Hmmm. Let's see if I can keep this short because it is a little after one in the morning. Probably not, LOL.
Today was a long day. John had several tests and visits from specialists. Both Dr. Ehmann, the rotating oncologist, and Dr. Claxton, his regular oncologist came in for awhile. Dr. E. listened to John's lungs and announced to his students that there was no need for a CT scan, that he could hear something in John's lungs. Then he asked the students to listen to see if they could hear it. They each took turns. John told me later he was grateful that he served some purpose for the student's education, LOL.
Dr. Claxton and Dr. Ehmann conferred and decided that John should probably get IVIG again and chemo to try to stop the Autoimmune Hemolytic Anemia. He will get it after the pneumonia clears up. I am hoping John will be able to get it at home and not in Hershey. I like it here, but I don't want to live here over the holiday season! I think it will take at least four weeks to be administered.
So anyway, John went for a bronchoscopy today after seeing the doctors and it was two hours before he returned to the room. I went upstairs and played around on the computer, answered alerts and such. Then I grabbed lunch. When John came in the room I was relieved to see him, he had made it through the anesthesia and had no collapsed lungs, LOL. I know I can be so dramatic, but it seems lately if something can go wrong, it happens to John, so I started to get a little concerned while I was waiting for him, thinking about the complications the doctor told us could occur during the procedure.
Then John was told that his blood counts were so low, and that he needed two bags of blood. He didn't get any yesterday because they were worried that the blood would move blood clots along. But not being concerned about that today, they wanted to give him blood immediately. So they hung the first bag of blood. By this time it was 7 PM. Poor John hadn't eaten all day because of tests and they had forgotten toorder his dinner and it was finally getting here at about 7 AM when somebody busted in the room and shouted at him "Stop, don't eat! Put your fork down." I think John had gotten one bite in, LOL. I asked what the problem was and the nurse said John couldn't have food because he needed to get a CT scan. I thought this rather odd as Dr. E. said John didn't need a CT scan. So I made a mental note to ask what the CT scan was for. Then a lady from transport with a gurney showed up, and she was trying to take John downstairs to have the scan. "You can't take John off our unit," the nurse insisted. "You will have to do the CAT scan later. He is getting blood and could have a reaction, and you wouldn't know what to do. He has to stay on this floor until he is done with the blood." Then the nurse told the transport woman she could have John after one bag of blood, then he would get the CT scan, then he could come back upstairs and eat his dinner, then he could have his second bag of blood. I calculated this all out. This put John to winding down around midnight. What a long day for him.
Anyway, then a pulmonary specialist doctor walks in. She asked John a lot of questions. Then I asked her why they were doing a CT scan on John. She said during the bronchoscopy that they MAY have found something unusual. But she wouldn't tell us what it was until after they did a CT scan and did some conferring (the doctors). So here I am worrying, wondering the two worst possibilities. Fungal pneumonia or a tumor. I gotta cut this out. My mind is getting carried away with me. Anyway, they are going to let us know tomorrow I think.
So on that note, I should probably go to bed. I need to be bright for tomorrow. It may be a long day. There is so much I want to tell you all about, but don't want to ramble on and on.
Oh, I do want to mention that so called "lost item" is found. It was probably never stolen. That is good to know that those going through hard times wouldn't do that to one another.
And on a final note I would like to say goodbye to Rex, a stem cell patient who died yesterday. You will be missed. And so will you - Kay, Jay, Rhonda, Bill, Roger, and Duke. Don't think that I didn't notice your passing these past few months. I think I was just too numb to say goodbye to you all. Many of you were in the core group who were here all these months John was here also. Out of all of you who got stem cell transplants, John is the only one still left alive. And maybe Phil, I am not sure if he made it or not.
Rex, you were so humerous. You had such a zest for life. Goodbye Rex.
Kay, you were my best friend here at The Lodge. We sat up every night and talked. I loved you. I still do. Why did you have to go? Goodbye Kay. I believe we will meet again someday.
Jay, I love you immensely. You were such a stellar guy. Even among the Amish, there was not one as honest and as good as you. I miss you. Goodbye Jay. See you in Heaven.
Rhonda, you made me laugh! And you were always willing to play games with us on nights when we were bored. Goodbye Rhonda. Love you.
Bill, thanks for the kindness you showed me in offering me rides to the hospital. You were such a kind soul. Sitting there at the kitchen table in Hope Lodge in great health one day, gone a couple of days later. Goodbye Bill.
Goodbye Roger. Didn't know you long, because you died about a week after your transplant. Too bad we didn't get to know you. Goodbye Roger.
And finally Duke. You were bigger than life. You were as big as your name. Many in J-Land will remember you because I told them how you did St. Patrick's Day for us here at Hope Lodge, and Italian Day. You had everybody singing along and having a great time. You will not be forgotten. Goodbye Duke.
Hello John.
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