Sunday, September 25, 2005

Update on John

Hi.  I haven't given an update on John in awhile.  For those of you who don't know, John is my husband.  He has been diagnosed with bone marrow cancer.  At some point he will have to have a bone marrow transplant.

So what's new?  He has been sleeping a lot lately. 

Something else that is new is John was accepted into a program called Chemo Angels.  If you know somebody who is going through chemo, or is going to have a bone marrow transplant, you may want to suggest they go to the Chemo Angels site and fill out the form to get an Angel.  If they are unable to do it themselves, then ask them if they would like an Angel, and fill out the form for them.  The site is www.chemoangels.com.  The Chemo Angel Organization matches a volunteer "Angel" with a cancer patient.  The Angel sends cards and other little things to the patient to cheer him up.

John signed up and got two Angels!  A letter came from a family on Thursday and from a woman on Friday.  He was really excited!

Let's see.  What else is new?  I am on the board of the Cancer Survivor's Association, Inc.  It is a local group that does a lot of things for cancer survivors.  One thing we do is hold montly meetings for cancer survivors and their significant others.  Another thing we do is bring a basket of fun and helpful items to a cancer survivor when they complete chemo, and ask them to join our meetings.  We are thinking about starting to give them the basket sooner, and asking them to join the meeting sooner.  Another thing that the Association does is education.  Just a few weeks after John found out he would eventually need a bone marrow transplant, the president of the organization was at our home with information on the procedure.  She also matched John up with others who had had the procedure.  It is a wonderful organization. 

So Monday night John and I went to a picnic for board members and survivors.  It was a lot of fun.  We had to introduce ourselves and name something in our refrigerator that we drank.  Everybody was saying they drank "coke" or "diet coke".  When it was John's turn he said, "I used to have Non Hodgkin's Lymphoma, Now I have bone marrow cancer, and in my frig you will find non alcoholic ginger beer!"  Everybody Ooed and Ahhed!  "What eclectic taste" they said!  It was funny.  That is my John.  He is different.  He likes ginger beer and classical music!  And Star Trek, lol.  

Take care, Krissy :) 

26 comments:

  1. Tell him hi and hugs for you


    Deb

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  2. jlocorriere059/25/2005 5:52 AM

    You bring back memories of my aunt's homemade ginger beer, it was delicious!!
    Nothing wrong with liking ginger beer and classical music, I enjoy both!!!! Jeannette.

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  3. So glad that things are going well Krissy. Lol at John and his ginger beer, well done him. Big hugs.

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  4. Hi Krissy, I'm so sorry to hear about john's cancer. God Bless him !. My mom had lung cancer, so I know a little of what your going thru. The Angel program sounds wonderful. Take care hun.
    Ellen
    http://journals.aol.com/eml625/Onedayatatime

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  5. You have such a positive outlook and are doing so much to help others too !  Support groups are such a big help.  God bless you both !  'On Ya' - ma

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  6. ally1231305859189/25/2005 8:28 AM

    Hello Krissy - so glad John has been accepted on Chemo Angles programme...You have certainly earned the right for him to be there..Take Care...Ally

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  7. I didn't know John liked ginger beer??  What brand?  Is that different from ginger ale?  I will remember this!  LOL  TWO ANGELS!!!  Yay!!!  My fave drink is half O.J. half water.  I have John2 drinking it now. lol  Take care, my loveliest!! xox

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  8. springangel2359/25/2005 9:17 AM

    So happy John was accepted into that program.  I have an Uncle in Florida on continuous chemo for colon cancer and it spread they said...I want to add him to this program.  Thanks for sharing the link.  John and you both are special with a lot of friends and family to help support you...i am glad I am one of the lucky ones to know you both.  Hugs and have a wonderful day.
    Joyce

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  9. Krissy; an answer to prayer! I'm glad John got into chemo-angels program. And you know what, I went into the site to see if I could sign up to be a chemo-angel and they were full for the month so I signed up to be a senior angel - matching people to write letters to people in nursing homes. I haven't been accepted yet, but hope I will.

    I think it is awesome that you are getting involved on the board of the Cancer Survivor's Association. That will be fulfilling, I bet.

    thanks for the update; was wondering what was going on with you both :)

    betty

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  10. I am very glad that he made it into the program. Our thoughts and prayers will continue to go with you! God's will shall be done!
    Peace and love,
    Charley
    http://journals.aol.com/CDittric77/Courage

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  11. Glad to hear you guys are hanging in there and getting involved so actively.

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  12. pixiedustnme9/25/2005 11:46 AM

    HEY NOW!  just because a person like's Star Trek doesn't make them "different"  rofl

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  13. sarajanesmiles9/25/2005 11:54 AM

    Yay John for being different :o)
    It's always good to try something new, maybe I should try some of that ginger beer!  It must be helping you both to not feel so alone, being involved with the groups you spoke about.  I am glad.
    Sara   x

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  14. Thanks for the update on John.  I'm happy he got 2 angels, we all need as many as we can get.  Give him a hug from this old lady in Washington and one for you, too.  Take care, Linda

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  15. princesssaurora9/25/2005 12:23 PM

    I didn't even know there was something called Ginger Beer as opposed to ginger ale???  Interesting!  I am so glad John go 2 chemo angels!!!YAY!!!

    Be well,
    Dawn
    http://journals.aol.com/princesssaurora/CarpeDiem/
    Poetry:

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  16. glad to hear things are going good

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  17. Great news!  Those Angels are true Angels.  I am glad that people like that exist.  Love bunches Lu

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  18. John has simple pleasures and expectations.   Praying that he will be a successfull recipient and at long last be able to have a productive active life.    mark

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  19. thanks for that site I know a girl who needs it.

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  20. Non-Alcoholic Ginger Beer?  I cannot even fathom what that tastes like.
    Best,
    Judith
    http://journals.aol.com/jtuwliens/MirrorMirrorontheWall

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  21. missboogerhead9/25/2005 8:38 PM

    Krissy, glad to hear you are both doing well.  We are still praying and will continue to do so.  I think asking them to join sooner is an awesome idea!  :-)  
    Gotta' love a Trekkie!  <<HUGS>>
    ~Miss O

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  22. Glad to get the update.   Even gladder that you are both such wonderful people with such great attitudes!   Love, Nancy

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  23. dreamingbrwneyes9/26/2005 4:38 AM

    Still praying.... Sounds like you have a wonderful funny man.

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  24. SOUNDED LIKE U AND JOHN HAD A GREAT TIME...IM STILL PRAYING FOR YALL

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  25. jules196420019/26/2005 5:29 AM

    the angel thing sounds really good, I am pleased John got 2 angels. Glad the meeting went well :).............Jules xxxxxx
    http://journals.aol.co.uk/jules19642001/Itsmylife/

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  26. ChemoAngels?  I will definitely check them out!  My mom just completed what she could of her prescribed chemo treatments.  Complications from the drugs had her stop a couple of treatments short.  She's now on her second week of daily radiation treatments.  I'm glad to see you so involved in John's cancer treatments and recovery.  I will think of you both.
    http://journals.aol.com/boiseladie/MyWorld/

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