Sunday, April 30, 2006

I'm a little nervous

Hi ya'll.  I just slipped away to do this entry.  And after this I am going to eat some lunch.  John is resting comfortably in his room thanks to a little help from some drugs.  Well, not totally comfortably, he has a lot of pain in his abdomen, but he is doing a lot better.  They are giving him an upper and lower GI tomorrow to find out if he has something in addition to the GVHD and the CMV.  He also is neutropenic.  Neutropenic means that his White Blood Count is very low (only 1.2) and his ANC is very low (only .9).  Since his ANC has gone below 1 he is considered neutropenic (a very immunosuppressed immune system) and he is in danger of catching all kinds of infections.  What this means is he has to watch what he eats, and wear a mask around others.  He also can't be around kids and crowds, or he can catch something.  He will have to be very careful for awhile.

So, I am doing OK I guess.  Except all of this has made me a little nervous.  I was reading about CMV on the net and I didn't think it sounded too good.  But there are so many conflicting reports on it that I don't know what to believe.  I know it is worse if a child or an immunosuppressed person (such as a person who has had a transplant) gets it.  I am trying to remain calm though.

Last night I found a room at a local motel.  They gave me a good rate because John was a BMT patient!  They also have shuttle service to and from the hospital, which is good, because there is no taxi service in this town, LOL.  This is good that I got this place.  I hate to leave John at night, but he wanted me to do this, because he didn't want me to sleep in the hospital chair every night.  The room is nice.  I am glad I have it.  Well, sort of.  I hate leaving him at night.

I just wanted to say that we will still show the results of the Photo Scavenger Hunt this week, and have one next week.  Go to Val's journal:  http://journals.aol.com/valphish/ThereisaSeason/ .  She will also host the Monday Morning Question This week.  I hope you all have a great week.  I hope to be on tomorrow to talk to you again.

Love, Krissy :)         

36 comments:

  1. rocketman6854344/30/2006 12:22 PM

    Thinking about you and praying all will be well.

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  2. jlocorriere054/30/2006 12:22 PM

    I'm glad John insisted you stay in a motel, sleeping in a chair is OK for one night but you need relaxing sleep to be able to cope with all this. I hope John will soon respond to the treatment and get back home. Jeannette xx

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  3. Krissy, I'm glad to were able to get a good rest last night.  Everytime I woke up last night, I prayed for you & John.  Take care,  Linda in Washington http://journals.aol.com/lsfp1960/LindasWorld/


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  4. I'm sorry I did not participate in the games this week... I was just too worried about you and John... Didn't seem right to be playing...
    Always thinking of you guys!!
    Love Linda :)

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  5. Sending more postive thoughts your way.
    Judith

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  6. Krissy I continue to pray for you. ((((((((God Bless))))))))

    Christy

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  7. firestormkids044/30/2006 1:32 PM

    I'm so glad you found a motel to sleep in.  You will get better rest. Just remember that we are here praying for you both and that we love you.  In Him, Penny http://journals.aol.com/firestormkids04/FromHeretoThere

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  8. randlprysock4/30/2006 1:40 PM

    I will be praying for you and John.  
    Lisa

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  9. mastersblynn4/30/2006 1:49 PM

    Dear Heavenly Father hear my prayer for John and his precious wife Krissy.  Lord I pray that you take away the pain from Johns body and you send a sense of peace and love to surround this couple.  I pray that you will be with them in their time of need and place your healing hand upon John. In your precious son Jesus name I pray amen. Barbara

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  10. Praying that all will be well. :)

    Hugs,
    Tanya

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  11. Krissy, So glad you found a motel.  Glad John is getting some much needed rest also.  I know you hate to leave him, but he will rest knowing you are taking care of yourself also.  Take care of yourself and we're all pulling for the both of you.  My prayers are with you.
    Barb  

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  12. princesssaurora4/30/2006 2:04 PM

    I am sending prayers and positive thoughts to you both, Krissy.  I am so glad that you are keeping us updated and I am glad that you got the room to sleep in.

    Hang in there...

    be well,
    Dawn

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  13. Krissy,
    Thinking warm thoughts for you both....
    Love,
    Nancy

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  14. Hi Krissy, thanks for the update. My thoughts and prayers are with you both. Be strong.

