Friday, January 11, 2008

John hasn't been doing this well since before the transplant

                   

I realize I have needed to write an entry for awhile.  I have been getting emails asking how John is doing.  I keep meaning to write but I have been soooo tired.

This can be demonstrated by my speech a little while ago.  I was just lying on the couch and woke up suddenly and said to John, "My muscles in my leg are panting."  What I meant to say was that my muscles were pulsating.  I have had very painful fibromyalgia lately. 

As I woke more fully, I asked John if he would help me write a blog entry, but told him never mind, because I thought he was "too hired."  I meant too tired, LOL.  Finally I pulled it together and here we are.

First let me say that I believe John is doing better than he has been since before the transplant.  These are his words.  He is sitting here beside me.  I agree with him.  Yes you heard us correctly!  We want you to celebrate along with us, because you have been there with us from the beginning!  Yes, unfortunately he still has kidney damage but other than that, he is doing tremendously well!  We thank the Lord and his doctors for his recovery, and we also thank you all for being there for him. 

We know he is doing better because of his lab results.  His counts and levels are almost all in the normal range!  His platelets are still low.  But he no longer has the Hemolytic Anemia and hasn't for awhile.  His Hemoglobin and Hematocrit are in the normal range, and are very high for him!  John's immune system is now working well!  All of this is incredible.

And here's another good surprise.  Remember recently when John had 25 to 30% kidney function?  Well for at least three weeks he has had a Creatinin level of 1.8 to 2.0.  This means he now has 40% kidney function!  His kidney specialist said it just would NOT happen in his lifetime.  Showed him, huh!  John is going to try to improve it even more, if possible.  

We are so thankful for how John is doing.  I have to be honest though.  Sometimes it is hard and we get a little concerned.  It is always possible for a bone marrow transplant recipient to have a setback.  Look what happened about a month ago.  On the other hand, there's no reason to believe John is going to have problems either.  We are just grateful he is where he is today.  More than grateful.  We're pretty ecstatic. 

Thank you all for being here for us, 

Krissy :)

Edit:  I am neglecting to mention the most important thing here.  I wrote this entry, and was thinking about it afterward.  I am dumbstruck that I neglected to mention this, and don't want to just take it for granted.  I have new readers and they may not know.  John is in remission from two cancers!  In the past ten years John has had both Non Hodgkin's Lymphoma and Bone Marrow Cancer (MDS) leading into AML (leukemia).  The bone marrow transplant (stem cell transplant) has put the MDS in remission and should also keep the NHL cancer from coming back.

I want to give the glory to the Lord for this.  I also know this has something to do with my husband, who is a fighter.  

You can check out his journal here:  too stubborn to die      

49 comments:

  1. that is  happy news Krissy.... nice pic of him :-)
    Hi John!

    Gem :)

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  2. Yehhhhh I am so happy for you both.I thing Krissi can put up with the tiredness now after all this great news.Rest up both of you,have a break for a while and enjoy your great news.Take Care God Bless Kath astoriasand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES

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  3. Yes, it is something to be thankful for and I'm thinking he is a living miracle.  After all is said and done, we all only have today and I'm one that thinks we should celebrate each one.  'On Ya' - ma

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  4. cacklinrosie1011/11/2008 5:32 AM

    Praise the Lord, Krissy!!  Bless you both!  I can't tell you how wonderful it is to hear great news like this.  I am joining your celebration.  Love n Hugs to you, John, and your Michael, Chris

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  5. That's very good news, Krissy, I'm right pleased for John and yourself :-)

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  6. nightmaremom1/11/2008 7:03 AM

    YEAH!!!  Great news.. thanks for sharing.  Hugs to both of you
    d

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  7. Thank you Lord!!! You know Krissy, this week I've been praying that the Lord would heal John and that he would not be a statistic like other BMT patients but that he woudl have complete healing to glorify the Lord and honor him. I would like to think the Lord is hearing and answering our prayers. THANK YOU LORD!!

    this is just wonderful news!

    (now you take care of yourself, Krissy)

    betty

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  8. Wonderful fantastic news! I'm joining the celebration too! I honestly have never prayed so hard for an on-line friend and I'm so glad so many other JLanders prayed thier butts off too. I'm sure everyone who did pray will be reconfirmed of the power of prayer. You go John!  Hugs to U2~Deb ;-))))))

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  9. Praise the Lord ! That is wonderful news!

    Sharon

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  10. I am praising the Lord and rejoicing with you both dearheart!
    loving you
    karyl

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  11. midwestvintage1/11/2008 8:57 AM

    Wonderful news for the both of you.

                    Julie

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  12. John is amazing! and was there a happy birthday somewhere this month.... :)
    Have a great day!
    Linda :)

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  13. Being stubborn really works! Great news friends. Now y'all have some fun! Tammy

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  14. I hope he continues to surprise the doctors.

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  15. I am so glad that he is doing so much better. May God bless and continue to be with you both. Helen

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  16. I am so pleased to hear that John keeps on improving. It`s great to hear such good news. :o)

    Love Sandra xxxx

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  17. This is all such good news! I hope John continues to amaze us and his doctors with his stubbornness!

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  18. I'm so happy to hear such news!
    Missie

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  19. peytonswater1/11/2008 1:29 PM

    The power of prayer is an amzing thing. I'm very happy for both you and John
    Love
    angie

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  20. promiseluv3721/11/2008 1:46 PM

    Fantastic! I'm so glad he is feeling better.. Now babygirl, get some rest! Your turn to nap! ;)

    Love ya,
    Promise

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  21. blueblueandblew1/11/2008 2:50 PM

    Such good news to hear!
    Take care you two.
    Delaine

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  22. Krissy your words today are a true blessing for sure hearing that John is doing better since before the transplant.  My prayers as well as so many others are being heard. Take care, enjoy your weekend. Bless you both.  Arlene (AJ)

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  23. Great news all the way around!  Thank you for letting us know.  I'll say a prayer of thanks for John's success.  

