Hello, my J-Land!
Woohoo! I did something really exciting yesterday! I drove for the first time in about six months! It was just down a couple of streets to get some money orders, but nonetheless, it was driving! I haven't driven in about six months because of the narcolepsy. I didn't want to fall asleep at the wheel and kill somebody.
It looks like the narcolepsy medicine is working. I still fall asleep occassionally though, and John thinks it is because I haven't gotten the CPAP machine yet for the sleep apnea. My friends claim I am a new person now. That I am alive, awake, and "giddy". That I have a new personality since I started the narcolepsy medicine. They keep calling me "giddy". I don't know if I like that description, LOL. Well, I guess I could be called worse things...
Let's see, what else is new besides me driving again? John has gone severely neutropenic again. He has been neutropenic since he was in the hospital around Easter. But he almost got better last week. But this week his white blood count and neutrophils have severely plummeted again. He has a severely compromised immune system again. But you know what? He doesn't seem to be catching anything or getting sick. So that's good. No, it is great. And, I personally would say miraculous. What are the odds that he would be immunosuppressed all this time and not get real sick any more? This is something else! Miraculous perhaps?
I will say this on a good note about John. When he went in to get bloodwork done yesterday, they remarked how well he looked, and how great his color was! One of the phlebotomists (the person who draws your blood) said to John, "Before you could have just gone to any corner in here and curled up and taken a nap. Now you are doing ok!" Great, huh!
Well, that's about it, except to say that I finally feel like I may get caught up on the things I have to do around the house. Someday. Maybe. LOL. I did a bunch of things yesterday, from 5 am till midnight. I saw how much I could do and it made me feel good. Maybe I WON'T be behind forever. Yesterday, I of course didn't get a large chunk of everything I needed to get done in the house. I think that will take months, but I can see that doing this is actually feasible, and I am not so overwhelmed anymore. I may actually at some point get caught up on my housework and paperwork, LOL. Yesterday the maid and I did four hours of work together. That made me feel real good. She is a hard worker. We got the house a lot cleaner for John.
Okay, must run, hope you are doing well, J-Land. :) I know some of you are going through some very rough times, but keep hanging in there.