What we did for fun

Hi Journal Persons.  Hope you are doing well.  Me, I am hanging in there.  

John and I are sitting here twiddling our thumbs trying to think of something to say.  We wanted to write about something "normal" this entry, not just about his cancer.  Trouble is it has been consuming too much of our lives lately.  

John has had trouble with sleeping and has slept for about 18 hours a day.  He thought it was all to do with the Myelodysplasia (bone marrow cancer) but found out today that it also has to do with some medication that was recently doubled.    

John just asked me how people fared through Dennis.  I said, Hurricane Dennis?  What about Emily?  He said, that's what happens when you sleep too much, you wake up and you are two hurricanes behind! 

John went to the oncologist today.  He got some hopeful news.  There are five types of Myelodysplasia.  His type is called Refractory Anemia.  Out of all the five types, the doctor said that it was the slowest growing type.  It also has the least side effects and the best survival rate.  Thank God for all this.

John has to have a CT scan on Monday.  They want to see if his joint pain is evidenced on a scan.  When he went to pick up the barium, he was asked if he wanted banana flavored or plain.  He really wanted strawberry but they were all out.  So he went for the plain!  He just doesn't like the banana shakes!

John is going to take the CT scans and all the other x-rays and bone marrow slides he has had and take them with him to his appointment at Hershey Medical Center on July 28.  Hershey has one of the best Bone Marrow Transplant Centers in the country.

On Monday John and I went to a meeting for Cancer Survivors and their spouses.  John and I both really liked it.  John met a man who had a bone marrow transplant 15 years ago.  Charlie was told that his cancer was incurable but here he is alive 15 years later!  This really encouraged John.  Another thing we liked about the meeting was there was a real friendliness there (John's words).  I also like the fact that they are big on education and resources.  A woman from the American Cancer Society came and spoke to us during this meeting.  She told us about a big conference that the ACS will be holding on August 6.  We are going to that, and hopefully Valerie will come with us also.        

Now, thinking about something other than the Cancer word.  What else is new?  

Michael has been fiesty lately and has been nipping at John's feet.  He thinks it's a game.  Oh, for those of you who don't know, Michael is not our son, he is our cat.  You can see a photo of him in my All About Me section.

OK, here is something "normal" we did.  We played Monopoly.  John won.  I think we need to get some more entertainment in our lives, lol.

Until next time, love you lots, Krissy :)