Home, but not home free

Hello everybody.  I guess you know by now that John and I are at home.  And loving every minute of it. 

We got here Thursday night.  I haven't posted yet because I kind of wanted to keep a low profile.  I have just been doing a lot of things I have wanted to do, things I really haven't gotten to do in months.  And boy it feels great.  I am really enjoying being home.  Sorry I didn't update you all sooner on what was going on with John.

Let's see.  How is he doing?  He is doing a lot better than before he went in the hospital this last time.  He still requires a lot of blood though - four units a week.  They are giving him two bags on Thursday and two on Sunday.  At least that is what they are supposed to be doing.  Things are already messed up.  When he went for his scheduled blood today (Sunday), the local hospital said it wasn't ready.  They said it wouldn't be ready until Monday or Tuesday.  This would never happen at Hershey Medical Center.  That was the whole purpose of setting up two days a week on schedule.  So he could have scheduled transfusions.  Tomorrow morning we call Mitzi.  I think she will have something to say to them about this!

I feel bad for John.  He is already turning pale, and is tired and out of breath.  He is okay now, but in a couple of days will be sick again if they don't hurry up.  

As far as the Hemolytic Anemia goes, it is still not giving up the fight, as John puts it.  It wants to hang on to him.  He is receiving chemo for it though.  I believe 8 treatments (8 weeks worth).  

Gee, the guy upstairs is playing his stereo REALLY loud past midnight.  I find that quite inconsiderate.  He does that often.  He is so rude! 

Anyway, getting back to John, between chemo (four hours weekly), blood twice a week (an all day affair), the home nurse (three days a week), and additional labwork twice a week, John has appointments seven days a week.  This is not counting his regular doctor's appointments.  This is every day in December.  Maybe they will give him Christmas off, LOL.  I hope so!  But I am really not complaining because we are home.  It is much nicer than being in the hospital.

So that's about it for now.  How is he overall feeling?  "Tired, but not too bad."  I wish they would give him that blood on time, then he probably would have said "good". 

So on a final note I wanted to say that I am too busy to do the Photo Scavenger Hunt for this coming week, but I promise we will do it for the rest of December.  I have the subjects all planned out!  So thank you for bearing with me, and being patient.  

Love you all,

Krissy :)