Monday, April 16, 2007

John was discharged!

John was discharged yesterday.  Thanks for all the prayers.  It turns out his problems was his PICC line (port) was infected.  They had to take it out.  I wonder if he will need another one.  One of the things he needed it for was to get his red blood cells, but I think he can get those through getting stuck.  He also needed it for Rituxin (chemo) when he needs the Hemolytic Anemia to behave.  Technically the chemo can be given another way, but it is not good to do so at all.  Then there is the issue of vanco (IV antibiotiotics) he gets sometimes, and the frequent blood draws for lab tests.  He just may end up getting another port.  That PICC Lince actually lasted six months before it got infected, which is almost unheard of!

Speaking of lasting six months, John got his first shower in six months a couple of days ago!  When they pulled the PICC Line he was able to shower!  Before that he could only wash up, because he was never allowed to get the PICC line wet at all, or he would develop an infection.  He said the shower felt so good!  

Anyway, they finally discharged John yesterday because his fevers stopped.  Of course when he got out last night his temperature was 99.8, but that is not that high.  But still something to keep an eye on.  In the hospital to keep his fever down he was given IV antibiotics.  At home he will get oral antibiotics.  

So now that John is out, we may get home today.  But I doubt it.  It is snowing back home, and there are 40 mile an hour winds.  I can hear the howling winds outside right now.  Our ride probably won't be able to get here through the high winds and snow.  I am not driving because of my narcolepsy.  If the snow is not too deep we will go home tomorrow.

I guess that is all I have to say, except that I am feeling pretty good.  Like wow, John's cancer is gone!  I didn't really have time to let it hit me, because he had a complication so quickly, but I am really thankful right now.  A nurse came in the rooma few days ago asking us after reading John's chart.  We said yes and she practically fell over.  She was so excited.  Then I realized how excited I should be, and not take it for granted.  Today I am very excited.  If there are a few complications along the way then so what.  Today I am very grateful!

Okay, I am getting off now.  John and I have a lot to do today.  We are going to the hospital to get some prescriptions filled.  Then we are going to see if he can get a certain supplemental drink for him.  We need to find out where it can be bought.  John has lost 85 lbs since the transplant.  The oncologist wanted him to lose weight, but that is too much weight.  Hopefully the nutritional renal drink will be a prescription drink, and then his insurance will pay for it.  I also need to clean up our room at Hope Lodge, and wash some clothes.  So I am off.

Love you all lots,  Krissy :)              

31 comments:

  1. Great news. I am happy for you both.
    Barbara

    ReplyDelete
  2. Way to goooooooooooooo John. I am so happy the cancer is gone, and your doing so well. You kicked that cancer's butt real good. Now you can look forward to new days and a life time of happiness with your beautiful wife Krissy. I wish you both all the best life has to offer. (((((((((((hugs to you both))))))))))))))
    Love,
    Cindy
    ps, did you ever get my card?

    ReplyDelete
  3. Thank the good Lord once again.  Hope you make it home today. 'On Ya' - ma

    ReplyDelete
  4. hugsdoodlewacky4/16/2007 8:21 AM

    (((((((((((((((((((((((((((HUGSTOYOUBOTH))))))))))))))))))I am glad things went well.I am so happy for John.Have a great day.

    ReplyDelete
  5. Yippee!!!!  Every where I go, I am hearing people who had a good day yesterday, or received good news yesterday.  So glad you and John got some more!!  God is good!!!  -  Barbara

    ReplyDelete
  6. I am glad that John is doing good. No, you two don't need to head home in the kind of weather you described. I am still sending up prayers for the two of you. Helen

    ReplyDelete
  7. Doing a happy dance for you both! Won't it be great to go home!!
    Shadie

    ReplyDelete
  8. great news happy john is home again
    hugs
    noelle

    ReplyDelete
  9. Glad John is out....I am glad he enjoyed his shower, something most of us take for granted...

    Be safe and keep warm.

    Michele
    http://journals.aol.com/glensfork4/these-are-my-thoughts/

    ReplyDelete
  10. tendernoggle4/16/2007 10:17 AM

    I AM SO HAPPY FOR YALL BOTH!! YOU KNOW WHAT KRISY...I THINK WHEN HEARING GOOD NEWS FOR A CHANGE AFTER HAVING ALL BAD NEWS FOR SO LONG THAT WE ARE SCARED TO LET LOOSE AND BE HAPPY ABOUT IT...BUT THANK GOD THAT PRAYERS WERE ANSWERED FOR JOHN!!!!!'
    HOPE YALL HAVE A SAFE TRIP HOME!
    LOVE YA,
    CARLENE

    ReplyDelete
  11. OH John, Peeeuwwww, lol.... I'm sure that shower was the best! I can barely handle two days of camping without a shower, lol....
    Hope you get home soon, but be safe....
    Linda :)

