Thursday, November 29, 2007

John's being discharged today

Good morning.  Just a quick entry before I am off to the hospital.  Today is actually discharge day!  They are releasing John because his fever is gone.  He can't walk much yet.  But yesterday he walked a little bit down the hall, actually one lap around the little circle.

I'm so glad his fever is gone and he is able to come home, but I'm a little nervous.  Just yesterday I wanted him recultured, because the night before he couldn't walk even one step in the hall, and I was wondering why he was so ill.  But it does look like he is improving now.

I am, however, really scared that his hemoglobin is so low, and his numbers are steadily falling.  When I pointed out to his doctor/ oncologist the low number in his labs, he ordered blood for John.  That was at my urging though.  It really scares me that the doctor didn't notice on his own.  Actually, the first time I pointed it out to him (day before last), he said he would order blood and he never did.  Yesterday I called Dr. Claxton's nurse, Mitzi, in Hershey.  I told her the situation.  She said that instead of John coming to Hershey Medical Center, that the local oncologist should order the blood for John right away.  I had to argue with the local nurse a little bit, but she finally took care of having the doctor order the blood.  Such nonsense.  She knows it takes three days for the blood to get to the hospital because John's type is so rare.  She kept saying, but what if it so happens that he just DOESN'T need it?  I said, but what if he DOES?   

The blood will take three days to come in.  John will get it here at the local hospital he has been in.  They will readmit him to the hospital for one day to give him the blood.

Seems kind of strange to me that they are not keeping him since his count is so low, but whatever.  I will keep him on my couch in the living room, LOL.  Sounds good to me.  I can keep a good eye on him.  I will make him homemade soup.  When he feels stronger (and that may not happen before he gets blood) he can practice little walks around the apartment.   

I am so excited!  To have him back.  Praise God he is with me this year, in time for Christmas.  It will be a good one!  I am thinking of putting up a tree now!  And I will get my kitty back even!  

Hope your week is going as well.  Now off to the hospital to get John!

Love,  Krissy

                       

42 comments:

  1. Awwww thats great news Krissi John is coming home.I do agree with you at standing firm and having your say and making your point heard.This shouldn't have to be done by the patients family,but it seems it is the only way things get moving nowadays all over, not just in USA but England too.Grrrr.I hope you all have  a good week/end together with Kitty and I also hope Johns Blood problem is soon solved and he improves with every day.Prayers continuing to be said.You look after yourself too and rest a little when you are both back home.Get on the settee with him if theres room LOL!!Take Care God Bless Kath
    astoriasand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES

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  2. That is great news. I hope John soon gets his strength back. Time for you to get a little rest. Helen

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  3. I am sorry I missed so much!
    I just got out of the hospital myself (14days). I had to have blood also!
    Hope John is feeling better soon!

    Sharon

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  4. I clapped as soon as I began to read your entry.  What wonderful news about John!!!
    I'm glad that you pushed for his bloods and that he can have them locally too.
    He will be as weak as water until he gets them.  But the body is a wonderful machine and he will soon feel brghter when he gets his transfusions.
    I am so happy for you both.  You will be more content with him at home with you.  He will get better care.
    God Bless you both.  I will still keep you on my prayer list.
    I am still smiling at your news.
    Love
    Jeanie xxx

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  5. Yes, get that tree up and start celebrating! Tammy

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  6. great news, Krissy!!!!!
    Becky

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  7. Such Good News!!
    Have a great day!!
    Linda :)

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  8. Wonderful news that John is coming home. Yes, I think some homemade soup will work wonders for him. Put that tree up asap. It will make you both happy. And go get your kitty. ((((((hugs))))))
    Love,
    Cindy

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  9. Thank the good Lord!  What wonderful news!  'On Ya' - ma

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  10. ladymagnolia196311/29/2007 9:31 AM

    Good Morning Krissy Ü,

    I am so happy to hear that John is getting better praise the LORD! I know your soup will make him feel better and there's no place like home Ü.

