Monday, December 4, 2006

Home, but not home free

Hello everybody.  I guess you know by now that John and I are at home.  And loving every minute of it. 

We got here Thursday night.  I haven't posted yet because I kind of wanted to keep a low profile.  I have just been doing a lot of things I have wanted to do, things I really haven't gotten to do in months.  And boy it feels great.  I am really enjoying being home.  Sorry I didn't update you all sooner on what was going on with John.

Let's see.  How is he doing?  He is doing a lot better than before he went in the hospital this last time.  He still requires a lot of blood though - four units a week.  They are giving him two bags on Thursday and two on Sunday.  At least that is what they are supposed to be doing.  Things are already messed up.  When he went for his scheduled blood today (Sunday), the local hospital said it wasn't ready.  They said it wouldn't be ready until Monday or Tuesday.  This would never happen at Hershey Medical Center.  That was the whole purpose of setting up two days a week on schedule.  So he could have scheduled transfusions.  Tomorrow morning we call Mitzi.  I think she will have something to say to them about this!

I feel bad for John.  He is already turning pale, and is tired and out of breath.  He is okay now, but in a couple of days will be sick again if they don't hurry up.  

As far as the Hemolytic Anemia goes, it is still not giving up the fight, as John puts it.  It wants to hang on to him.  He is receiving chemo for it though.  I believe 8 treatments (8 weeks worth).  

Gee, the guy upstairs is playing his stereo REALLY loud past midnight.  I find that quite inconsiderate.  He does that often.  He is so rude! 

Anyway, getting back to John, between chemo (four hours weekly), blood twice a week (an all day affair), the home nurse (three days a week), and additional labwork twice a week, John has appointments seven days a week.  This is not counting his regular doctor's appointments.  This is every day in December.  Maybe they will give him Christmas off, LOL.  I hope so!  But I am really not complaining because we are home.  It is much nicer than being in the hospital.

So that's about it for now.  How is he overall feeling?  "Tired, but not too bad."  I wish they would give him that blood on time, then he probably would have said "good". 

So on a final note I wanted to say that I am too busy to do the Photo Scavenger Hunt for this coming week, but I promise we will do it for the rest of December.  I have the subjects all planned out!  So thank you for bearing with me, and being patient.  

Love you all,

Krissy :)

27 comments:

  1. Glad you are home and have been doing lots of theings that you want to do. I know it is hard to be away from home so much. I am hope the hospital gets things organized and on scedule soon.
    Barbara

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  2. midwestvintage12/04/2006 12:49 AM

    Welcome home and I hope John gets his blood soon.

                   Julie

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  3. So glad to hear you're home...hope you can stay there for the holidays!

    Nancy

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  4. tendernoggle12/04/2006 1:32 AM

    I do not know anything about this but is it possible for John to get his blood transfusions at home, or any of the other things at home??? It would save you alot of trips...
    God bless you both.
    love ya,
    carlene

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  5. So glad you're home and sorry the blood sched. is already messed up.  Give em heck Mitzi!! Praying you get to stay home  for the holidays and hope the chemo works this round.  
    Glad your home.
    Holiday hugs, Barb  

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  6. Glad your home for a bit. Praying always for you two.

    hugs
    angelrose

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  7. Thanks for keeping us posted.  I can't imagine how the two of you are still in good spirits.  The trips alone would be enough to wear me out, much less all the medical stuff that comes with the trips.

    Greg
    http://journals.aol.com/radar446/PhotoTrek/

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  8. Good News that you are home...even though you will be going to those appointments everyday of the week.  I pray that things will go smoothly and that they do what is needed.  'On Ya' - ma

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  9. SO GLAD HE IS FEELING BETTER...HOPE ALL GOES WELL LOVE YA

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  10. So glad you are HOME!!!!!  There's nothing like relaxing in the comfort of your very own place.  I hope he gets his blood and FAST and I hope they work it out so there are no further delays.  

    ((hugs))
    Jeanne

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  11. hugsdoodlewacky12/04/2006 7:34 AM

    ((((((((((((((((((((((((((JOHN/KRISSY)))))))))))))))))))))I am glad your both home.Glad John is doing some better,I hope and pray He will get His blood soon.And that guy upstairs,should be resecpful enough to turn His music down..That would get on my nerves.I hope you all have a nice Monday,will be looking forward to play the hunt game soon.

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  12. I'm so happy that your home. Hopefully they will have his blood ready today.

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  13. So glad you're home.  Taking care of John and yourself is your first priority.  Take care.....Linda in Washington  

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  14. I find it apauling that the hospital was not ready for his transfussion!!  As to the guy with the stereo, shame you can't pull out a shotgun.  But then you'd have scatter holes in your ceiling.  :o(   Enjoy every minute that you can at home.  -  Barbara

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  15. So happy to hear your both home. I hope John gets the blood today. I hope your both home for christmas. ((((((hugs))))))
    Cindy

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  16. Glad you are getting some time for you friend. You have earned it. Tammy

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  17. I'm so glad you guys are home!!
    and don't worry about the hunt cause I still haven't done my christmas cards... lol....
    Linda :)

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  18. You are kept busy with John's appointments and it will keep his battle with Hemolytic Anemia going toward the day his recovery will take place!     I am glad you are both home and can enjoy some interesting things to do.     I just wish your neighbor had some consideration and did not blast his music.     I would complain to the manager about it if it were me!    It is not like he can not play his music at a reasonable volume, but has to blast it and keep other's from being able to sleep or concentrate in peace.     I hope the hospital will have blood when John needs it on a regular basis so he will not have to wait.      My thoughts and prayers as always,      mark

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  19. I'm sorry to hear that John's transfusions are so badly organised locally. Hope they get their act together soon.

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  20. Hi Krissy- I'm glad you're both home now- hopefully all month!  I do hope your local hospital will get on the ball and be able to do their job so John will be OK.  You're always in my thoughts and prayers!  God Bless~ Carolyn

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  21. Krissy..I hope you do not tire of me telling you that you and John are in my prayers!
    Becky

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  22. It makes me mad that they didnt have blood for John.  Not very organized are they.  So glad you are home and can do a few things that need to be done. I know Michael is happy.  Poor John , I keep thinking of those chemo treatments he has to go through after he has been through so much aleady. Give him a hug for me.  That guy that plays his music loud needs a talking to.  Just what makes him think everybody likes his kind of music anyway.  He is inconsiderate and doesnt care what others think I guess.  You and John are often on my mind and always in my prayers.  Take care.     Love and hugs from  Myke

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  23. hope the hospital gets on the ball.

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  24. I am glad that you two are home. prayers still going up for you. The guy upstairs should have some consideration for other people. My daughter used to have that problem when she lived in a two story apt house. Helen

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  25. I am glad the 2 of u are home and jphn is doing better! i know how tired you can get with being anmeic ... not fun seems like you sleep your life away!
    as for the neighbor above call the police I am sure there is a noise curfew! there is here!

    Sharon

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  26. Krissy~So glad you can be home and do those things you've been missing. Please tell ((((((((((((John))))))))))))))) that I hope he gets Christams off too and I hope the hospital over there gets its' act together. God Bless you both~Deb

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  27. princesssaurora12/05/2006 1:10 PM

    Prayers as always... I hope the blood gets there fast...

    be well,
    Dawn

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