Saturday, May 27, 2006

John's MDS isn't back!

Well, it's been crazy lately.  I haven't written in awhile because John was hospitalized again.  He spiked a fever.  I think his official diagnosis this time was infection of the blood.  He also was/is having problems with his kidneys.  At any rate, he is out now, and is doing a lot better.  He has to go to "Day Hospital" everday for a week or two and then we will see what happens after that.  Who knows, maybe we will actually be able to go home.  We shall see.

So today is a Red Letter Day.  Dr. Claxton came into Day Hospital today and told John that his MDS was NOT coming back.  Praise God!  His marrow is still thin but Dr. Claxton thinks it is from something else, maybe the meds he is taking...

Well, a lot has happened over the past several days, but I am too tired to write about it, and I have to get up at 7:30 AM to go to Day Hospital with John.  Don't worry, I haven't been up all night, I just woke up and decided to come out here and write this, LOL.  I wonder how long Day Hospital will last tomorrow.  Or should I say today.  Yesterday it lasted six hours and forty five minutes.  They had to put a new PICC line in John's arm because the old one stopped working.  So they did a little operation right there in Day Hospital.  It was called an "Exchange".  And John had a lot of other things done too.  He was kind of chipper today, because he got two units (two bags) of Red Pack Blood Cells yesterday.  Oops, I said I was not going to go into everything tonight, LOL. 

Well, hope everybody is doing OK.  Keep smiling!  Krissy :) 

30 comments:

  1. sorry john is back in the hospital but at least his MDS isn't back. You have a great weekend.

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  2. So glad to hear that John's MDS isn't back, Krissy.  Every little victory is still a victory.  Sending hugs and prayers

    Barb  

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  3. jlocorriere055/27/2006 3:48 AM

    That's good news about the MDS not being back. I hope John will continue to improve, recovery is a long road but we're all here to walk it with you. Jeannette xx

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  4. GOOD NEWS ABOUT MDS IM STILL PRAYING HUN

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  5. Wonderful to read the good news! I will continue to pray for both you and John. This is not an easy journey to walk and gets tiring. I pray when you feel the most exhausted, you also feel God's hands holding you up.

    God bless
    Christy

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  6. Thank the good Lord for that good news !  We'll just be praying that this new infection or whatever is cleared up and you can get home soon.  Take good care and ((( hugs )))  'On Ya ' - ma

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  7. springangel2355/27/2006 8:00 AM

    Glad you were able to share that good news about the MDS...you and John are always in my thoughts and prayers Krissy....hugs and love,
    Joyce

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  8. Glad to hear the good news Krissy! Sending my continued thoughts and prayers. Martha :-)

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  9. that is great news!!!  i will keep praying..  i hope he is feeling better and i hope you are feeling better also

    keep the faith and prayers going.

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  10. Wonderful news that it has not come back!  Let's hope you two can get back home, soon!  Jae

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  11. Good to hear from you Krissy.  Still praying for John's complete & full recovery.  Take care..Linda in Washington state    

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  12. WHAT FABULOUS NEWS! PRAISE GOD! XOXOXOXOX DEB XOXOXOXOXOX

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  13. That is great news about John.    You must be so happy to hear that he is having good results on his bone marrow transplant.     It is a long road but the light at the end of the tunnel is there.    Wishing you a good and peaceful Memorial Day.    mark

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  14. Right pleased, Krissy, that John's MDS is not back after all. It's a long road, but you're not alone. If only to judge by the comments in your journal.
    Best wishes from Scotland

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  15. A big YAY to you both!!    There's a light at the end of the tunnel...it's just hard to see sometimes.

    Hugs,
    Nancy
    http://journals.aol.com/nhd106/Nancyluvspix/entries/1208

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  16. glad you can focuse on the positives..
    ((((((((((BIG HUGS))))))))))))

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  17. nyuknyukpik25/27/2006 11:23 PM

    glad to hear things  seem to be picking up for you and john!!!!!!

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  18. That is such a blessing and gift that John's MDS isn't back. We will continue to pray for his progress.