    ReplyDelete
  12. Yay he's going home!  Stay safe!
    Pam

    ReplyDelete
  13. It was nice talking to you first thing this morning =).  That always makes my day.  I am soooooooooooooooooooooooooo glad they found a nutritional, renal drink for John.  We will FIND a way to pay for it.  I WILL HELP YOU, if you need funds!  So, I will see you tomorrow, my sweetest two! xox
    http://journals.aol.com/valphish/ThereisaSeason
    P.S.  I will get the Hunt up tomorrow...shall I post a subject to?  If you have one, send it to me and I will post it in YOUR journal. xox

    ReplyDelete
  14. Krissy what wonderful news about John, you two just enjoy each other and take care with the weather and keep warm and safe.  Hope you find the suppliment drink and it helps John to  put back on a few pounds.  We're all just thrilled to hear that's he been discharged and the cancer is gone...our prayers have been answered.  Bless you both...Arlene (AJ)

    ReplyDelete
  15. promiseluv3724/16/2007 11:33 AM

    YES!!!!! Prayer works!  God listens I am so happy for you.  Let us know when you get home.  Snow in April (we just had a bunch yuk!)  but today it's beautiful so to me that always seems to bring me hope!
    Love ya!
    Promise

    ReplyDelete
  16. Oh thats good news again.I am so happy for you.Still lots to think about, but like you say, So happy the cancer has gone and no wonder you are excited who wouldn't be.I hope the drinks do John  good and everything falls into place now for the better.Also I hope the weather is kind to you for your travels home .Both take Care safe journeys God Bless.You both deserve so much more .
    Astoriasand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES

    ReplyDelete
  17. rocketman6854344/16/2007 1:22 PM

    Krissy thats good news.You are and always will be in my thoughts and prayers.

    ReplyDelete
  18. princesssaurora4/16/2007 3:36 PM

    Yay!!!  Good for John!!!  Hoping that everything keeps getting better... day by day!

    be well,
    Dawn
    http://journals.aol.com/princesssaurora/CarpeDiem/

    ReplyDelete
  19. midwestvintage4/16/2007 4:04 PM

     I am so glad your getting to go home.  That is a long time for a PICC line to last.  Hope he doesn't need it again.  I bet that shower did feel heavenly.

                      Julie

    ReplyDelete
  20. Ill give him a few of my extra pounds.

    ReplyDelete
  21. I can't believe how completely supportive you have bee of John throughout his ordeals.  He must think you are one of a kind.  I hope his health remains relatively good now.   Gerry

    ReplyDelete
  22. cacklinrosie1014/16/2007 6:25 PM

    I was reading backwards...this is wonderful news, Krissy.  I'm sure they will work around the port.  How refreshing to be able to shower again.  Hope he can put some weight on.  Be safe getting home.  The weather has been vicious.  Love ya, Chris

    ReplyDelete
  23. Things are going really good for John and you all except for the howling wind and snow.    Such bad weather all along the East Coast!   Here in S. Illinois the sun is shining today and it is in the mid 70's finally.     May John keep getting better and I am wishing you a good trip home.    I will keep you both in my prayers and thoughts.      mark

    ReplyDelete
  24. Pleased to hear things looked up for John, in that it was "only" an infected PICC-line. I'm astounded too at the length of time it lasted. Hope you can get the supplemental drink on prescription

    ReplyDelete
  25. Oh Krissy, Thanks for posting this!  We had snow last week.  I am thrilled that John's fever is gone for now. And realize how much we take for granted, since I have read about John for the past few months.  A shower.  I will remember to think of how lucky I am to do that & all I CAN still do from now on. STAY IN TOUCH, my friend.  I love you, both.  merry1621

    ReplyDelete
  26. Yipppppee and praise the Lord!  Celebrating with you and John.
    loving you
    karyl

    ReplyDelete
  27. great news:)

    Deb

    ReplyDelete
  28. I'm so happy for you... take care!!! lisa

    ReplyDelete
  29. More good news. SO glad John is discharged.  Glad he finally got a real shower. I know how those bird baths are. I know how convenient and what a wonderful thin the PICC must be.  Maybe they can  put in another one. Hope you made it home and the weather wasn't too much of a hinderance.  Best of luck.
    Hugs & prayers Barb

    ReplyDelete
  30. GOd Bless you both!  So glad to hear that the 'good news' is finally sinking in, and that you can rejoice in it!!!

    Amanda

    ReplyDelete

  31. I am so happy for you both.  I just knew things would work out.
    You are often on my mind and always in my heart.   Love Myke

    ReplyDelete

I would love to hear from you. Now is your chance! So what do you want to say?

Related Posts Plugin for WordPress, Blogger...