Sunday, November 25, 2007

john has been having fevers between 103 and 104

Hi.  Just a quick update.  John is at the local hospital.  It's not as good as his cancer/ bone marrow transplant center (Hershey Medical Center), but the quality of care seems to be pretty adequate at this local hospital.  We came into the Emergency Room there this morning when John had a fever of over 103.  The oncologists at both hospitals conferred and had a difficult time deciding which hospital to admit him into.  Finally it was decided that he was not stable enough to travel the two and a half hour ride to the better hospital, and that they would keep him local, and transfer him to Hershey if he took a sudden downhill dive.

I was pleased when John was admitted finally, and we found his nurse was somebody who had been following his case for years at another office, the office of his local oncologist.  Sara will be his nurse for over eight hours a day.  She knows a lot about bone marrow transplants and cancer so I feel so much better.  She also knows about John's kidney damage, that he was on dialysis, about neutropenia precautions, about when he should get blood, how he used to get seven bags of blood a day (red blood cell packs) and how to tell when he needs more, etc...  She is very up on his case and on hematology/oncology in general. 

So, how is John doing?  He hung between 103 and 104 degrees all day.  This was while they were filling him full of Tylenol.  They were very worried about him.  Finally later on tonight his fever came down some.  I can't remember how much, but some.

What's going on is this.  His ANC (absolute neutrophil count) is 0.06.  Like nothing.  So he finally caught a bacterial infection.  They are trying to find out which one.  Meanwhile, they are filling him full of fluids by way of IV pump and also giving him an IV antibiotic.  It is a broad spectrum one and should work on a lot of different bacterial infections.  Cultures were taken, and they take one to three days to grow.  After the results come back, then a different IV antibiotic will be given, one that is spefic to his particular bacterial infection.  He will either have the antibiotics switched, or be on two IV antibiotics. 

The last time this happened, if everything goes smoothly, he will be out of the hospital in a week.  That is usually the best case scenario. 

The reason I am home is because the hospital asked me to come home and get his eye drops and his Living Will.  I also had to get myself a diabetes shot, and one for Michael.  My parents then took Michael, bless their hearts, so I could spend more time with John.  If anything ever happened to John, I don't want not to have gotten the chance to say goodbye because I was home feeding the cat or giving him a shot.

So I am going back first thing in the morning.  Actually in a few hours.  I have not slept a lot tonight.  Yes, I do trust in the Lord, but I am a little scared.  I used to be pretty used to this, but when you haven't been through it in awhile, it's hard.  But I do feel relieved that he was doing a little bit better.  Earlier in the day he was so sick he couldn't talk, respond, or open his eyes. 

Okay, please pray for him.  And pray for me that I relax and try to sleep when I can.  And eat correctly.  I can't let myself get sick.

Alright, love you all.  If you don't hear from me in awhile, it means I can't get away from the hospital.  Then I'll give my password to my sister Val and let her update in this journal.

Love,

Krissy 

51 comments:

  1. Hi Krissi it's good to read John has a nurse around who knows lots about his condition,that alone helps.I do hope things improve throughout Sunday and prayers being said for all the family.Take Care God Bless Kath
    astoriasand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES

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  2. well sending out some love to you both. Tell John I wish him a speedy recovery. I am sure in the end he will be ok and eventually he will build up resistance. :)

    happy late thanksgiving! xxxxxxxxxx love Deirdre

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  3. hugsdoodlewacky11/25/2007 4:57 AM

    ((((((((((((((((((((KRISSY((((((((((((((((((((((Know tha I am praying for John,always and you as well.

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  4. Krissy,
    Continuing to send prayers for John and of course you.  Lu

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  5. ally12313058591811/25/2007 6:30 AM

    It has been a long time since I came by your journal ~ and I am so sad to read John is still so ill ~ will keep him in my prayers as I always do ~ Ally x

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  6. That's good that he has a nurse who knows what is going on and what has already gone on with his health. Still sending up prayers for both of you. Hugs, Helen

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  7. peytonswater11/25/2007 8:01 AM

    I was just thinking of John yesterday because it's time for me to donate blood again on the 29. I will keep him in my thoughts and prayers. Stay strong :)
    Hugs
    Ang

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  8. prayers going up for the both of you. and yes take care of yourself also. ((((((hugs)))))))
    Love to you both,
    Cindy xoxoxo

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  9. Krissy,
    Things are not too good, by the sound of things, but so far the doctors appear to be on top of the situation. You can actually make Val a writer in your journal, Krissy - under the journal's name, it says "Add / Manage writers". New feature, hope you don't need to use it.

    Guido

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  10. you are in my prayers...
    Lyn

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  11. I am so glad that John has the nurse he has.  An angel looking over him...and YOU.  You are in all my thoughts and prayers.  

    ((hugs)) and love to you and John,
    Jeanne

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  12. It is great he has a nurse you feel so good about.  I will be Praying for both of you.  Take care of yourself too, try to get some rest.
    Lisa

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  13. Sounds like John is in good hands... How comforting for you to know that his nurse is such a good one! I know that taking care of John is your #1 priority right now, but don't forget about YOU! You need to be taken care of too. Hang in there, kid! {{{Hugs}}}

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  14. {{{{Krissy & John}}} sending good thoughts and prayers.  Hoping John's temp came down more today and he is on his way to recovery.  Love you both
    hugs
    d

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  15. cacklinrosie10111/25/2007 10:46 AM

    Krissy, of course you are scared.  You've been through soooo much and just when things are going good, John gets so ill again.  Know that so many prayers are being said for John.  He is one strong survivor.  He's forged his way through so much.  That angel is sitting on his shoulder.  I'll also keep you in my prayers.  Love to you, John and Michael.....Chris

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  16. Dear Krissy~I'm so sorry to hear of John's set-back. I hope you will both be home ASAP. Still praying for you 2~xox Deb

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  17. newsworthy82211/25/2007 11:55 AM

    THanks for the update.  You are a very strong woman and John is strong too, I will be praying hard that he pulls through this quickly.
    hugs
    Melissa

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  18. I hope you are holding up ok.  My thoughts and prayers are with you both.  Take care.

