Wednesday, November 29, 2006

John got chemo last night

I've been so busy I haven't had time to write. 

We are in Hershey again.  Yes, John is in the hospital.  He was hospitalized promptly after his visit to Dr. Claxton on Monday.  I thought he would not have to go in this time, really I did.  But to be on the safe side, we packed bags before we left on Monday in case we were going to have to stay.  I am glad we did.  

He's a lot sicker than I thought he was.  Oh, I don't mean to sound like he is doing horribly.  They may even send him home in a week they said.  But his Hemolytic Anemia is worse again.  He is requiring four bags of blood a week now instead of two.  Which means the Hemolytic Anemia is really being a problem.  The reason they will probably send him home is they will finish his treatment back home where we live.  And the treatment is?  Chemo.  Poor guy.  He has had so much chemo in his lifetime.  But if it will get him better he has to have it.  He already started his first round yesterday.  Since we got here he has had four units of blood and four hours of chemo.  

He also had a CT scan done and it showed fluid around the heart.  Right now they are just going to watch it.  Because it could be worse they said, and if they removed the fluid at this time, it would just come back.  The fluid build up is caused by complications from the transplant, as well as the constant blood he has been getting.  But if it does happen to get worse in the future, they will have to operate.

Okay, so what else?  I really can't think of what else is going on right now, perhaps because I covered it all, or perhaps my brain is just tired.  

Tonight tired is a good word to describe how I feel.  And shocked.  Because surprised is too mild of a word.  The doctors thought the Hemolytic Anemia wouldn't be making a major comeback, but would be getting better.  And now it is getting worse again.  I didn't think this would happen.  I thought we would be spending more time at home.  I am hoping we get to go home soon.  I hope that's not selfish of me.  Besides wanting John home (but not before he is better), I want to be home too, because I have a lot of things there I wanted to do.  I just want to be home for awhile!

I am dumbfounded, but I am not discouraged.  I am surprised (yes, I really did think he would stay home for awhile!) but I am not despondent.  I am a little disappointed, but, I believe in the Lord's timing, and I believe He will send us home when the time is right, and I will be able to deal with that timing, no matter when it is.  It feels so good to have that kind of faith in place, and to be able to trust. 

So on I go, onto another day.  Praying that John get better and better, trying to be there for him.  Trying to keep his spirits up.  And trying to give the doctors all the information they need to make good decisions regarding his care.  Okay, I'm off, but maybe I'll take a little nap before I go to the hospital, LOL.

Love you all,  Krissy :)

24 comments:

  1. rickardfoghorn11/29/2006 4:41 AM

    You all are in our prayers, i wish John a speedy recovery... Helen

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  2. Your faith will see you through it all.  I am still praying for you both. Take good care and get some rest.  'On Ya' - ma

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  3. I am so sorry that John is having to go through all this. I am still in prayer for both of you. I know you do get so worn out and tired as well as he does. Hugs, Helen

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  4. Krissy,
    I am so sorry that you and John are going through all of this.  Prayers are with you.
    Jackie

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  5. hugsdoodlewacky11/29/2006 8:29 AM

    ((((((((((((((((((((((((((((JOHN/KRISSY))))))))))))))))))))Both of you have ben through so much.I am sorry John is not getting better.You both will be in my prayers.We all love you,here at J-land.

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  6. mastersblynn11/29/2006 8:41 AM

    Jesus said we only had to have the faith of a mustard seed.  You have shown the faith of a peach.  God is there for you.  Take his hand and walk in faith.  I hope John gets better quickly.  In time for you to be home for Christmas.  Prayers from Texas, xoxBarbara

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  7. I am sorry it is becoming so difficult, again.  I feel bad for both of you...let's hope things improve enough to get you guys back home quickly...good call on packing the bags.  You can tell you have experience in "You never know"!  Thinking of you always...Jae

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  8. That's a setback, Krissy, no mistake. The doctors thought the AHA was on the way out, didn't they? And now back to chemo. The fluid round the heart isn't too good news either. Wishing you strength,

    Guido

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  9. Oh...so sorry to hear of the continued difficulties.  Love to you both.
    Nancy

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  10. oo my   my prayers are staying with u and john hun...know im here if u need to just talk

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  11. You are in my prayers friend. Tammy

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  12. lifesabench611/29/2006 1:00 PM

    It's too bad that things have gone the way they have for John- hopefully the doctors will do what they need to do to help him get better.  It's not selfish to want to be home!  I hope you're both able to be home soon- for if not to stay, at least for a month or longer!!  Please take care of yourself too Krissy- God Bless you both!  love Carolyn

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  13. Oh Krissy, I hate to hear this.  I thought John was going to be ok once you got home and his pneumonia was under control.  Poor guy.  He has been through so much.  And you my dear have been thru it all with him.  I know how tired you must be.  Rest!!  My prayers are with you and John.     Love Myke

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  14. This is another round in the battle for John's getting better and it has to be tough on him and you.    I have been saving written description's from J-land people on the meaning of faith to individual people.     I think your example of having faith is the most clear one I could ask for.     Having that one place where things are certain during a time of stress, and pain for John, has to be a tremendous belief in one's faith.    With you there by him I sense an energy that is overwhelmingly positive.     I  hope John is able to start recovering soon and the treatment is an absolute success.     mark

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  15. midwestvintage11/29/2006 3:16 PM

      Sorry your back in the hospital.  I hope they fix him up soon and you can come home for a longer time.  Take care.

                  Julie

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  16. Well, perhaps this way ya'll can be home for Christmas.  Be sure to take care of yourself, as well.....for both your sakes.  -  Barbara

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  17. Krissy, keep the faith, that will get you through anything.  Sorry John was back in the hospital, but if it helps that's what he needed.  Just take it one day at a time, if you don't get something done at home, don't worry about it.  House I learned after some rough times, comes second to someone we love.  Take care....you both are in my prayers....Arlene (AJ)

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  18. I am so sorry John had to be hospitalized again.  You are such a brave woman with such a strong faith and I truly admire that in you.

    Hang in there.  Hope you brought your blanket to snuggle with at night!  (lol)

    ((hugs))
    Jeanne

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  19. nightmaremom11/29/2006 7:04 PM

    aaaaaaaaaawwwwwww Krissy I am so sorry.. you both are in my thoughts and prayers daily.. things will get better.  Smile and keep the faith.
    hugs
    d
    http://journals.aol.com/nightmaremom/Thisandthatandhockey/

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  20. tendernoggle11/29/2006 7:23 PM

    I am so sorry Krissy......I wish things would go better for you both...This has to be soooooooo hard on you.....both emotionally and physically ...I am gonna pray for yall.
    love ya,
    carlene

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  21. Krissy know that I'm praying for you and John.

    God Bless
    Christy

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  22. Krissy I'm so sorry he's in the hospital again. Wow what a shock!  You are so loving and strong and he's so blessed to have you in his life.  
    Will keep you both in my prayers.
    Pam

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  23. Omg poor john must be sooo tired of it all

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  24. keeping you both in prayer. hope all goes well and you both can celebrate christmas at home. (((((((((hugs)))))))))))) to you both.
    Cindy

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