I've been so busy lately. Now that John is out of the hospital and not as sick, I have been trying to catch up on almost two years of housework and paperwork. It is very daunting. I know - I just need to take it one day at a time, one item at a time. But it is still daunting and somewhat overwhelming. It is taking up so much of my time.
John has been doing better. He is not as weak. He no longer has fevers.
The appointments with Dr. Claxton went well last week. John's main problem is neutropenia. John has been neutropenic since his hospitalization right after Easter. Dr. Claxton said some patients have recurring neutropenia after bone marrow transplants for the first few years.
Neutropenia, if you have been reading this journal for long, means one has low neutrophils, which causes one to have a very comprimised immune system. One can die if they are around dirt, dust, mold, etc.
One awesome thing is that a cleaning agency that is helping me out once a week for two hours (at no cost to us) is going to put in two more hours a week to clean! The head of the program knows what it means to be neutropenic and that the house must be as sterile as possible. Unfortunately, her brother-in-law had a bone marrow transplant, but died from leukemia anyway. She called me up on Friday and said she wanted to offer the services for John, to help get the house more sterile. What a blessing.
Okay, at the fear of making this too long, I will just mention one more thing. I wanted to mention about my sleep. The Narcolepsy medicine seems to be working. Sometimes I still fall asleep, but I think it is because I need to start my Sleep Apnea machine. Last night I went for my Sleep Apnea test, and slept all night at the hospital, to get the CPAP machine adjusted for the proper air flow. I will get my actual machine in a week or so. It was not a bad experience at all, like some people say. I actually liked the extra air I was breathing!
Well, I better get off of here, I am going out with some girlfriends, yes taking a break, having a life! Feels nice!