Friday, May 11, 2007

Giddy

Hello, my J-Land!

Woohoo!  I did something really exciting yesterday!  I drove for the first time in about six months!  It was just down a couple of streets to get some money orders, but nonetheless, it was driving!  I haven't driven in about six months because of the narcolepsy.  I didn't want to fall asleep at the wheel and kill somebody.

It looks like the narcolepsy medicine is working.  I still fall asleep occassionally though, and John thinks it is because I haven't gotten the CPAP machine yet for the sleep apnea.  My friends claim I am a new person now.  That I am alive, awake, and "giddy".  That I have a new personality since I started the narcolepsy medicine.  They keep calling me "giddy".  I don't know if I like that description, LOL.  Well, I guess I could be called worse things...

Let's see, what else is new besides me driving again?  John has gone severely neutropenic again.  He has been neutropenic since he was in the hospital around Easter.  But he almost got better last week.  But this week his white blood count and neutrophils have severely plummeted again.  He has a severely compromised immune system again.  But you know what?  He doesn't seem to be catching anything or getting sick.  So that's good.  No, it is great.  And, I personally would say miraculous.  What are the odds that he would be immunosuppressed all this time and not get real sick any more?  This is something else!  Miraculous perhaps?

I will say this on a good note about John.  When he went in to get bloodwork done yesterday, they remarked how well he looked, and how great his color was!  One of the phlebotomists (the person who draws your blood) said to John, "Before you could have just gone to any corner in here and curled up and taken a nap.  Now you are doing ok!"  Great, huh!

Well, that's about it, except to say that I finally feel like I may get caught up on the things I have to do around the house.  Someday.  Maybe.  LOL.  I did a bunch of things yesterday, from 5 am till midnight.  I saw how much I could do and it made me feel good.  Maybe I WON'T be behind forever.  Yesterday, I of course didn't get a large chunk of everything I needed to get done in the house.  I think that will take months, but I can see that doing this is actually feasible, and I am not so overwhelmed anymore.  I may actually at some point get caught up on my housework and paperwork, LOL.  Yesterday the maid and I did four hours of work together.  That made me feel real good.  She is a hard worker.  We got the house a lot cleaner for John.  

Okay, must run, hope you are doing well, J-Land. :)  I know some of you are going through some very rough times, but keep hanging in there.

Krissy :)  

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26 comments:

  1. Krissy, Great  you feel giddy!  Yay!  And although John has to have all those precautions, at least hearing his color looked good was great to hear.  Will email you later, or IM you.  merry1621   Baby Jack is coming soon.  Val will probably be the one  of the first persons I write too.  I will try to write to you, but we have to go (3 hours away) when the baby is here, and  I may not have time to write to people, or even to post in one of my journals.  Ah Krissy, you sounds so good!  I am so so happy for you!  How is Mr. Michael doing?  I hope great.  Have you given injections yourself yet? (You will do fine & so will Mr. Michael.)  Krissy, I am so nervous about this baby, you'd think I WAS having it!  Remember YOU & JOHN are in my heart & in my prayers.  I ask that you keep us and our family in yours now.  Thanks!  Wonderful to hear from you, sweetie.  Merry

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  2. Oh how WONDERRUL!!  You guys sound like you are having good days =D!!  I'm not feeling very good right now.  I haven't had my MS Contin in 2 days and I am sick, sick, sick.  I can't do an entry or the hunt until I get some pain meds in my system.  I am waiting for the doc's office to write me an email for me to pick up my script =(.  I can't believe this happened to me.  Ugh.  So, I am sooooooooo proud of you!!!  I will do the hunt later today after I get my medicine, honey.  Hurts to type, must go .  LOVE YOU =D!! xoxoxo
    http://journals.aol.com/valphish/ThereisaSeason

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  3. ((((((((Krissy and John))))))))) prayers continue for both of you.  No wonder you feel giddy dearheart!  I am so thankful the medicine is working for you.  Wait till you get that CPAP going too and your night sleep is improved along with keeping your oxygen levels where they should be!
    loving you
    karyl

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  4. I'm so happy things are better for you both !  It is good to feel good - that's for sure.  We never know how blessed we are until we don't have it.  I think you are both miracles.  'On Ya' - ma

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  5. A big hand to you being able to drive again. I pray that John will be ok. Helen

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  6. Good news friend! Tammy

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  7. rocketman6854345/11/2007 10:42 AM

    Great that you are able to drive.Glad John aint catching anything or getting sick.Will pray that he stays that way.