    Phil

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  19. Thanks for updating us. I will keep you both in my prayers Krissy.
    Pam

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  20. Thanks for the update Krissy.  You must rest and eat correctly, to keep your diabetes in control.   And Michael is with grandpa & grandma, so he'll be fine.   Prays continuing for John.  Linda in Washington state

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  21. I'm praying for both you and John and won't stop until he is better....June

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  22. mztishgray072611/25/2007 1:51 PM

    I will be praying for you both that everything goes okay.  Hugs.  Tish G.

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  23. You both continue in my prayers. Please take care of yourself, Krissy, so you will be strong enough to care for him when he returns home to you.

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  24. carolelainedodd11/25/2007 2:43 PM

    Keeping you both in my thoughts and prayers.
    Carol

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  25. You and John are in my prayers.
    Missie

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  26. princesssaurora11/25/2007 3:20 PM

    Praying for you and John....

    be well,
    Dawn
    http://journals.aol.com/princesssaurora/CarpeDiem/

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  27. Krissy we all love you and John and we are keeping John and also you dear in our prayers.....know we are all here for you.  Bless you both.  Arlene (AJ)

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  28. praying for you both:)

    Deb

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  29. praying for  all for you guys!
    Becky

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  30. The two of you and everyone involved has my prayers.  -  Barbara

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  31. Krissy, thanks for the update, I am so sorry...just when it seemed you'd have some time to enjoy life together like normal folks!  You know you and John are in my prayers.  Stay in touch.  I'll be in touch with Val for details, too.  Love you both!  Merry

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  32. tendernoggle11/25/2007 6:55 PM

    Krissy,
    I am so sorry that John is sick...seems like everything can be just dandy one minute and then BOOM...they are not....it is enough to tear your nerves up I know so well...
    God bless and keep you and john safe...
    Yall are in my prayers,
    love ya,
    carlene

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  33. We are praying for you both.        Dawn

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  34. lifesabench611/25/2007 9:39 PM

    I'm sorry Krissy that you guys have to go through all of this again.  I just said a prayer for you both- and will keep you both lifted up to the Lord.  God Bless, and please take care of yourself too!  (())'s  Love Carolyn

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  35. Glad to see your note today.  Will continue to pray for you and John and the medical staff.  Big hugs.

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  36. Krissy,

    Prayers for you both, headed your way!  May God bless you both and keep you safe in His loving arms.

    --Amy

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  37. Always Special Thoughts...
    Linda.....

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  38. I  have been thinking of you both and keeping you in my prayers.
    Please God make him well soon.  Try and get a good rest before you go.
    God Bless
    Jeanie xxx

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  39. I am sorry that you are having to deal with so much so fast... the Lord knows your strength!

    God bless-
    Amanda

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  40. You are both in my thoughts and prayers.
    Please let John know we are all pulling for him.

    Much love,  Kate

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  41. dontyouwant2no11/26/2007 11:55 AM

    Hi Krissy ! I also go by Krissy Only online tho. I was just looking threw some journal and saw urs. I'm looking for a few aol journal buddies. I'm kinda new to aol journal I use to have blurty but it didn't work out to much. But anyways if u would like another journal pal just leave me a comment in my journal. And I hope u had a good thanksgiving I know I did. And I hope john gets better.

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  42. dontyouwant2no11/26/2007 12:00 PM

    Aww I just saw a cute lil kitty with Krissy beside it. Do u mind if I steal it? lol

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  43. Hi Krissy,

    I don't get to wander around J-land much, not anywhere as much as I would like to.  We'll stand in agreement with you about John (Matt. 18:19) for his healing (Isaiah 53:5).  Be sure to take care of yourself too, you can't be any good to John if you're down for the count.  Give us updates as you have time.

    Dirk

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  44. promiseluv37211/26/2007 4:05 PM

    My prayers are with you and John at this time of need.  (as always)  Keep the faith love! God will help!

    Love,
    Promise

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  45. Krissy,

    So sorry to hear about John!  Am praying for both him and you and hope all goes well!

    Blessings and strength,
    Jeanne

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  46. countrylady407111/26/2007 9:44 PM

    I'm very sorry to hear about your husband being in the hospital.  I hope he will soon start to feel much better.  My prayers are with you and him.
    Hugs,
    Pat
    (From Virginia)

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  47. Krissy, I am praying for you both!!  Love you and miss you.  Shelly

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  48. What a blessing to get a nurse that is up on is history.  I'll pray that everything goes well and you all will be home quickly.  (((HUGS)))

    Much Love,
    Mary

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  49. I am really sorry to hear of your husbands health! I will be praying for both you and john daily! Please take care of yourself as well through this stressful time!

    ~Nicole~

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  50. heres a great big hug to u  and john...and im praying for u both to be well ...

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