Saturday, May 20, 2006

Yikes

I promised you news about how Thursday's appointment with Dr. Claxton went...  Well it was mixed.  First the good news.  It looks like the Cytomegalovirus is getting under control.  Which is a good thing.  Somebody at Hope Lodge died from it here not too long ago.  Scary thing.  I didn't know how serious CMV was for a transplant patient until people around here started telling me...  Anyway, John is doing so well, they might discharge him to home after awhile.  I mean our real home, not Hope Lodge.  Which means a home nurse, with of course, me helping.  Which means I would probably have to do home IVs.  Not just the CMV IVs but also fluid IVs.  It could take up to four and a half hours a day of IVs! 

Now for the bad news... the doctor told us John's marrow was "hypo-cellular".  This means that he doesn't enough cells in his bone marrow.  And his counts right now are HORENDOUSLY low.  What does all this mean?  Well, it means that his MDS/bone marrow cancer might be back.  Yep.  What does that mean?  That he would have to have another stem cell transplant.  Now it is not definite, and PLEASE everybody, don't send him cards or anything, telling him you feel for him!  We are not going to assume unless we are sure.  We are just going to wait and see what happens.  He has another appointment with Dr. Claxton in three weeks...

Well, I guess that is about it for tonight.  For those of you who are worried about me, don't be.  I am alright.  I will get by.  I always do.  

Krissy  

23 comments:

  1. I'll be praying for you and John for sure.

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  2. I'm happy with the good news. I'm very proud of you, you are a strong woman.  Hugs to you both.           Dawn

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  3. prayers for you both

    Deb

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  4. jlocorriere055/20/2006 3:11 AM

    Krissy, I'm praying the MDS hasn't come back.Good news about the Cytomegalovirus. I hope you'll be able to go home soon. Jeannette xx

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  5. Thinking of you.
    Barb  

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  6. krissy im still here praying for u and john

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  7. Strength to you and John - keep faith

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  8. Just found you via Pharmalo. I am so sorry to read what is happening to John and yourself.  I'm praying the MDS hasn't come back.  Eve xx

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  9. mastersblynn5/20/2006 7:25 AM

    (((((Krissy and John))))))  Big hugs! Barbara

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  10. Keep the faith my friend...
    Love,
    Nancy

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  11. sugarsweet0565/20/2006 10:01 AM

    Prayers for you both dear.
    Hugs, SUGAR

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  12. praying for you both!!!
    Becky

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  13. You are SO strong, Krissy!  I hope everything turns out well...Jae

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  14. Please, please, try to do something just for yourself Krissy. I know that advice is hard, but you are the one person who made me see sense - I give myself little treats or breaks now, just simple things, but it helps. Thanks to you, my health isn't suffering so badly due to my caring role, as it was. Hugs for both of you.
    Sylvia xxx

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  15. I`m praying for you both,

    Love and Hugs

    Sandra xxxxx

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  16. I'm staying positive here.  Yup, I am.  You didn't write that John's MDS is back ... you wrote that it MIGHT be back.  I trust the team of doctors are closely monitoring and testing John to get more details, and you will pass them on when you are able.
    Take care,
    Judith

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  17. myheartsaysso25/20/2006 6:01 PM

    Well that is just crap news now isn't it.. I'm sorry to hear the news.. really.. but I do know that you guys will get through this.. *hugs* Mel

    http://journals.aol.com/myheartsaysso2/WhereTheHeartIs/

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  18. helmswondermom5/20/2006 7:57 PM

    Just wanted to stop by and say hi Krissy, and glad you had some good news.  Keep hanging in there.
    Lori

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  19. Hugs to you both as you travel this rough road...try to take each day as it comes and keep on trusting and believing !  We sometimes find it hard to rejoice when things aren't looking so swell, but there always blessings in each day. I'm praying for you both.  'On Ya' - ma

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  20. You are doing it - and our prayers are with you. God's compassion will console your heart, and John's. You are an amazing couple.

    Be well,
    Charley
    http://journals.aol.com/cdittric77/courage

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  21. Praying for you and John, that he'll just be ok and you can go home with all of this stuff behind you, once & for all.  I wish I were close...I'd take you out to lunch. Linda in Washington

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  22. quartrlyfecrysis5/21/2006 11:09 AM

    Krissy, your strength and courage is more than admirable.  I will of course continure to pray for both you and John.  I hope that the next bit of news you get is good news.

    Best wishes, from the bottom of my heart~
    ~Bernadette

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  23. John and you can only wait and see what happens.     May you both enjoy things to make you happy and not having to think about all the medical things.    I entered my journal entry on your and Val's weekly challenge about "things that make me happy" if you get a chance to visit.    Hoping for the best always,     mark
    http://journals.aol.com/mtrib2/MarksDailyJournal

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