-mash/

    Once again, all the best and good luck with the votes on, 2nd November...

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  14. Congrats a bunch!
    Love,
    Nancy

    http://journals.aol.com/nhd106/Nancyluvspix/entries/2006/10/18/the-adventures-of-mr.-chip/1288

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  15. Great to hear of John's progress, keep us posted

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  16. Congrats again, hon, and I DO pray for the two of you, all the time.
    Big hugs,
    Barb- http://journals.aol.com/barbpinion/HEYLETSTALK

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  17. jlocorriere0510/20/2006 5:39 PM

    Congratulations Krissy on the nomination. Best of luck when the voting starts! I hope John can get his blood tomorrow and not have to wait. Praying for you both. Jeannette xx  

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  18. springangel23510/20/2006 6:47 PM

    Congratulations Krissy...job well done!  Your journal is awesome, always.  I wish you the best of luck.
    You and John both are always in my prayers...hugs and love,
    Joyce

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  19. chemo brain is true. i have noticed, i forget some things and have to think really hard sometimes. glad you and john were able to relax. have a great weekend. (((((hugs))))))
    Cindy

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  20. Hi Krissy- I will definately pray for you and John both!   I do hope whatever you are coming down with will be quick and gone, and for John, I pray that he will get healthy also.  I haven't read much of your journal yet, so am still pretty clueless on what AIHA is all about- but it sounds serious, and I pray for his complete recovery.  God Bless, and I hope you both have a relaxing, but good weekend, take care, and God Bless!  Carolyn

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  21. Hi, came to visit your journal for the first time. I am sorry that anyone has to have that many rounds of chemo.  My companion of 3 years died last year of lung cancer only a month after he was diagnosed.  He didn't think cancer metastisized to the bone hurt bad enough to be cancer.  He medicated with darvocet and advil when he ran out.  Had to decline both chemo and radium. I will tell you these cancer sufferers can be a very tough bunch.  So glad yours is still alive!  Gerry  (75)

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  22. Congrats on the nomination!
    Charley
    http://journals.aol.com/cdittric77/courage

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  23. Krissy,

    Congratulations on your VIVI award nominations and good luck on November 2nd!

    Guido
    http://journals.aol.co.uk/pharmolo/NorthernTrip

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  24. congradulations on the nominations . Im glad you had a nice tims inspite of the appointments. Its always nice when you get a little benifit from GOD and blessing you did not expect out a hum drum day . BUT then HE is good at that.

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  25. Hi Krissy,

    Congrats on your Vivi nominations! You are right about one thing - the prayers do help, and I'm so glad he's getting better. Will definitely keep you both in our prayers.

    Hugs, Mandy ~

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  26. congradulations on your nominations Kristina! I was chatting with you last night when an online friend popped up and I told him I was chatting with my sister and that she had gotten nominations for her blog... he asked oh let me see. I said ok and sent him and he read some and said sorry she has to deal with her husband going through the medical stuff... then he went on to talk about his mother being very sick and needing three different organ transplant, also dealing with her illnesses for ten years. He was glad to be able to talk about things with me and your journel had opened that up for him. I guess my point is your journel sharing intimate real issues encourages others to have that same courage and ability to share their own lives difficulties and joys... your blog is well deserved of nominations sweetie!

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  27. rebuketheworld10/21/2006 7:36 PM

    Congratulations! Your stamina and unconditional love is something we all feel blessed with....when I was reading 39 rounds of chemo..boy did that take me back....John is a true fighter! I know we gather strength from our loved ones but this is totally divine intervention....glad to hear he is doing better....and glad to hear you guys could just sit down and chat together....In my prayers..Raven

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  28. tendernoggle10/21/2006 9:02 PM

    Congratulations on your nomination!!! You have been so brave and strong this year ...
    I hope that John does not need the chemo and that he will continue to improve...
    I am also gonna say a prayer for you too!!!
    love ya,
    carlene

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  29. Good Luck!!
    and as always only the best for you and John...
    Linda :)

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  30. sazzylilsmartazz10/21/2006 11:01 PM

    Congratulations on the Vivi nominations and best of luck to you! I'll say a prayer for you and John.
    Dianna
    http://journals.aol.com/sazzylilsmartazz/DiannasMindlessMusings/
    http://journals.aol.com/sazzylilsmartazz/SazzyKreationz/

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  31. hadonfield7810/22/2006 1:20 AM

    Congrats on your nomination....
    You deserve it.
    You put alot into your journal...

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  32. Congrats on your nomination and thanks for stopping by my journal :)
    I'll say a prayer for you and John....

    Gretchen
    http://journals.aol.com/ksgal3133/LivinginSavannah2

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  33. Congratulations on your nominations Krissy
    http://journals.aol.co.uk/jeanno43/JeannettesJottings/

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  34. nightmaremom10/22/2006 2:48 PM

    Just wanted to stop by with a big congrats on your Vivi Nomination.  Good Luck!
    d
    http://journals.aol.com/nightmaremom/Thisandthatandhockey/

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  35. I've enjoyed looking around your Journal. I stopped by to say Hi and Congratulations on you VIVA nomination. Regards, Bill. http://journals.aol.com/wfhbear/Commentsontheeventsofmylife/

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  36. love2sing200710/22/2006 10:47 PM

    Glad to see you guys are getting time to just "hang out".  
    Check my Briege McKenna entry...
    -Kellen

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  37. princesssaurora10/23/2006 4:57 PM

    Congrats Krissy...

    prayers coming as always...

    be well,
    Dawn

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  38. Congratulations on your Vivi award nominations. You surely deserve them.  I hope that if John has chemo you can do it where you are.  Hope you are feeling better and do not have the flu.
    Hugs and prayers, Barb

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