Saturday, May 31, 2008
Friday, May 30, 2008
I won't even begin to list the possibilities here because they would be my ideas and not yours. You start. You think. You dream. You imagine. You leave a legacy.
Do it in memory of the loved ones you have lost.
Dear God, please help me remember that we are all in this together. Not one of us is immortal, and eventually we will all come into Your presence. Remind me often, Lord, to celebrate and give thanks in every moment I am alive on this earth and with every breath I take. Help me find ways to celebrate, too, the lives of those I love who make their way to You before I do. And while we're here together, help me to be the kind of friend
others can be sure of.
Thursday, May 29, 2008
Anniversary card John bought me
John receiving a blood transfusion
Wednesday, May 28, 2008
Monday, May 26, 2008
Where did you first find out about AOL blogs/journals, and what made you want to start one?
My answer: I found out about AOL blogs because my sister Valerie of There is a Season started one, and encouraged me to do the same.
As to why I truly started my blog, I can't imagine. I was an extremely private person at the time, LOL. I was so private I wouldn't even tell my own family most things. Why or how I became able to express myself online is beyond me. I guess I began enjoying blogging as time went on, as I felt it was helping me, as well as helping others. :)
Love you all, Krissy :)
Friday, May 23, 2008
Just capture anything colorful!
After you've posted your entry in your journal/blog, please come back here and put the address of your entry in my Comment Section below. If you need an explanation on how to do this, or need to know any other instructions concerning this photo shoot, please click on the link below.
Thank you. We can't wait to see your pictures!
Love you all, Krissy :)
Thursday, May 22, 2008
I forgot to tell you all how John was doing.
He got his lab results back yesterday.
First let me say that a couple of weeks ago, he got a shot of Aranesp to help raise his red blood cell count (his hemoglobin and hematocrit). The shot was to make sure he wouldn't need any blood transfusions any time soon.
Well, his scores came back great yesterday! The Aranesp shot raised his red blood cell count! What this means is, that for now, he won't be needing blood transfusions! Not right now anyway! Yayyyyyy! I hope this trend continues! I just wanted to let you all know! Those transfusions that he used to have to get (over 100 of them) used to take a big toll on him.
Everything else is going pretty well with John also. He's not in the normal range of things yet, but for him, he is doing very well!
I won't bore you with a full medical report, but we are very pleased, that John is doing as well as he is, for being a person who has some health issues. He does most everything a "normal healthy" person does, LOL. Except he has to sleep more.
Oh, one more thing, I don't know if I mentioned he goes to Physical Therapy three times a week for his neck. At a different therapy place than me. Now why did he choose to go somewhere different? I haven't the foggyist. Now working out a schedule will be much harder, LOL!
Okay, I just wanted you all to know he is okay and doesn't need blood. And this he is trying to get through the injury on his neck by working in physical therapy three times a week. Probably for two or three months. He will make it though! Thanks for the emails asking about him. :)
*****By the way, if you are a new reader, and don't understand this entry too much, John got a bone marrow transplant (stem cell transplant) a little over two years ago. He needed the bone marrow transplant because he had twocancers: Non Hodgkins Lympyoma, and MDS ( bone marrow cancer). MDS can turn into AML (leukemia) in a few short months if left untreated, so if John hadn't chosen to do the bone marrow transplant he would have, well, passed away by now, must likely. So all things considered, he is doing quite well.
Well, getting back to John needing frequent blood transfusions at different times since the transplant, he had/has a disease called Hemolytic Anemia. Hemolytic Anemia is when your blood cells can destruct in as fast as a day. That is why the person who has an advanced case of Hemolytic Anemia needs constant blood transfusions.
Now if you are wondering how John got the Hemolytic Anemia (that has caused him to get over 100 transfusions so far in 2 years), his oncologists don't even know.
But the oncologists do have two theories. The first is John could be having an adverse reaction to a medication he took after the bone marrow transplant. This medication was one that causes John's body from rejecting his donor - and was quite necessary perhaps!
The other thing that could have caused the Hemalytic Anemia, therefore causing John to need so many transfusions, was a mismatched bag of blood. Yes, you heard me correctly. Sometimes if the recipient of the blood is not matched correctly with the right type of blood this can happen. I don't know who messed up, the blood bank or the nurse or who. Tell you what. We are not even going to think about it. We thought all along it was the meds and now we find out it might be mis matched blood. What a nightmare, Ughhhh.
We are still VERY much into receiving and giving blood of course. Without those hundreds of bags of blood that John received, he was saved from death. And for all of you who donated blood, many were saved from death also. Thank you so much!!!! :)
Okay, so I am going to go to Chinese with John now!
Love you all, and take care of yourself,
Wednesday, May 21, 2008
I was weeding yesterday and a truck went by and honked. Wow! That hadn't happened in a long time! But the honk could never make up for the humiliation of what happened two weeks prior. Let's just call it my "Senior Moment".
