Saturday, June 24, 2006

We really may be going home this time!

It's been awhile.  Sorry I haven't written.  No, I haven't fallen off the face of the earth!  I have just been busy.  Let's see, what's new? 

First of all, the good news, there is a very real chance John and I will be able to go home next week!!!  I mean HOME HOME.  Back to our apartment, family, kitty! 

Things are looking up.  Well, sort of.  John's Creatinin level was 3.2 today (Friday).  It has been as high as 3.5 in the past few days.  But I was told that is because of the Vanco IV antibiotic that he has been getting.  I give him the antibiotic, usually at Day Hospital.  We have been having to go to Day Hospital daily, because John has been needing sodium chloride to flush out his kidneys.  This may sound drastic, but it is not really.  I was told that his Creatinin level will drop, and he will have normal kidney functioning when he stops the Vanco.  This should happen when we return home. 

His counts are not the hottest either, but I guess they are better than when we first came down two months ago.  Sue the Nurse Practitioner says she truly believes that the low counts are due to recent infections of Johns, and not due to any return of MDS.  Personally, I have come to accept that this is probably true, and if it is not, I will deal with it if and when I find out.  There is nothing I can do about it right now, and worrying is not helping me any.  If she really believes this, I am going to accept it.  I am going to ask Dr. Claxton though, because I want to hear it from HIS mouth.

Let's see, what else is new?  John is almost done with all of his infections, LOL.  He still has a viral infection that is winding down.  It causes him to cough.  He was also cultured on Wednesday because he had three infections in his PICC line (two in his blood, one in the actual line) and on Thursday one of the cultures came back positive.  It was positive for coccis which means that he had bacteria in his actual PICC line.  That means thathe had another infection.  I asked the Nurse Practitioner what could be done.  I said, "Now what can possibly be done?  He is already on an antibiotic and it didn't kill the infection.  What more are you possibly going to do?"  She replied, "We will just take out the PICC line."  I thought that was an interesting answer because that means John will have to get stuck with a needle everytime he needs blood drawn, instead of getting it through a port!  Anyway, before removing the port (PICC line) Sue decided to reculture it one more time on Thursday to see if it was still positive.  Cultures take up to three days to grow.  We will find out this weekend if John goes home without a port.  

Well, that's about it for the medical news.  Now here is something kind of cool.  I got a Teddy Bear today!  A nurse walked up to me and gave it to me!  One of my favorite nurses.  She said she was saving it for somebody special.  It is a Boyd's Bear (a collector's item).  I don't care about that though.  I took it out of the numbered bag, and almost ripped the tag off but somebody showed me how to hide the tag under the clothes, LOL.  Said it might be worth something some day.  I told them I didn't care.  I was just floored that I got her.  She has a yellow and green dress on, green bloomers and a yellow sweater.  I am floored that a nurse did this for me!  She just gave her to me and kept hugging me.  As a matter of fact, the nurse (Mary Jo) saw me earlier in the day, then went home and got the bear from home and brought it to me.  Oh, the bear has the cutest headband on too.  When I can add pics I will show her to you.  I can't add pics yet because I am not on my computer at home.

People have been so kind to me.  When John went into the hospital last time somebody left me a prayer shawl that they had crocheted outside the door of my bedroom.  They left a note in it that it was for me.  The note wasn't signed.  I asked a particular person if the present was from them and she said "No".  I can't prove it, but I bet it was.  She is the kindest person.  She gave me comfort just when I needed it.  I have seen her crochet things.  She does it for a business.  She makes a lot of money and her work is just beautiful.  It was very kind of her to give that to me.  It is a beautiful cream color.  People have been so nice to me.

Okay, well I better get off here now.  Time to hit the hay.  Day Hospital comes early, LOL.  Love you all, Krissy :)  

21 comments:

  1. oh it would be nice if john came home next week. Good luck and my prayers are with you. That was so nice of that nurse to give you the bear. Can't wait to see pictures of it when you can.

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  2. jlocorriere056/24/2006 5:13 AM

    I do so hope that John will be going home with you. It sounds a lot more promising now doesn't it?! How sweet of Mary Jo to give you the bear, I'd love to see her pic when you get settled back at home! I love teddies, what will you call her? How about Hope for Hope Lodge?! Take care, I'll keep you both in my prayers to get home soon. Jeannette xx  

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  3. i hope you guys can come home soon:)

    Deb

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  4. Great news, Krissy. And isn't it fantastic all the support you're getting from staff and others. It's quite moving, really.

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  5. I'm so glad that people are being so nice to you.  What a blessing !  You really appreciated their kindness at times like this.  You've had a very rough ordeal and even the smallest things make such a difference.  I'll be praying as always . 'On Ya' - ma

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  6. That's great news!  It's so wonderful that there are such kind people in the world.