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  24. Krissy - thank you so much for letting me into your wonderful world!

    Love, Leslie

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  25. John looks good in that picture. A lot of us are praying for you and him.
    Hugs.
    Dee

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  26. Such good news for you both.
    Pam

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  27. newsworthy8221/11/2008 5:27 PM

    Wow, that is amazing! Praise the Lord!!
    hugs
    Melissa

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  28. hugsdoodlewacky1/11/2008 5:58 PM

    (((((((((((((KRISSY)))))))))))))))))That is wonderful news to  hear.I am soooooo happy.Have a good weekend.

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  29. I hope he continues to improve!!
    Jackie

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  30. rdautumnsage1/11/2008 7:59 PM

    Wonderful news hon! Now you need to remember to take care of yourself as well. Actually take care of each other....Your in my thoughts and prayers on the smoke for continued good health. (Hugs) Indigo

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  31. It's really good news to hear here!  I hope the news continues to get better.  Have a fantastic weekend Y'all!

    Phil

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  32. helmswondermom1/11/2008 8:38 PM

    I'm so glad that John is doing so well.  That has to be a big relief to you.  You do sound rather hired, I mean tired. lol  I hope you get some rest and get to feeling better, too.
    Lori

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  33. I'm so happy to read about your good news. My thoughts and prayers are with you both!

    Beth

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  34. That is fabulous news I am happy for both of you and will keep you in my prayers , I was refered her by Magic smoke and would like to invite you to my journey :http://journals.aol.com/shrbrisc/sherrys-public-journey/
    hugs and prayers
    Sherry

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  35. Celebrating and praising with you Krissy!!!  It is awesome.  One day at a time is what they say.  You've had pleanty of days of worry and pain.  So enjoy and cherish each day of joy and well being.  -  Barbara

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  36. princesssaurora1/12/2008 1:06 AM

    THis is a wonderful entry and a wonderful answer to many many prayers.  I will still keep you both in my heart and prayers.  

    Rest, Krissy.

    be well,
    Dawn
    http://journals.aol.com/princesssaurora/CarpeDiem/

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  37. dontyouwant2no1/12/2008 4:35 AM

    I'm so glad to hear that John is doing so much better. It's nice to see a picture of him to . Lets you know how much he is doing better. I will also keep prying for you and john. Take care of your self! Tell john he better get well soon lol

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  38. Merci beaucoup for your comment on my aol blog.  My main blog is on ...
    macilehooperlejeune.com ... and so far, I have had no complaints about being able to read and reply to my entries.
    I am about to put lunch on the table but intend to come back here this afternoon and tomorrow.  Saturday and Sunday afternoons is when I catch up on email that is backlogged.  On the stjames list and cajunspray@aol.com ... I answer mail as soon as I get on and see it. Others have to wait.
    >>>I TALKED TOOOOO MUCH ... SO AM SENDING AN EMAIL<<<  ;-)

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  39. WOWOWOWOWOWOWOW!!  That is from me and my John!!  We are celebrating along with you two!  AMEN!!!  Remember when we thought John would have to receive blood for the rest of his life.  Yep, John showed us all!!  Yiiiipppeeee!  xox
    http://journals.aol.com/valphish/ThereisaSeason

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  40. THANK you for being an instrument of St Therese, my prayer buddy, and sending me that beautiful ROSE...you little rose petal, you.

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  41. Hi Krissy
    I want to thank you for you thoughtful comments. I look forward to communicating with you. Please know that I will say a prayer for you and John for continued good health.

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  42. So happy to hear that John is doing so well.  We give thanks to the Great Physician!  Linda in Washington state

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  43. My heart goes out to you and John. I am so pleased he is doing well. I will say a wee prayer for you both tonight. Love Pam xx

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  44. Pleased to here John is doing well.
    Jenny <><

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  45. So glad to hear that things are going well :o)

    Jenny

    http://journals.aol.co.uk/Jmoqueen/MyLife

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  46. Good for him! Keep kicking ass!

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  47. Hi Krissy and John,    After all John has been through "IT IS ABOUT TIME".  I AM SO EXCITED AND HAPPY FOR YOU BOTH.  Krissy you were there for him the whole time and you went through hell yourself.  You just lay there and rest and let your legs pant.....heehee pulsate I mean.  My prayers stay with you always,
    My husband has fibromyalgia and the pain sometimes is terrible.  He takes neurontin and that helps.    Bye for now........Love Myke

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  48. I am extremely happy for John and you!   As well as glad that John has so many improvement signs.   What a great way to start off 2008!    mark

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  49. ldybutterfly11281/17/2008 10:19 PM

    Hi Krissy,

    This is Jamie...you stopped by my blog and commented today.  Tell AJ that I've been trying to email her but her email keeps rejecting me and not accepting my emails.  

    Thank you for your encouraging words.  It means a lot to me to know people who have been through or are going through what I am.  This road is a difficult one and I often have a hard time expressing how I truly feel about it.  I trust the Lord's plan completely, but I can't help but get into my flesh sometimes and allow myself to feel the fear of losing my husband.  And then when I need to talk to someone, because no one I know is going through the same thing, they don't know what to say to me when I share with them so they tend not to be reluctant to take part in a conversation.  

    This disease is brutal.  It kills me to watch my husband struggle.  I know you understand.  It tears my heart up.  But the Lord is always faithful to pull me out of whatever pity party I might be throwing myself.  

    I pray that your John will continue to be in remission and he never have to undergo any other treatments ever again.

    God bless you.

    Jamie

    http://journals.aol.com/ldybutterfly1128/jamies-blog

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