    HUGS~Donna
    http://journals.aol.com/ladymagnolia1963/ladymagnolias-daily-blog/

    YAHOO Instant Messenger~magnoliablossom40

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  11. newsworthy82211/29/2007 10:20 AM

    So glad to hear John will soon be back home.  Good thing you are there to keep the doctors in line!!
    hugs
    Melissa

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  12. hugsdoodlewacky11/29/2007 11:07 AM

    (((((((((((((((((KRISSY)))))))))))))))))))))))))I am glad John wil be comming home and it is good you tell them Doctors,what you know best.HAve a nice weekend.

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  13. carolelainedodd11/29/2007 11:24 AM

    This is such good Krissy.
    He'll do much better at home, with you to look after him!!
    Hope he continues to improve.
    Keeping you both in my thoughts and prayers.
    Carolxx
    http://journals.aol.co.uk/carolelainedodd/a-quiet-life......i-wish/

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  14. Krissy,

    So happy to hear that John is coming home!  That's good news!  Sorry to hear about the problem you've been having getting the doctors to order blood, though.  What a shame that they couldn't have ordered it sooner so they could use it before John went home.  Hope all goes well!

    Love and prayers,
    Jeanne

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  15. I'm so glad John is coming home!
    Missie

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  16. randlprysock11/29/2007 1:04 PM

    Prayers answered and John is coming home for the holidays!!!  What a wonderful blessing!!!  Hope you have a great holiday season and a great day today!!!!!  Hugs,
    Lisa

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  17. So happy to hear that John & Michael both well get to come home. I've always found I feel better once I'm out of the hospital.  He'll get stronger just walking around the house a little each day and with your TLC.  God is good!   Linda in Washington state

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  18. Great news!! I really didn't think he'd be coming home so soon. Amazing! He'll heal better at home with your homemade chicken soup, and you to cuddle to at night.
    Hope you have a good day.
    Pam

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  19. Krissy glad to hear that John is coming along better.  Like you isn't it frustrating when you have to follow-up on course of medicare care and ask to have something done like the blood work-up.....agree they should be on top of it.  Know John will feel better once he's home as will you....just enjoy each other dear. You both are always in my thoughts and prayers. Arlene (AJ)

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  20. lifesabench611/29/2007 2:27 PM

    I'm glad Krissy!  I hope he's well enough to enjoy Christmas, and that you both can take it easy too.  God bless you both and thanks for the update!  Carolyn

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  21. This is GREAT news, Krissy. I am so happy for you both. Praying for you both.
    Hugs, love and prayers always,
    Barb- http://journals.aol.com/barbpinion/HEYLETSTALK

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  22. yay for coming home!

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  23. peytonswater11/29/2007 3:41 PM

    I'm glad he is able to come home, I will always keep him close in my thoughts and prayers :)
    Hugs
    Ang

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  24. kaydeejay544911/29/2007 3:43 PM

    Praise, God.  Prayers are being answered.  John is an unbelieveable fighter and he will be home for Christmas.  I hope it's the Merriest ever.  You two deserve it more than any two people I know!
    Hugs, Kathy

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  25. I'm very pleased that John is able to come home, Krissy, but am a bit worried about the unnecessary hold-up in getting his blood transfusion organised.

    Guido
    http://journals.aol.co.uk/pharmolo/NorthernTrip

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  26. lilysparadise11/29/2007 6:05 PM

    Hello Krissy - Rose here from Vancouver. My prayers go out to you and John. Seems like quite the maze of hospital bureaucracy that you have to navigate. So sorry to hear. Glad to see that John will spend some time at home again, as I'm sure he wants to be in familiar surroundings. Take care of yourself, please. Enjoyed your kitty graphic, also. (((HUGS)))

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  27. mztishgray072611/29/2007 6:16 PM

    I am so glad that John is coming home and you both will be home.  As always you are both in my prayers.  Hugs.  Tish G.  

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  28. seems like a lot of hospitals these days want to get rid of patients fast.  I do hope everything will keep progressing well for him and I will keep you both in my prayers.

