Wednesday, October 4, 2006

We're coming home! Again!

It's Tuesday night.  Well, really Wednesday in the wee hours of the morning.  I am up so I can have a little alone time.  I need to go to bed though.

I just wanted to do a quick entry first.  I wanted to tell you all that John is probably going to be discharged from the hospital tomorrow (Weds.).  He still has a very low white blood count, but it has come up a little bit.  And his ANC is now 0.7 instead of 0.  That is still neutropenic and somewhat dangerous, but not as dangerous as it could be.  He will also need blood in a day or two, but he can get that at the infusion center near home.  I guess he will have to wait two days to get blood, because we will be traveling home on Wednesday. 

John has had two antibiotics in the hospital.  He will be sent home on one.  It is called Vancomycin.  Hopefully he won't be sent home on the other one also (Cefapime), because he receives that one three times a day, and I don't want to be giving him that many antibiotic IVs.  Looks like I am going to have to be doing home IVs like I did in the past.  At least with the Vancomycin.  It has been a long time since I have done it, so a nurse is going to come out, probably Thursday morning, and show me how to do the IV again.  I will also have to learn how to flush the PICC line, as it is a little different than his other PICC lines I have done in the past. It is a Groshong PICC.  For those of you who don't know, a PICC line is where blood is drawn from to take labwork, and where you administer blood and antibiotics through.  A port so to speak.  I think I have a picture somewhere, I will have to show it to you in the next few days.

I said I was going to make this short, LOL.  I can't do anything abbreviated!

How do I feel about doing IVs at home this go around?  It is fine.  I just want to get home.  It will be hard at home, though.  I was getting behind between last hospital stay and this one.  Making the renal (kidney function) menus takes a lot of time, as does cooking the food.  Alot of it has to be made from scratch so that it doesn't have salt and other things in it.  Just opening a box of macaroni and cheese is way out of the question.  So just keeping up with the food is hard.  Not complaining, just stating a fact.

But it will be nice to go home.

I will write again after I get settled in at home.  Love you all!

Krissy :)

30 comments:

  1. I pray for John to get well soon and I pray for strength for you to help take care of him. Take care of yourself also. Helen

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  2. John is very lucky to have you by his side.

    Greg
    http://journals.aol.com/radar446/PhotoTrek/
    http://journals.aol.com/radar446/WaterfallTrekking/

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  3. jlocorriere0510/04/2006 5:25 AM

    I'm so pleased John can go home, let's hope he carries on improving. I know you'll take good care of him Krissy. Love to you both. Jeannette xxxx

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  4. quartrlyfecrysis10/04/2006 7:13 AM

    I'm so glad you two will bein the comfort of your home again :)  Very glad that John is doing better.
    You guys take it easy and take care of that wonderful husband of yours :)
    ~Bernadette

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  5. I AM HAPPY THAT YOU GUYS ARE GOING HOME AGAIN!  GOOD LUCK WITH EVERYTHING
    NOELLE

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  6. Krissy...so glad to hear you both are headed back home.  Take Care!
    Hugs,
    Gina

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  7. Pleased, very pleased that John didn't need to stay in for long. But you're going to be kept busy, no mistake.

    Guido

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  8. Oh, I am so happy you guys are getting to go home again!  I can imagine how hard preparing that food must be.  I recently went back to weight watchers and trying to eat healthier...and even THAT takes so much time to figure out, shop for, prepare, etc!  And you have so many other things going on with taking care of John.

    Well, hope you have a good trip home.  I was thinking about you when they mentioned that a few of those poor children from the Amish Schoolhouse were taken to the Hershey Medical Center.  Isn't that where you are??

    Lots of ((hugs)) for you and John,
    Jeanne

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  9. sugarsweet05610/04/2006 8:47 AM

    AWWWWW {{{{{}}}}} Glad John is better & you're both headed for home. Praise God!
    Blessings, Sugar

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  10. So glad you're headed home...That's great!

