Wow. I guess it's been about a week since I have written. I didn't mean to let so much time go by.
Here I sit at the computer with a lot on my mind. John goes to Day Hospital tomorrow (Monday) and will possibly find out when he will be going home. If he can get his dosage of Foscarnet (IV Cytomegalovirus medication) he will stay, if he cannot, we will probably head home. The reason he has not been able to get his CMV IV medication a lot of the time is because he has had chronic renal (kidney) failure. This has prevented him from getting the medication. They may give up on trying to give it to him. If they do quit, they are hoping the Cytomegalovirus (CMV) doesn't come back. Right now he is testing negative for the CMV. So everything may be okay. But he was supposed to get the medication for six weeks, and he is not going to get it. This frightens me. So does the fact that he has a chronic kidney problem. I hope it clears itself up naturally as time wears on, and he no longer is getting any doses at all of the IV CMV med.
John went to Dr. Claxton's this past Thursday. It was an okay report. He was told that he did not have MDS, that he had engrafted, and had the donor's cells. He was also told that for awhile he had not been engrafting, and that is what was going on with the "thinning marrow". To be honest with you, I KNEW something was wrong, and had been nervous about it. But I am glad to know now that things are better. But Dr. Claxton said that John still has "thin marrow". It is better than before, and he still has the donor's cells, but his marrow is "thin". That still makes me nervous. Call me silly but it does. Maybe I have been overly cautious lately.
Anyway, I will let you all know tomorrow if we are going home soon or not. All I can say is that if we are, they had better follow up with John at home very closely (with a home nurse), because I am a little nervous about him returning home.
I love you all, Krissy
PS John's dad and stepmom came and visited today. We had a blast. We talked for a long time and went out to eat at Applebee's. This is the second time they came this week. We were so glad to see them!