Hi you all. Sorry I haven't written in awhile. I have been cleaning my apartment like a mad woman to make it sterile for John. He was staying at my parent's house while I did it b/c I didn't want him to get sick while I kicked up the dust and used cleaners like lysol. I did this because his ANC fell so low that he had almost no immune system.
Well, Thursday, John's immune system dropped to 0. So that means he did not have an ability to fight anything off. I knew it would happen. I knew he would catch something, which he did, by Thursday night. By the evening he had a fever, and so we came in last night to Hershey Medical Center. When we got settled into the hospital last night (Thursday night) it was about 2:30 am.
Today (Friday) John's temperature was 101.6. He was given a slew of tests to try to determine what is wrong with him. It could take weeks though to find out why his ANC is so low. It could be bacterial, fungal, or viral. I am a little scared but not too scared, b/c he has made it this far.
So we just don't need to be concerned about him catching something b/c of his ANC and white blood count being low, but also we need to be concerned about why his ANC is low in the first place. Like what is that indicating? What kind of illness/or infection is it indicating?
John has been given shots (Neupogen and Neulasta to artifically raise his ANC and white blood count), so it may raise pretty quickly. But like I said, it won't clear the underlying problem. The only reason I am mentioning it to you is if he suddenly gets out of the hospital. But they will be having to take care of the long term problem, whether it is at the hospital, or at home.
So how am I doing? Well, there are no rooms open at Hope Lodge, for at least a week and a half! So I am sleeping in the hospital chair next to John's hospital bed. Clothes in a bag on the floor. But there is a washer and dryer that everybody shares in a section of the hospital that I do believe they will let me use, and I think they will let me use the shower too. And they will let me use the computer, so I am good to go, LOL. I have to figure out how to get to the pharmacy (a couple of miles away, and i don't know if there is taxi or bus here, we will see), but I should be able to figure that out. And hospital food it is for me! Okay, I won't stress, one thing at a time here.
My sister Val learned how to give Michael his diabeties (insulin) shots and showed my mother and father. My mother has been giving him his shots! I am so proud of you Mom! Thanks so much Mom and Dad for giving my cats his shots and taking care of him while we are away!
Okay, must go now. I must get back to John. Love you all,
hugs, love and strength being sent your way. Speedy recovery for John!
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d
Awwwwwwwwww...God Bless your loving heart Krissy...I hope you are ableto get some rest while there...but I know from experience how uncomfortable those darn chairs aretoyour back...God bless and keep you and John til you are back home.
ReplyDeletelove ya,
carlene
prayers and positive thoughts being sent your way, for a speedy recovery for john. (((((((((Krissy John))))))))))))
ReplyDeleteLove,
Cindy
Sending prayers and hugs your way. Linda in Washingtin state
ReplyDeletePrayers & hugs..........
ReplyDeleteGoing your way...............
eileen
Oh hon, I am so sorry. I was hoping he'd be home for awhile. This is just so hard on the two of you. Keeping you in prayer- and John too, as always. I love you both so much- and cannot say enough about what an inspiration the two of you are. Big hugs, hon.
ReplyDeleteBarb- http://journals.aol.com/barbpinion/HEYLETSTALK
You both are in my prayers as you always are. God Bless you both ! 'On Ya' - ma
ReplyDeleteAs always John and you are in my prayers. Hugs Tish
ReplyDelete(((((((((((((((((((HUGSTOYOU)))))))))))))))))))))))))I m always praying for you both.
ReplyDelete{{{{{{{{{{{{{hugs}}}}}}}}}}}}} and lots of love to you my friend.
ReplyDeleteSylvia xx
Hi Krisy and John, my prayers and thoughts are with you both. Your courage and will to go through what you do, simply amazes me. I truly admire you both so very much. God bless and take care.
ReplyDeleteMy prayers are with both of you. Helen
ReplyDeleteHope John gets well soon and take care of yourself.
ReplyDeleteJulie
My love, thoughts, & prayers are with you both.