    Nancy
    http://journals.aol.com/nhd106/Nancyluvspix/entries/2006/10/03/priority-mail/1279

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  11. Welcome home dear.     Wish I could offer some physical help to you.   God bless.       Dawn

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  12. mastersblynn10/04/2006 9:02 AM

    Hi Krissy and JOhn!  Glad to hear the good news!  YOu will be there in time for me when I come disguesed as a child on Halloween...you won't know which kid I am so make sure you have plenty of Martha Stewart type treats for all the kids!  I guess I will recognize you by your nurse uniform.  Doing the happy dance in Texas!!!! Barbara

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  13. hugsdoodlewacky10/04/2006 9:20 AM

    ((((((((((((((((((((((KRISSY AND JOHN))))))))))))))))))))))))I know you and John must be very tired.You both have been and still are in my prayers.Have a good day.

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  14. Yay going home again!!!!
    Big Hugs!
    Linda :)

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  15. Glad to hear you are going home.  There's no place like home.
    Pam

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  16. firestormkids0410/04/2006 11:04 AM

    YAY!! I am so happy you will be at home!  I know I miss you, as does Mr. Michael. I keep you and John in my prayers at all times.  See 7ou soon.  Bessings in the Lord, Penny http://journals.aol.com/firestormkids04/FromHeretoThere

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  17. Yeah!  I know you just want to get home, and even though you havemore work to do, it must be nicer to just be in your own home to do it!  Good luck!  Have a safe trip!  Jae

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  18. This is wonderful news. I know that you will both be more comfortable in your own home.

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  19. I'm glad that you are headed home again.  I will keep on praying !  'On Ya' - ma  

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  20. YAY, I'm glad you will be home again and I will see your name of my buddy list! Hope you have a nice ride; it's a warm sunny day out. Take good care, xox Deb

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  21. Hi Krissy,  I`m so pleased to hear that John is well enough to come home, that`s wonderful news! :o)

    Hugs

    Sandra xxxx

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  22. tendernoggle10/04/2006 3:17 PM

    I AM SO HAPPY FOR YOU BOTH..PRAYERS STILL GOING UP.
    LOVE YA,
    CARLENE

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  23. so pleased for you and John coming home...best wishes and thoughts coming your way...

    Astra!
    http://journals.aol.co.uk/astra1547/astrasjournal

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  24. springangel23510/04/2006 6:52 PM

    I am so happy to read this Krissy...you both are always in my prayers...John is so strong...you too.  Have a safe trip home...hugs and love,
    Joyce

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  25. wonderful news!!  hope you've had a good day.
    gina

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  26. midwestvintage10/04/2006 9:01 PM

     My son had kidney failure when he was 12.  That 2 gm sodium diet was a killer.  Store bought low sodium foods were awful.   One of our meat departments made us special hot dogs and brats salt free.  Dan loved those and both my husband and I became better cooks as we had to cook from scratch.  Now 16 years later we still don't ever use salt.  When you get used to not using it it tastes awful.  But it is hard.  Good luck to you.  Glad you get to come home.  Comfy beds,  lounge clothes, tooting out loud if you have to, the joys of home.

                        Julie

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  27. rebuketheworld10/05/2006 4:30 AM

    totally Krissy....very hard to carry and switch hats all day.....I'm glad he is doing better but I think he wants to be home...that atmosphere is so much better or both of you....praying...praying....-Raven

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  28. Krissy, welcome back home!
    Love and prayers,
    Penny

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  29. Thank you for finding the time to visit ... You and John have an inspirational relationship.
    Patrick

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  30. It seems like a lot of work making the meals Krissy!    I have read about all the technical descriptions of the lines that John must have and it seems overwhelming but you and John persist!   I just hope that you and John can have some fun at home with Micheal the Cat and do some enjoyable activities even if it is just watching some TV or Video.   My dog Salty is laying down by my bed and Inspector Lindy is on PBS so I will make some dinner and become a couch potato,  lol !    mark

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