    Phil

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  29. cacklinrosie10111/29/2007 7:57 PM

    I'm glad you have John home.  You will take very good care of him until the blood comes in.  It seems you know more about how to treat him than they do anyway.  Hang in there.... Love you both, Chris

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  30. Being home should lift John's spirit as well!  -  Barbara

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  31. so glad John is home:) and Kitty will be home too

    Deb

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  32. I glad to read John is getting better but how sad that you have to argue with a nurse to have the much needed blood ordered! You and John are strong and you have Angels all around you! Kudos for sticking up to that nurse! I had a blood transfusion and ohh was that a weird feeling! Anyway take care of yourself and I am sending lots of love to both you and john!

    ~Nicole~

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  33. that is great news my friend.. hugs to both of you.  Take it easy.. you included!
    love ya
    d

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  34. Oh Krissy, I'm so sorry I haven't been around in a while. I haven't felt like doing much journaling the past few weeks and I didn't know about John. Thank God his fevers are going down. I can't believe the trouble you had getting the blood ordered.  Will be keeping you in my prayers, Take fare. Happy Holiday preparations, Hugs, Barb

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  35. Hi Krissy,

    Sending glow for both ((((((((you and John)))))))))).
    Just wanted to let you know that part one of Junior's Tale has been posted at
    http://journals.aol.com/nemesis1im/meowz/

    I hope you'll enjoy  it.


    Dani

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  36. still sending prays to u and john....give john a great big hug for me ok

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  37. Very good news Krissy...but oh my goodness they don't seem very organized at that hospital...I mean if not for you...what would have happened to John?....Gosh that ticks me off to no end....well give John my love and tell him he is still in my prayers....June

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  38. Welcome home John? Does he still have a journal?  I will write him there if he does.  Oh Krissy, they are so DUMB in hospitals, you have to be "one up" on them.  They send people home way to soon. That makes NO sense to send John home when it's likely he will need blood.  I know you want him home and welcome him on your couch, but Krissy, it ticks me off because anymore YOU have to the NURSE....the nurses often do NOT do thier jobs. They don't watch theimportants stuff.  I know this from Dave's knee replacement surgery. The thought I was really odd, but I don't care!  If I see something wrong I tell them!!  Right now I am fighting with one of Dave's doctors about a new medication that was added by one of the heart doctors...but not Dave's regular one, but the one who did his angiogram.  No one so far will take him off it.  I think it's making him pee too much. Then he can't get back to sleep because the pain in his knee hurts!! My book and the internet say this is a symptom, but when I tell the GP this, or the ortho this, or ANYONE, they just sluff me off.  The heart doctors said maybe he needs a Urologist. Today we went to the family doctor who did a culture and said Dave has no urninary infection. And his blood shows so infection of any kind. This doctor also told me he had just checked Dave's prostate Oct 29 and it was NORMAL. So WHY would he need a urologist??  He finally said, to Dave & I, wait on this, it could be from the surgery (NOV 5)  Don''t worry for NOW. Oh, Krissy, I can only imagine what you must have to deal with.  Sorry I went on a bit here!  Love to to John, and to you, Krissy, my dear smart friend!   Take care, soon as I have a few minutes free from Dave and my other stuff, I am going to call you for sure.  We need to talk.  I miss you!  Merry

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  39. dontyouwant2no12/01/2007 1:37 AM

    I'm glad John feels better. WElCOME home!

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  40. Hi Krissy - Glad John's coming home. When I worked in the hospitals while in the army, I noticed that the squeaky wheel got the oil. Personally, when I was in the hopspital. I read my own charts and made my own diagnosis. You know yourself and your loved ones better than anyone does. The doctor has  143 patients and he has to read each chart so that he can remember the last thing he did to or for them.

    Jimmy

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  41. Good to hear, Krissy! And good for you for knowing what is going on, and not being afraid to speak up about it. The best thing we can do for our own health or for our loved ones' health is to ask questions and be informed. Doctors are not infallible, and a good doctor will never intimidate you or get angry with you for asking questions.

    Take care,
    Beth

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  42. helmswondermom12/01/2007 11:57 PM

    I'm so glad John is home now.  I hope he is doing well.
    Lori

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