I promised you news about how Thursday's appointment with Dr. Claxton went... Well it was mixed. First the good news. It looks like the Cytomegalovirus is getting under control. Which is a good thing. Somebody at Hope Lodge died from it here not too long ago. Scary thing. I didn't know how serious CMV was for a transplant patient until people around here started telling me... Anyway, John is doing so well, they might discharge him to home after awhile. I mean our real home, not Hope Lodge. Which means a home nurse, with of course, me helping. Which means I would probably have to do home IVs. Not just the CMV IVs but also fluid IVs. It could take up to four and a half hours a day of IVs!
Now for the bad news... the doctor told us John's marrow was "hypo-cellular". This means that he doesn't enough cells in his bone marrow. And his counts right now are HORENDOUSLY low. What does all this mean? Well, it means that his MDS/bone marrow cancer might be back. Yep. What does that mean? That he would have to have another stem cell transplant. Now it is not definite, and PLEASE everybody, don't send him cards or anything, telling him you feel for him! We are not going to assume unless we are sure. We are just going to wait and see what happens. He has another appointment with Dr. Claxton in three weeks...
Well, I guess that is about it for tonight. For those of you who are worried about me, don't be. I am alright. I will get by. I always do.
Krissy
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I'll be praying for you and John for sure.
ReplyDeleteI'm happy with the good news. I'm very proud of you, you are a strong woman. Hugs to you both. Dawn
ReplyDeleteprayers for you both
ReplyDeleteDeb
Krissy, I'm praying the MDS hasn't come back.Good news about the Cytomegalovirus. I hope you'll be able to go home soon. Jeannette xx
ReplyDeleteThinking of you.
ReplyDeleteBarb
krissy im still here praying for u and john
ReplyDeleteStrength to you and John - keep faith
ReplyDeleteJust found you via Pharmalo. I am so sorry to read what is happening to John and yourself. I'm praying the MDS hasn't come back. Eve xx
ReplyDelete(((((Krissy and John)))))) Big hugs! Barbara
ReplyDeleteKeep the faith my friend...
ReplyDeleteLove,
Nancy
Prayers for you both dear.
ReplyDeleteHugs, SUGAR
praying for you both!!!
ReplyDeleteBecky
You are SO strong, Krissy! I hope everything turns out well...Jae
ReplyDeletePlease, please, try to do something just for yourself Krissy. I know that advice is hard, but you are the one person who made me see sense - I give myself little treats or breaks now, just simple things, but it helps. Thanks to you, my health isn't suffering so badly due to my caring role, as it was. Hugs for both of you.
ReplyDeleteSylvia xxx
I`m praying for you both,
ReplyDeleteLove and Hugs
Sandra xxxxx
I'm staying positive here. Yup, I am. You didn't write that John's MDS is back ... you wrote that it MIGHT be back. I trust the team of doctors are closely monitoring and testing John to get more details, and you will pass them on when you are able.
ReplyDeleteTake care,
Judith
Well that is just crap news now isn't it.. I'm sorry to hear the news.. really.. but I do know that you guys will get through this.. *hugs* Mel
ReplyDeletehttp://journals.aol.com/myheartsaysso2/WhereTheHeartIs/
Just wanted to stop by and say hi Krissy, and glad you had some good news. Keep hanging in there.
ReplyDeleteLori
Hugs to you both as you travel this rough road...try to take each day as it comes and keep on trusting and believing ! We sometimes find it hard to rejoice when things aren't looking so swell, but there always blessings in each day. I'm praying for you both. 'On Ya' - ma
ReplyDeleteYou are doing it - and our prayers are with you. God's compassion will console your heart, and John's. You are an amazing couple.
ReplyDeleteBe well,
Charley
http://journals.aol.com/cdittric77/courage
Praying for you and John, that he'll just be ok and you can go home with all of this stuff behind you, once & for all. I wish I were close...I'd take you out to lunch. Linda in Washington
ReplyDeleteKrissy, your strength and courage is more than admirable. I will of course continure to pray for both you and John. I hope that the next bit of news you get is good news.
ReplyDeleteBest wishes, from the bottom of my heart~
~Bernadette
John and you can only wait and see what happens. May you both enjoy things to make you happy and not having to think about all the medical things. I entered my journal entry on your and Val's weekly challenge about "things that make me happy" if you get a chance to visit. Hoping for the best always, mark
ReplyDeletehttp://journals.aol.com/mtrib2/MarksDailyJournal