Let me tell you about my Senior Moment. John and I were coming home from Hershey Medical Center where he had gotten his oncology appointment. We stopped at a McDonald's along the way home for a quick bite to eat.
When it was time to pay the clerk she asked me "Are you a senior citizen?" My heart dropped. I thought it was going to drop to the floor. I guess this will be the first of my Senior Citizen askings. First of all, though, I am 45. To make it worse, she wasn't a teenager. She looked 35 or something. How could she think I was a senior citizen?
She must have saw my jaw drop in disbelief, because she tried to help me. "Ma'am, she said with a big smile, "I was only trying to help you, because if you really were a senior citizen you would be getting the senior citizen discount!"
So I am like, standing there, thinking, please lady, do not try to redeem yourself. Just give me my food and let me get out of here!
That was my first time ever being asked if I was a senior citizen. I hope it doesn't happen again real soon. I think seniors are beautiful and full of wisdom, but I don't want to be called one until I am!
Now take a long look at the photo above (I am 45) and please be honest, do I look like a senior citizen (over 55?)
Love you all, no matter what your answer is, LOL,
Friday, May 16, 2008
because sometimes we need to be a little lighter! ~~>
A: two - one to change it and another to sing about how they'll miss the old one
A: Two, one to go and shoplift the bulb so the boomers have something to screw in and the other to screw it in for minimum wage.
A: None. Atheists question whether it's really light anyway.
A: Only one, but he has to have a nurse to tell him which end to screw in
A: Will somebody please call house-keeping?
A: None. It's left to the reader as an exercise.
A: One hundred; one to change the lightbulb, the other ninety-nine to stand around wondering why they weren't chosen
A: The answer, my friend, is blowin' in the wind. The answer is blowin' in the wind.
A: We can change the bulb in 7-10 working days; if you call before 2pm and pay an extra $15 we can get the bulb changed overnight.
A: Only one but it will take him 7 visits to do it.
A: One, but it takes at least three light bulbs.
A: Only two, but how did they got in there?
A: You wouldn't know, man; you weren't there!
A: Fifty-seven, you got a problem with that?
**note: the above jokes weren't meant to offend anyone, they were just done in fun!
Thursday, May 15, 2008
Ohh, exciting news! I forgot to mention it with all that has been going on! I made it past the first phase of convincing my orthopedic specialist not to give me surgery. I have made tremendous progress! My shoulder is still frozen quite a bit, but, I am tearing through the scar tissue in hopes to make my shoulder to work once again.
I can lift my right arm above my head holding it out to the side. If I try to raise my left arm (the one with the frozen shoulder and scar tissue), I can't even raise it half way up. But I used to only be able to lift the left arm about two inches, so I am making progress! The Occupational Therapists say not to be discouraged. However, they told me it would probably take four more months (a total of six months) to return to normal. Ugghhhh.
I don't see at this point how it is possible to bust through the scar tissue and adhesions completely, but I am just going to have to trust that I can do this and not have to have the medical procedure at the hospital that I don't want. That's what the Occupational Therapists say I can do, so I am certainly going to try.
What a long time since I've updated. It has been one crazy week. In the beginning of the week John said his neck hurt more than it ever had, so we went to a physician to check it out. To make a long story short, John is suffering from sprained ligaments in his neck. I think that is what the spinal surgeon said. John will have to go to Physical Therapy for about three months is what I think he was told by the surgeon.
The reason I am so unclear on what John has wrong with him, and what his treatment is, is because first the radiologist, then John's physician told us that John's neck was broken. We were terrified, to say the least. John was given a collar to wear, and sent home. He was told to lay around until the neurosurgeon called. The next morning (Tuesday) a spinal surgeon called John. He went in and additional x-rays were taken. That is when it was determined that the injury that the other doctors had seen was an old neck break, and was not dangerous, and would not migrate and hurt the spine.
At any rate, we are so grateful that John's neck is not broken. He is still in tremendous, horrific pain, but that's okay - it's better than having a broken neck. John is wearing his collar, going to PT for about three months, then to massage therapy. It will be a long ride up. But it is okay.
Finally, I want to say, in the midst of all these appointments, I didn't get time to do any entries. I've missed the Monday Morning Question, and haven't been able to do a JLand Photo Shoot in a couple of weeks. This really disturbs me, as I like to stay consistent. I hope you all understand.
Love you all, and I will be back to writing regularly,
Sunday, May 11, 2008
Monday, May 5, 2008
Saturday, May 3, 2008
Thursday, May 1, 2008
I am not adverse to operations, but why not try to make it work in OT first? That is my goal! If I need the procedure I will DEFINITELY have it, but I am shooting for trying to make it without the procedure first!
Hope that makes sense. Love you all,