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  8. All GOOD News! Especially about your sleep problems. Now that you are getting the correct treatment you'll be able to do so much more.
    http://journals.aol.com/astaryth/AdventuresofanEclecticMind/
    http://adventuresofaneclecticmind.blogspot.com/

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  9. As long as you are aware of the onset of your sleep I am sure you will be alright.    Like you say once you get the machine and your nights sleep is uninterupted you will be well rested and alert during the day.    The main thing for John is keeping the house sterile as possible and out of risk and that is going well with the help of the maid.   Wishing you both a good weekend.   mark

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  10. Good job !!!  Glad to hear the medication is working.  I can imagine how frustrating it can be not to be able to drive.  I go nuts, when my car is just in the shop for the day and not sitting in my carport.  Hopefully, eventually you'll be able to venture out even further.  So happy to hear that life is becoming somewhat normal for you & John.  Sorry to hear about Michael, but I know several people who have pets with diabetes and are insulin dependent.  Once you get the hang of those injections...you'll be fine.  I understand the needles are very small and easy to use.  Just remember...DON"T RECAP THE USED NEEDLE...use an empty plastic water bottle or a regular Sharps container to dispose of the needles.   Linda in Washington state

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  11. So pleased you are both doing better.
    Jenny <><
    http://journals.aol.co.uk/jennyp51/stop-the-clock-times-moving-too-/

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  12. Hi hon. It is so GOOD to hear that things are going better. How wonderful that you were able to drive again. I know you must have missed being able too. Keeping you both in prayer.
    Love,
    Barb- http://journals.aol.com/barbpinion/FROMBARBSSPIRITUALJOURNALS

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  13. So happy things are brigghter for you right now.Good on you for driving I think I would have enjoyed it too.It's good to read John is doing much better.You will get the jobs done in the home in your own good time.The work will wait.Don't overdo it and tire yourself out.Take Care Have a great week/end.God Bless .Kath Astoriasand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES

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  14. firestormkids045/11/2007 2:48 PM

    Wow, Krissy!  "GIDDY"  That's awesome!  I am so glay my dear friend.  Much love and blessings for you, John and Michael, Penny  

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  15. princesssaurora5/11/2007 5:17 PM

    I am so happy for you... so so so very happy!!!  The prayers are working for you both.

    I am sorry about Michael...but it is treatable!

    be well,
    Dawn
    http://journals.aol.com/princesssaurora/CarpeDiem/

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  16. Hi Krissy,
    Very pleased to hear your narcolepsy is being brought under control. Sorry to read of Michael's diabetes, but that's manageable. Practice makes perfect. I've heard of neutropenic patients getting through those episodes without contracting anything. They're just more susceptible should anything come their way. Have a good weekend.

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  17. great news:) have a good weekend

    Deb

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  18. Way to go Krissy, glad the meds are working for you and you getting to get out and drive again, that had to perk you up for sure. Glad John is holding his own dear and not catching anything or coming down sick.....maybe all our prayers are bringing a miracle his way, sure hope so. Have a peaceful weekend....Arlene (AJ)

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  19. hugsdoodlewacky5/11/2007 6:36 PM

    (((((((((((((((((((((((HUGSTOYOU))))))))))))))))))So glad things are going good for you guys,but,still praying.Have a nice weekend.

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  20. jlocorriere055/12/2007 9:41 AM

    I'm glad the narcolepsy meds are working Krissy and John isn't catching anything either. Now, that's a miracle! Keep well and take it easy, no need to catch up on all your housework in record time, just do it as you feel like it! Jeannette xx  http://journals.aol.co.uk/jlocorriere05/Welcometomytravels/  

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  21. Hi Krissy. That must have felt great to be out driving again! Good for you. :)    I hope John continues to feel better and to get those blood counts back up. That`s great that he`s getting compliments on how good he is looking. And yes indeed, that is a miracle that he`s staying well, what with his immune system being compromised.
    Have a wonderful Mother`s Day!!!
    Hugs
    Penny
    http://journals.aol.com/penniepooh/pennys-pieces-of-ohio/

    http://www.myspace.com/pennysplace2gogh

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  22. hey Krissy, glad you finally got to drive, its like a old shoe dont matter how long its been we can jump right back into it, sorry to hear about John though hope you both get feeling much better happy mothers day Deanna

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  23. cacklinrosie1015/13/2007 8:42 AM

    WTG, Krissy!  So glad the medication is working.  You must feel so free driving.  Keeping John in my prayers.  At least he hasn't gotten ill and looks good.  That's a plus.  Boy, I know that overwhelming feeling of never getting ahead in the house.  So much stress for you, though, since John has to have a sterile environment.  I'm glad things are working out well.  HUGS Chris

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  24. Praising God for the answer to prayer this treatment has been for you!!!  That "giddiness" is probably happiness mixed with relief.  ;o)  -  BArbara

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  25. Hi Krissy~LOL re. "giddy"! Glad John is doing so well and that you are getting caught up on your work. Blessings, Deb ;-)

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  26. Giddy is a good thing and driving is a great thing, what freedom... woo hoo!
    Linda :)

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