I've been so busy I haven't had time to write.
We are in Hershey again. Yes, John is in the hospital. He was hospitalized promptly after his visit to Dr. Claxton on Monday. I thought he would not have to go in this time, really I did. But to be on the safe side, we packed bags before we left on Monday in case we were going to have to stay. I am glad we did.
He's a lot sicker than I thought he was. Oh, I don't mean to sound like he is doing horribly. They may even send him home in a week they said. But his Hemolytic Anemia is worse again. He is requiring four bags of blood a week now instead of two. Which means the Hemolytic Anemia is really being a problem. The reason they will probably send him home is they will finish his treatment back home where we live. And the treatment is? Chemo. Poor guy. He has had so much chemo in his lifetime. But if it will get him better he has to have it. He already started his first round yesterday. Since we got here he has had four units of blood and four hours of chemo.
He also had a CT scan done and it showed fluid around the heart. Right now they are just going to watch it. Because it could be worse they said, and if they removed the fluid at this time, it would just come back. The fluid build up is caused by complications from the transplant, as well as the constant blood he has been getting. But if it does happen to get worse in the future, they will have to operate.
Okay, so what else? I really can't think of what else is going on right now, perhaps because I covered it all, or perhaps my brain is just tired.
Tonight tired is a good word to describe how I feel. And shocked. Because surprised is too mild of a word. The doctors thought the Hemolytic Anemia wouldn't be making a major comeback, but would be getting better. And now it is getting worse again. I didn't think this would happen. I thought we would be spending more time at home. I am hoping we get to go home soon. I hope that's not selfish of me. Besides wanting John home (but not before he is better), I want to be home too, because I have a lot of things there I wanted to do. I just want to be home for awhile!
I am dumbfounded, but I am not discouraged. I am surprised (yes, I really did think he would stay home for awhile!) but I am not despondent. I am a little disappointed, but, I believe in the Lord's timing, and I believe He will send us home when the time is right, and I will be able to deal with that timing, no matter when it is. It feels so good to have that kind of faith in place, and to be able to trust.
So on I go, onto another day. Praying that John get better and better, trying to be there for him. Trying to keep his spirits up. And trying to give the doctors all the information they need to make good decisions regarding his care. Okay, I'm off, but maybe I'll take a little nap before I go to the hospital, LOL.
Love you all, Krissy :)