    Love and Hugs   Sandra xxxxx

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  15. newsworthy8224/30/2006 3:39 PM

    i am thinking about you & praying for you & John. Stay strong.
    Melissa

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  16. Sending lots more hugs for you Krissy - you are a star and I'm sure John would agree with me.
    Sylvia xxxxxxxxxxx

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  17. Krissy this is just a bend in the road of life, God will take care of you and John:)

    Deb

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  18. It seems like things are going as well as they possibly can.    I am glad that the shuttle and room are there for you and that John is resting as comfortably as possible.     It is little consolation that he has to be on drugs just to feel a little better.    No one would like to have to endure what he is going thru.     I have been doing much better on the new medication I am on.     The meds before kept me feeling sedated and depressed and like a zombie with no energy.    Now I am feeling much better and my energy is increased and I can concentrate and focus on tasks.      Salty dog is running around in his pen and losing weight and putting on muscle.    It is so good that he no longer has to be on the chain.    It just thundered so I think I had better shut off the computer before a strike hits close and fries the computer's bacon.   lol      Take care Krissy and John,     mark

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  19. Krissy,
    Prayers are coming your way and John's. I hope the both of you are in good spirits.

    Peace and love,
    Charley
    http://journals.aol.com/cdittric77/courage

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  20. Keeping both of you in my thoughts and sending good vibes.... AND, I'm glad John had you get a room and NOT stay in his room every night. You can't possibly get enough rest in a chair like that and it won't do John any good if YOU get sick... He needs you healthy, darn it! Sounds like they have it all under control now, here's hoping John makes the wonderful progress we all are hoping for. Hang in there!

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  21. kaydeejay54494/30/2006 10:36 PM

    Again, I am praying for you and John!  God Bless you...

    Kathy

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  22. I'll be praying for John. I hope all goes well for him and he gets back home soon. I'm happy that you found a place to stay that's not to much money.

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  23. I am so sorry that you and John are going through this.  Prayers coming your way.         Dawn

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  24. springangel2355/01/2006 6:05 AM

    Oh Krissy, please stay strong...I just feel John is going to do better soon.  You both have been through so much. So happy you found a hotel.  We may be dealing with a similar situation with my Mom soon...hugs and love you both always...my prayers are with you both.
    Joyce

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  25. I have been praying for John this morning and you... Do your exercises and call me if you need me.  I LOVE YOU GUYS!!!  Off to do MMQ =) xoxoxox
    http://journals.aol.com/valphish/ThereisaSeason

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  26. I'm so sorry John isn't doing well.  I hope and pray this is just a temporary set back.  Take good care and do get some rest.  You have to stay healthy for John too !  I'll keep on praying...for you both.  'On Ya' - ma

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  27. eternallife235/01/2006 1:28 PM

    Krissy, I am sorry that you guys are going through all this. My prayers are with you.
    *Louise*

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  28. love2sing20075/01/2006 5:59 PM

    You two are awesome.  Much prayers and smiles to get through tough times.  
    love, Kellen

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  29. I am hoping the best for John.    He is getting the best treatment possible it seems.   You should be able to get some better rest having a bed to sleep in so that the day is less stressful.    I will be waiting to read about the development with John's condition.     mark

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  30. I pray that John gets some relief from his Pain. Take care of yourself too.

    Carolyn
    http://journals.aol.com/shelt28/MyLife

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  31. jules196420015/02/2006 10:42 AM

    thinking of you both, prayers being sent out.............Jules xx
    http://journals.aol.co.uk/jules19642001/Itsmylife/

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  32. still praying

    Yours Sincerely,
                Kristina
    http://onegirlonedreamherblog.blogspot.com

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  33. Dang Krissy~Sorry you two are in Hershey again, but glad you got a room. With all the possible infections John is in the best place I guess---praying you'll be home again soon! ;-) Love U guys, Deb ;-)

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  34. nyuknyukpik25/02/2006 11:35 PM

    HI Krissy,
    I'm praying for you and John--hope all goes well!!!!!!!!!!!!!!!!!

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  35. Dear Krissy,
    You are always in my heart and often on my mind.  Hope and pray that John will be okay.....Dont worry and take care of yourself.  I miss you and wish I was there to help in some way.  Give Hugs to John for me and lots of love and hugs to you
                                                                                   Myke

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