ReplyDeleteJohn is such a fighter, don't think I've ever known anyone to fight so hard. Bless him! You take care Krissy. {{ }}
God bless,
Sugar
Oh Krissy, I didn't know you didn't have a room in Hope Lodge. So sorry. I have been sleeping for a day. I got exhausted trying to tie up loose ends and worrying. Matt rocks as does Mommy!! I brought Michael to the vet to learn how to do the shot (with sterile water... He was such a good kitty!!! WOW!!!) and took Michael back to mom's and dad's. I told them if I gave him a shot they could, too! LOL They both said they couldn't!! Well, I just kept explaining away. And Mommy took the needle from me and just gave it to him. LOL She ROCKS!! She is so special. Her love just rose a bunch!! She loves Michael and didn't want me to have to come twice a day, how sweet!! I promised her I would do the food and water and brushing him. Imagine, she would rather do the shot than the litter box. I don't understand, but I'll take it. LOL I will call you later today. I love you guys so much!!!!!!!!!!! Hope all the tests show what is wrong. xoxoxoxoxoxoxox
ReplyDeletehttp://journals.aol.com/valphish/ThereisaSeason
Our prayers are with you both in every way.
ReplyDeleteLove,
Angela
Wow this will be hard with no room for you to relax in. Don't overdue it. I hope you can get a room soon.
ReplyDeletePrayers are with John and you.
Pam
take care
ReplyDeleteHi Krissy, I`m sorry to hear that John is unwell and back in hospital. You sound very positive though and that is great. Please give him my very best wishes. I`m glad to hear that Michael is being well taken care of while you`re away.
ReplyDeleteLove Sandra xxxx
(((((((((Krissy and John)))))))))) I am praying there are answers and solutions for whatever is causing John's ANC to be so low. I hope you will be able to get enough rest.
ReplyDeleteloving you
karyl
Krissy, John is in my prayers as are you dear. You are one strong trooper....just what John needs when going through health problems like this....he's blessed to have you there with him. Hopefully the tests can pinpoint what is causing his ANC to be low, etc. Know we all care about you both....Arlene (AJ)
ReplyDeleteGive John a little hug from me, and you hang in there!
ReplyDeleteLove,
Andi
Best wishes to John, and good luck to yourself in getting home shipshape for when the man himself comes home again!
ReplyDeleteOh Krissy,
ReplyDeleteI am so sorry to hear John had to be hospitalized and worst that there was no room "at the inn" HOPE LODGE. Honey, I feel bad you have to lilve out of a bag like that and take showers when you can get them.....just not have your own room. That really gets me, I am glad it doesn't you. You are such a tropper and learn long ago not to swat the smaller stuff. Still, Krissy you deserve so much better. Then need more lodging places. I am sure this is true all over.
Ya, with his count so low, this was like a bomb ready to go off and I know you clean your heart out.
Keep us posted on John but also on you, because to many of us, Krissy, you are a sweetie pie.
Merry
Krissy, this make me feel sad, I know you have your hands full, I will keep you and John in my prayers. If possible keep us posted. gg
ReplyDeleteSorry Krissy- if anyone can survive a roller coaster, you and John can. Will keep you both in my prayers. I'm glad your folks are taking care of Michael while you're gone. God Bless you both, and hope you're able to get to the bottom of things quickly. Carolyn (())s
ReplyDeleteOh, Krissy...so sorry to hear John is having problems and back in the hospital. Den is in the hospital too. The Lodge next door wanted $64 a night! I found an extended stay hotel (minimum 1 wk stay) for $216. Some friends raised some money for me to stay there cuz Den went to ICU for a couple days after major surgery. The room he was admitted in was a suite. Huge and it has a separate room for family to stay. They shut down that unit when he was transferred out of ICU cuz they only had 2 patients which they transferred over to this unit. It's a small room but has a sofabed in it. I have to check out of my hotel Friday a.m. then visit with Den and I'm going to drive 90 miles home to sleep in my own bed. I need prescription refill and need to pay some bills then I'm gonna come back here. I've talked to the nursing manager and they will transfer him back to the suite Saturday so I can stay here. Don't they have a cot, sofabed, or something to make you more comfortable? I've slept on cots before. Talk to the patient rep and see what they can do for ya. My thoughts and prayers go out to you and John.
ReplyDeleteHugs,
D
http://journals.aol.com/heavenlybama/journey-to-success
may u plz check owt ma blog. tinkz lyfe
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