    Charley
    http://journals.aol.com/cdittric77/courage

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  19. Doing a happy dance!!!!!!
    Big hugs!
    Happy Memorial Day!
    Linda :)

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  20. so glad the MDS is not back!!!  thank you Jesus!!!
    Becky

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  21. dbaumgartner5/29/2006 9:03 AM

    Bless your heart sweetie.  You are amazing.  Give John a hug for me.

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  22. quartrlyfecrysis5/29/2006 9:25 AM

    that's wonderful news that the MDS isn't back!
    keeping you both in thoughts and prayers~
    ~Bernadette

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  23. OMG, Krissy, this made me sigh of relief and then cry, sissy.  It is so hard being here and not knowing what is going on.  I am soooooooooooooooo relieved that John's MDS is not coming back.  PRAISE GOD!!!  I have been sick with worry.  Now, don't worry about me, I just wanted you to know that I needed to know John would be okay.  Now I know that he can fight.  Go John, go, fight John, fight!!  I am tired of you two being away.  Now come home and get well!! LOL  So, I need to call you.  I will call you tonight or tomorrow if you don't call me first.  I LOVE YOU GUYS!!! xoxoxoxoxox
    http://journals.aol.com/valphish/ThereisaSeason

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  24. newsworthy8225/29/2006 10:17 PM

    wow! that's GREAT news! Praise the Lord!! Thinking of you guys every day:)
    Melissa

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  25. princesssaurora5/30/2006 12:43 AM

    Krissy PLEASEEEEEEE keep the info coming... please...this is your journal and your life... we want to hear it and are here to support you!

    Glad John is doing better.... please write more soon...

    be well,
    Dawn

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  26. shanazdrojowy5/30/2006 5:59 AM

    God bless you!  And many thanks that John's MDS is off the list!

    I enjoy reading your entries, praying for you & John and imagining things like -- where was I for those 6 hours you were in the hospital?  Complaining about being at work?!  Sheez, puts it all in perspective for me now!  Shana

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  27. love2sing20075/30/2006 4:48 PM

    I hope everything fixes itself quickly.
    -Kellen

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  28. You see? there is a god.It's been chaotic.I spent last week with friends helping paint and garden to get their new home ready for their house party. Rachel has no patience. I did the awkward stuff.
    Transplanted natural geraniums from mine, feverfew, lemon balm, forget-me-nots and what i call spotty plants. I found lupins, bulbs, primroses and Welsh Poppies. They got transplanted where they will flourish. I also found what I thought was a shallow flower bed.Having dug out bloody hard core for an hour eventually re-filled it with fresh compost, and planted it up. On returning with water I found Sean's two dogs with a plant held gently in each mouth, tails wagging "you planted these things for us to dig up! "  

    I forgot to post Dad's birthday present, and that of one of my god daughters so rushed to the post office. Parcel post had gone. On to the next town...where i was in time- 8 mins to spare. Then to a garden centre to get a plant I’d seen whilst shopping for Rachel...it had gone. However I did get a beautiful bamboo planter light in weight, lovely to touch and beautiful in its textural design. needless to say, a plant was required, so got a delicate fern.

    On my way home (nothing happens in the country; its all cows, sheep and horses) I saw a peacock. Let's do a re-take. Yep. Ok. I know of a guy who has peacocks so doubled back to his place. FINDING it was a challenge. Four houses and two lanes later found house, but not him. Got home and rang a pal. You know when you ring friends you say things like how are you, parents all ok?call for coffee. No answer so just me and the nice lady on the answering machine. "hiya ...you know Mark with the peacocks, is he missing one? because one is wandering along farmland about 2 miles away. Anyway...peacocks apart..hope this finds you well"

    He rang later. Mark no longer has peacocks but he knows a man that does. We had a chat and he said call by for coffee. Out of peacocks....

    Thinking of you.

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  29. sarajanesmiles5/31/2006 6:01 AM

    Great news Krissy m'dear!  So so glad that the MDS is not back, though sorry to hear that John was hospitalized again.  Glad he's doing better again now, and hoping that the pair of you get to go home real soon.  ((((( )))))
    Sara   x

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  30. Thinking of you both. . things are looking good!MDS is not coming back.Oh what a journey this is for you. . my prayers are with you .

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