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  7. Oh Honey,
    I am so happy to read this from you.  What else can we expect when you guys have so many praying.  God answers prayers.  Isn't it amazing how faithful He is?

    I have also been thinking about you.  Thinking that how much I care for someone whom I have never met.  You and John have become very important here in our household.  Each time you write an entry I convey it to hubby.  Be calm, my friend.  You have many who love you and who are lifting you guys up in prayer.  God is unwavering in his love for his children.

    The one who calls you is faithful and He will do it.  1 Thessalonians 5:24

    Bunches of hugs and love, LuAnne
    http://journals.aol.com/thebaabee/LUANNESLIFELIVINGWITHLUPUS/



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  8. I am so glad you have people taking care of you, too!  How very nice of them!  I sure hope this time you really get to go home!  Jae

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  9. newsworthy8226/24/2006 10:13 AM

    Glad to hear John is making improvements. I hope you get to go home soon! The bear & the prayer shawl sound wonderful, I bet they really brightened your day. I have heard about prayer shawls and they sound like such an awesome idea...and neat that nobody wanted any recognition for it.

    Have a good weekend, hope you hear some good news!
    HUGS
    Melissa
    http://journals.aol.com/newsworthy822/MelissasMotivation/    

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  10. so happy things are finally starting to go your way for once.. john will be better and stronger before you know it.  i hope and pray that you will be able to go home and not have to go back again..

    with love and lots of hugs and prayers
    noelle

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  11. You deserve every kindness Krissy; you are one of the kindest person's, I've ever met. Take care, praying you will get home soon, will be in touch. Lots of hugs.
    Sylvia xxx

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  12. Hi Krissy,  I`m so pleased everything seems to be going your way now.  I do hope you and John are home very soon. :o)  How lovely of the nurse to give you the bear, she obviously sees you as a very special person.  Little kindnesses are so very important at times like these and you deserve everyone. :o)

    Sandra xxxx

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  13. jules196420016/24/2006 5:40 PM

    I will pray that you do finally both go home..........Jules xxx
    http://journals.aol.co.uk/jules19642001/Itsmylife/

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  14. Sure hope you get to come home. Glad johns doing better krissy. your both in my thoughts and prayers always. I got married the 3rd, when you have time come visit and see my photos ok. GBU both

    hugs
    angelrose

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  15. Wonderful news !  I hope John continues to improve.  Linda in Washington

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  16. sounds like Johns on the road to recovery. good luck!

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  17. Sissy, wow, that nurse is precious!  Gave me a tear... awwww... You give her a hug from me if you can.  So is the prayer shawl lady.  I love people like that!  They make the world go round!  So, you call me after you talk to Dr. Claxton, when you are able, k, honey?  I want to be able to clean your apartment.  I want a day to be able to do it, if it is possible.  We are going to go see Michael today and I will tell him in words and spirit what is going on.  So, do you want to do MMQ tomorrow?  Let me know!  LOVE YOU SOOOOOOOOOOOOOO MUCH!!!!!  Love, your sissy in the middle of PA who is not right until you two come home!! xoxo
    http://journals.aol.com/valphish/ThereisaSeason

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  18. helmswondermom6/25/2006 10:59 AM

    That was so sweet of the nurse to give you that.  Acts like that kind of help you make it through the day, don't they?  Glad things are looking good for you guys to get home soon.
    Lori

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  19. Excellent news about John... will keep those prayers going your way though. What a joy to get home and in your own place again!!! Although I've been absent from j-land for long time I've been keeping you all in my thoughts and prayers. Blessings and best to you both.

    Be well. Laugh often. Play hard.
    Michael

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  20. princesssaurora6/26/2006 12:23 PM

    Praying for you.... sounds like everyone is so nice... that is great!

    be well,
    Dawn

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  21. I am always amazed when someone does something like the prayer shawl and does  not take the credit for it.    When there is a spiritual help as well as the scientific medical help I believe that healing is part of both realms.     It is sounding very hopeful for John.    The Teddy Bear is a great gift and I am happy that you are so fond of it.    You are both just taking things one day at a time and that is all that can be done.     I liked your entry about the crickets and I liked them also when I was a child and still do.     I am tired and sore today and we are not doing work on the building together for the rest of the week.    I need to rest some as I am entirely to sore and painful today.    I am feeling great about our progress.    This evening I will try working on some tarring and shingling.    I have to make a list of materials to order from Lowe's and hopefully get a free delivery.   My room built last fall is open in the front of my cabin and it lets in so much light as my cabin has only little light.    The new medication is working well for me.    My alerts are off for a while but I will be writing you as time progresses.   I just have a feeling that John will be getting better and better.     Hugs,    Mark

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